Hi,
I have PA.
I suffer terribly with diarrhoea, have done for years and after countless Colonoscopies, Endoscopies, Capsule Endoscopies, blood tests, examinations there is still no definite answer as to why I have it to the extreme I do. They have rules our Crohns and Colitis. After one endoscopy they said my bowel was covered in psoriasis lesions but another then said I had ulcers in my bowels.
My life is not my life anymore, I've stopped socialising at work and with family, no longer go for days out as it means planning my journeys by the toilets I can stop at and bringing an adult version of a nappy bag with me for when I have mishaps.
Its come to the point that I can no longer cope and if I do want to go out I don't eat until I am home again, as you can imagine family meals out are a treat…..not!
Normal over the counter medicines do not help, the prescription medications Ive tried so far do not work and there are days where I am taking up to 12 modicums just to stop me from going to the toilet.
I was wondering if there is anyone that has a similar situation to myself, if so, could you share what diagnosis has your specialist/GP given you, medication you are on and if you have thought about having a colonostomy bag - this is something that I have been thinking more and more about.
Thank you for reading.
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