Covered from head to toe please help!
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Posted Fri 20 Oct 2017 00.29 by Cecilia mcclay
Hello. I'm American and our food here is specially designed to keep us all sick so that the Chemical, Food, Pharmacicutials, and Medical industry can line their greedy pockets. Psoriasis is one symptom of the many autoimmune disorders in the usa. These chemicals are the CAUSE, not a trigger of my psoriasis. . High fructose corn syrup, gluten, and all artificially colored soda, nitrates , GMOs, BVTs, ..I could go on and on .. you're lucky to be in the UK. Our doctors do nothing for us but advise us to take a pill! I have proven to myself these chemicals cause my psoriasis. I went on a complete elimination diet. I was above 50% .covered .mostly on my arms and legs. When it spread to my back and butt, I had enough. I first gave up High Frotruse corn syrup which, by the way is in 85% of our food and saw a 25% improvement, next I eliminated all gluten and after 2 weeks, half was gone but it wasn't until I gave up Diet Coke which contains aspartame and artifical caramel color that it went away almost completely. Now i just have plaque scars but they are fading. Now I keep an organic diet. It's very expensive and the food companies lie on the packages, trying to hide their toxins with different words .4 different doctors told me that what I eat has nothing to do with psoriasis. .an allergist, a dermatologist, a rhomatoud specialist and my primary care physician. ..either they're all very stupid or they're making $$$ on every prescription they write...it sucks. Good luck and remember, you are what you eat. Eliminate sugar but any fruit is good. Mother nature or God made fiber with sugar like in apples, bananas, pineapple. Pineapple, if it's not contaminated with chemicals is really good for you. No tuna or any other mercury containing fish. Mercury is deadly and is in high fructose corn syrup.! But no one in government seems care! Jeepers, I feel better now that I got this off my chest!
Posted Fri 20 Oct 2017 19.38 by Chan2010
Hey guys
I'm new to this forum.
I have been a psoriasis sufferer for around 20 years, it all tarted when I was around 9-10 and I've been up and and down with it all my life. I have tried every cream you could imagine and also had light treatment 4 times, this worked well the first 2 times then not so well after. At my last appointment with my dermatologist we spoke about tablet form treatment she gave me a load of information and links to websites and she asked me to go away and do some research and have a think about what I wanted to do. Research is ok but I'd rather hear from people that have experienced it.
Has anyone had any of the tablets? What was your experiences like?
I am trying for a baby (which is hard when your confidence is so low) so I'm sure that limits me to my options?
I need to do something about it before I lose my mind.
Thankyou
Posted Sat 21 Oct 2017 04.13 by Gautamse
Hi Chan2010,
I am a sufferer from since 2011, You can get in touch with me on Facebook at https://fb.com/convolute
I shared some info above which I think you would have gone through,
All the best !
stay optimistic and strong.
Posted Sat 21 Oct 2017 04.43 by Deeker57
Hi Rochelle/Chan2010
Took a look at my post above regarding Exorex Lotion, which is a coal tar lotion...that needs time to work. Hope it works for you.
Posted Sat 21 Oct 2017 08.54 by Idy
Phototherapy, methotrexate, ciclosporin and stelara afficionado
Hi Chan2010. In terms of tablets, with Methotrexate I had some mild side effects for the first couple of weeks (e.g. nausea) and after around 6 months I found that it had no effect on my psoriasis. Ciclosporin was a little better, reducing the extent of my psoriasis to a limited extent. (There are a few forum threads with new posts made in the last couple of weeks that compare Methotrexate and Ciclosporin, so you might find those useful.) Then a course of UVB phototherapy cleared my psoriasis once, but my second course didn't work. Got an appointment at end of January to start biologics, which I hear have a much higher success rate.
Posted Sat 21 Oct 2017 18.09 by sugarfree
Hi Cecila
Very interested in your post Re your point that I'm lucky to be in the UK because in the USA 'Our doctors do nothing for us but advise us to take a pill!' I fear on the whole that's what happens in the UK too. Dr Sarah Myhill is very unusual in being a properly qualified doctor but also who uses her common sense and powers of observation. Could the sugar and other chemicals interfere with our gut bacteria which enable us to digest things easily? I think that could be the key.
