I was recently diagonised with scalp psoriasis after years of suffering. I hadn't been to the doctors out of embarrassment and partially thinking I had caused a flaky scalp but compulsively scratching it. I went to a walk in centre after scratching too hard and worrying I had an infection. They gave me dovobet and told me to use for 4 weeks, and to see my doctor at the end.
I have been using for just over a week now and it seems to have completely cleared up, no flaking, no redness and barely any itching. Is it ok to stop using earlier than told? I am worried about flaring up if I do, as this is the first time I have felt comfortable in years.
Hi, I dont have an answer sorry but your post has cheered me up as I have been using the gel for 2 days so fingers crossed it works well for me too,
Can I ask if youve lost any hair? I have a couple of small bald patches and am hoping they'll grow back.
Also how long do you leave the gel on for? I have been applying it at night then washing it in the morning, is this right?
Thanks Nicola
x
1Posted Wed 30 Nov 2016 03.56 by SamuelG (edited Wed 30 Nov 2016 03.56 by SamuelG) I'm Sam, 22, psoriasis sufferer for 7 years now
Hi, I've used dovobet for many years now, I find it helps me out a lot when my scalp gets very scaly and painful, I recommend to continue using for the amount of time prescribed by your doctor as even though you may not feel the psoriasis by touch, it may still be active under the skin if you follow?! So if you were to stop using it, the psoriasis will just reappear.
In regards to hair loss, I frequently lose hair due to having it quite severe on my scalp, but when it calms down, my hair goes back to normal completely.
I often rub in the dovobet at night before I go to sleep, then comb it out in the morning with a fine comb to get rid of any flakes that have come away, then wash it out with a shampoo I have been prescribed by my doctor.
Hope this has helped you guys out :)
Sam
Posted Fri 2 Dec 2016 08.12 by nicky
Hi Sam,
My doctor has perscribed it for 4 weeks but is going to ring me after 2 weeks to see if there is an inprovement, she said if there isnt we might as well stop it and go onto something else......But I can definitley tell a difference :) just after 5 days. Most of the scales are gone apart from a few on my crown.
Im so pleased a few people have said my hair will grow back as I was starting to worry and stress which I guess will make the psoariasis worse!
Im also on holiday next week and the doctor said the sun will help? does anyone else have any experience with this??
Thanks for you reply
Nicola x
Posted Mon 23 Jan 2017 13.54 by meggyloos
Iv been suffering with scalp psoriasis for 4 years since I was 16. I have been using the dovobet gel the doctor didn't tell me a way to use it. I tried to wash it out and its a nightmare to get it out my hair just stays greasy and I'm very particular about my hair, how do people use the gel is it overnight or just before you shower. Any help would be really appreciative. Ive used the gel twice and found my scalp is not itchy and far less flaky fingers crossed it works.
Usual is daily for four weeks then 4 times a week for 4 weeks. don't stop using.
Posted Tue 24 Jan 2017 18.16 by Psoriasaurus Rex Sick and tired of scratching the surface - want a cure.
In my experience dovobet rightly clears up even my most stubborn patches but it can lead to irreversible skin thinning if used for too long because of it's steroid nature.
My doctor told me to use it for only 2-3 weeks at a time, then not again for several months. My dermatologist told me twice a week is fine, for long term usage.
I used dovobet once a day on the patch at the front of my scalp for around 3 months, but I began to feel a very localized headache right underneath the patch so I don't use it anymore.
Psoriasaurus Rex
there is no cure sadly
but I like your humour.
Posted Wed 25 Jan 2017 01.31 by Psoriasaurus Rex Sick and tired of scratching the surface - want a cure.
Hey, if I can't beat it may as well embrace it.
Still, I'm not too inclined to believe against a cure. Some people have said that merely becoming happier and content clears it up (difficult as it may seem when your skin is crazy). Others seem to be able to 'control it' at least with certain diets. I'd settle for fully managing the disease, even if technically that is not a cure, more just keeping it at bay.
I dunno. The same people who claim there is no cure are also the same people who have little knowledge of the disease (dermatologists or really, anyone).
Roar
Well this is "oh well" yeah irony works ! You are right - it is what it is. Nothing to do other than just accept and try and cope. I dunno either, am on 5 different creams oil for the bath a pill, hands are cracked and broken. But who cares I am alive and breathing. Just don't want the arthritic stuff. Am awake obviously, scratchy itchy. Who thought daytime TV could be so boring. Plus its either too cold or too warm. Immune system in overdrive. There is no cure for the common cold, I aint holding my breath.