What is biologics Ivor? Please do tell me.
The other thing to bear in mind is that people with various bowel problems can be cured by a fecal/poo infusion - vile sounding I know but it worked so well on desperate people doing DIY infusions that now the NHS is doing it or so I've heard.
Please also remember Barry Marshall who found a cure for stomach ulcers which involved taking an antibiotic for a week. He had such a hard time he went to Australia and stayed there and waited 'for the dinosaurs to die out'. Now antibiotics are given to those with bad stomach ulcers and they cure most people.
Posted Sun 22 Oct 2017 14.36 by Idy
Phototherapy, methotrexate, ciclosporin and stelara afficionado
Hi sugarfree. Biologics are the latest drugs for treating psoriasis and some other conditions, synthesised using animal and human proteins which result in a range of benefits over other drugs. They are incredibly expensive, so in the UK they are only prescribed if other treatments aren't suitable or haven't worked. See https://www.psoriasis-association.org.uk/psoriasis-and-treatments/treatments/from-a-dermatologist.
Posted Tue 24 Oct 2017 09.36 by vijaykum
HiMissy
Sorry to hear about your problem. I had a bad bout of Plaque psoriasis with Psor Arthiritis. I used an herbal cream called PSORfix sent to me from India for my Silvery scales and cracked toes. I got instant relief after about 7-8 applications twice a day. Please try this cream and feel the difference.
It's all herbal hence no side effects at all. Good luck.
Posted Mon 26 Mar 2018 05.51 by Ronnyhawks
I had guttate bad last year. 100% of my body. Got prescribed cyclosporine and within a week it was almost 100% gone. By the end of the 2nd week it was 100% gone.
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Posted Mon 26 Mar 2018 18.09 by Sarah
Hi mrsbluesky,I’m so sorry to hear what you are going through.I was just the same,my whole body covered and my legs used to weep and bleed at times.
I was referred to the hospital and used so many lotions,creams and bath liquids.In the end I was so fed up with wasting money on prescriptions that I looked into more natural products.
I’ve used Aveeno which is good and now I’ve been using Childs Farm Baby Moisturiser which is brilliant.My skin isn’t inflamed,the patches have faded and my skin smooth! My skin hasn’t been like that for years!
I know everyone is different but please try it.
I also use Dead Sea Salts in my bath,changed my washing powder to Fairy pods and Fairy softener.
I hope any of those ideas help you.
Please let me know.
Good luck!
Posted Wed 4 Apr 2018 21.38 by kpasspar
Hi guys I´m new to posting on forums and my english is not to good, but since I´ve been having great results I felt the need to spread the word.
Recently searching for a natural approach, since my large list of dermatologists haven´t done much over the last 10 years, I found the website of this australian naturopath, where she gives a lot of good info about all skin conditions and has a solid background curing this kind of diseases. So, I bought her book on amazon, cheaper for me since I´m from Chile. And after a month now of following her "skin program" the results are very noticeable, a huugee difference. And there's so little info about her being such a good resource. You can even contact her directly and ask your questions, she is very nice and helpful.
Hope you find this useful. Her website is https://lindamarionparker.com/
best of luck!
Posted Thu 5 Apr 2018 11.35 by Joan
I am also new to this forum and have only joined to share my experience. I have had psoriasis for over 40 years and have tried anything and everything over this time with varying degrees of success. However, after a particularly prolonged bout of scalp psoriasis with nothing working I asked my doctor if she could recommend anything new and she prescribed Dovobet. Whilst I know, from my own experiences that what works for one person doesn't have any effect on someone else but I have found this lotion FANTASTIC. After one application my scalp felt much better and after the second day my husband said my scalp looked normal. I am now using this lotion every few days when my scalp starts to itch and this seems to be working fine for me.