Posted Wed 25 Jan 2017 18.49 by Psoriasaurus Rex Sick and tired of scratching the surface - want a cure.
Colds can be nasty - you try taking lots of garlic?
Am somewhat concerned about psoriatic arthritis myself as the antibiotics I have taken over a few years have really hit my joints hard. My psoriasis started out through an injury, really hope PA doesn't do the same.
Good attitude though, keeping the head up. You ever tried Aloe Vera gel? Works wonders for me at least with killing off any itching.
I try anything, what's Toulouse. Hello Vera always, ever since Hawaii.
Unfortunately my other doesn't get the pain.
Posted Sat 18 Feb 2017 09.11 by Emilie
Meggyloos, the one thing that works for me to get the Dovobet out (I apply before bed) is rub clear shampoo (if it looks creamy/white it won't work, Herbal Essence is what I use) on the patches that have had the gel, pre-shower. I usually have to use quite a lot (a handful) to cover my head but that's because my scalp is really bad. Make sure it lathers a little on your dry hair and you can wash it off immediately in the shower. My hair comes out totally normal. I hope this helps, let me know how you get on!
Posted Sun 5 Mar 2017 10.30 by Joy
Dovobet gel is really good for scalp. I now have nail psoriasis which is unsightly and painful as the skin on my fingers is thickening and cracking- do you think I should/could try it on my hands?
I have been using Dovobet for years on all of my arms, legs, stomach and buttocks so either I am in trouble or your doctor who says you can only use it for four weeks is being very cautious!
It's all very interesting, not really. There are loads of advisory notices and frankly lies out there. Speak to someone that just might have had 8 plus years of education and experience. Self diagnosis is really stupid. "Ergo cogito sum". " I think therefore i am ill " sorry "am"
In case there are fools out there, all medicines are poisons,All. The lot.
Big-cat - please give some references to the advisory notices and investigations allegedly being carried out into dovobet? ALL corticosteroids are advised to keep away from the eyes. If people put on so much to be able to transfer from their skin to their pillow and then somehow into their eyes, then I would suggest that they are already not using it correctly.
Or perhaps you could give links to your own research covering "burned eye lenses"?
I would suggest thet people only use any treatments in the way instructed by their doctor or dermatologist, AND read the pharmaceutical guidance published and available online. If concerned they should consult these same people, and NOT to stop using a prescribed treatment simply because some unknown on a internet forum tells them to do so.
1Posted Sat 6 Oct 2018 14.56 by OhNo_NotAgain? (edited Thu 11 Oct 2018 18.36 by OhNo_NotAgain?)
Bigcat: It is still available in the UK. I received a new supply just this week. There are advisory notes (amd have been for a considerasble time) that warn against extended use close to the eye socket , and without medical supervision.
I have checked EVERY major pharmaceutical site in UK and US about dovobet that I can find - it does not appear to be either banned or unavailable.
In UK, doctors do not prescribe it for 2 years use without a break- in fact very few corticosteroids (if any) would be prescribed like that by competent, professional doctors.
First you advised to stop using it immediately. Then you said there was extensive research, investigations and warnings about it. Then you claimed to be a skin specialist.
So, please post some links to genuine medical warnings!!!! OR simply stop scaremongering.
I’m a doctor and have used dovobet on and off for years with mixed results for my psoriasis, unfortunately I tend to get a steroid flare every time I stop it.
Like all steroids ointments, you do not apply it into the eyes, this is stated on all the packing ‘avoid contact with eyes’. I have absolutely no idea how putting it onto the scalp could end up in closed eyes during the night however? The steroid ointment should be applied thinly onto the affected area not large amounts onto a pillow?
This medication is not discontinued, though as Instillar foam gains in popularity, is becoming less commonly prescribed. Instillar has similar ingredients so again avoid contact with the eyes!
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Posted Sun 27 Nov 2016 22.59 by Sbpie123
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Posted Wed 30 Nov 2016 03.56 by SamuelG (edited Wed 30 Nov 2016 03.56 by SamuelG)
Posted Tue 24 Jan 2017 18.16 by Psoriasaurus Rex