I hope these comments are of help.
Posted Sat 7 Apr 2018 01.16 by Sueh72
Hello! I was diagnosed today with ppp.
Hello! Today was diagnosed with palmoplantar pustulosis ,the Dr wants to start me on a infusion called strleta. ( not sure if spelled that correct) but was wondering if anyone else has been on this ,if so did it help and if so we're side effects bad ?
Posted Sun 22 Apr 2018 14.50 by Sharon
Hi All
I am new to this site but like many of you have experienced the pains and issues with suffering with psoriasis for many years now and I have tried all the creams & lotions etc prescribed by GP’s such as Dovobet and many more none of which worked for me unfortunately.
I then read about someone using Enstilar. I visited my GP to request it and they had never heard of it however upon looking it up prescribed it for me. This is a can of foam sprayed directly onto affected areas. This is the best medication I have used and working wonders for me - some of my smaller scaly spots have completely gone, the larger ones the itch goes when I apply the foam and I can see the improvement in the reduction of dried skin and whilst not completely gone, the appearance has dramatically reduced. Both elbows were severely affected and now whilst I still have red marks and some noticeable dried skin patches they are 75% reduced in appearance
It does not appear UK GP’s are aware of this medication as I went for a 6 month check up as was put on a repeat prescription and had 2 doctors in the room with me, neither aware of Enstilar.
Whilst I appreciate this may not work for everyone thought I would send this post as in my case my GP’s would not have prescribed it for me as they were not aware and I would have still been struggling with the pain and stigma we experience
I really hope this info helps some of you like it did me x
Posted Mon 23 Apr 2018 16.34 by OhNo_NotAgain?
Enstilar is a foam form of Dovobet, it contains exactly the same active ingredients (one of which is betamethasone - a steroid) in exactly the same concentrations as in Dovobet..
Posted Tue 24 Apr 2018 08.35 by shy_girl1988
Hey, I have previously written on another post what I use but I will fill you in :)
I have suffered with psoriasis since I was 12 & I am now 30. Unlike yourself I have never really had a break from it, always there lurking in the corner somewhere. I just now have the ability to control it.
I have a repeat prescription for Clarelux scalp mousse which is fab, clears me up in no time. You can put it on at night or even the morning as it doesn't leave you greasy. I now use It on the run up to holidays or getting my hair died etc and sparingly in between.
I use exorex for the rest of my body. I put it on my arms, legs & stomach at night and wrap myself up rather tightly in cling film. Yup I might sound crazy but it works. It just seeps right into the skin this way, yes I do wake up now and then sweating like mad but its worth it. I even do it to work sometimes too. No one knows as I cover it up. I would say to try it with any moisturiser also, just get wrapped up and it will soak right into your skin. It is certainly not glamorous but the cling film also protects bed linen etc too which is a bonus.
Hope this helps anyone struggling.
Posted Tue 24 Apr 2018 10.46 by OhNo_NotAgain?
Just a word of possible advice.
If anyone is considering wrapping their body or a part of their body in cling-film, then according to all that I have read, it is NOT advisable to do this if you are using a treatment containing any steroid.
I read that use of clingfilm can greatly increase the absorption of the steroid into the body, and it is not recommended.
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Posted Tue 21 Aug 2018 08.02 by KatieBusniewski
In my opinion you should try foderma cream, This is really amazing. I've been struggling with eczema on my arms and chest for a while now, and nothing has worked until now. I've already noticed a huge difference and I can tell it's already starting to clear up!!!
Posted Thu 6 Sep 2018 19.51 by Saara1979
I'm also covered from head to toe the only thing I have found that works and I've tried everything I think lol is child's farm sensitive baby moisturiser
Posted Thu 6 Sep 2018 21.11 by Deeker57 (edited Fri 7 Sep 2018 04.01 by Deeker57)
Saara....read my post from Sept 2017. My psoriasis was worse after trying a sunbed, UV rays also had the same effect. I still get the odd breakout but the Exorex still brings it under control. Good luck.
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