Palmoplantar pustulosis-any tips for daily life?
Posted Wed 20 Jun 2018 21.10 by Amandae
Hi. I agree this is an awful condition to have. I have had psoriasis on my hands now for a year. I was referred to a specialist in august last year for uvb treatment but the waiting list was so long that during the wait my psoriasis got so bad that I couldn't stretch my hands out. I eventually ended up with cellulitis. After a couple of courses of antibiotics this was cured but my hands were still bad. I got an earlier appointment at the specialists who recommended accetretin. I started taking this in January. It helped a little. Shortly after I started the uvb treatment which was working OK. I could stretch my hands out for the first time in months. When I got to treatment times of 4 minutes though my hands couldn't take it. The accetretin was blamed for this as it is light sensitive. My hands are now worse than ever. I am probably going to take mexodrate now. Appointment next week. Fingers crossed!
Posted Wed 20 Jun 2018 22.09 by SheilaM
Hope something works for you at moment my hands are peeling beautifully gone back onto do obey as fucibide seemed to make worse see what go says may start coal tar again as that worked for me years ago . Cotton glove certainly seems to help protect!!
Posted Thu 21 Jun 2018 01.57 by Connie
I found a wonderful cream that helps the layers of skin peal. It’s non perscription and you can find it anywhere online. Amazon, Walmart, lots of places. Dermarest Psoriasis Medicated Moisturer. It contains 2% Salicylic acid and Zinc. It calms the insane itching, reduces the redness (nice surprise) and moisturizes. You can apply it 4X a day. On my feet after 2 days the thick skin began to peal off. My hands overnight looked so much better. Cuts were healing. When you first apply it it stings hard for a few minutes then the relief starts. The sting is only initially and stings mostly on my feet. Apply only a thin coat. It spreads easily. I also applied it to the spots and scales on my legs. By morning they were less red and healing. Best of all the insane itching was soothed. For $10 it was a great find!! Hope you can find it online. I feel hopeful at last. :D
Posted Fri 22 Jun 2018 00.17 by Connie
I found it on eBay.co.uk with free shipping
https://m.ebay.co.uk/itm/DERMAREST-Psoriasis-Medicated-Moisturizer-4-oz/332370126000?_trkparms=aid%3D333202%26algo%3DCOMP.CATCARDS%26ao%3D1%26asc%3D52516%26meid%3D7b50bf22309e49eeaea3df132734ff26%26pid%3D100889%26rk%3D1%26rkt%3D1%26sd%3D322882970881%26itm%3D332370126000&_trksid=p2056116.c100889.m5204
6.17 pounds. 118ml. So about the same price in USA $10.
Posted Fri 22 Jun 2018 17.50 by Joe woods
All I have psoriasis on my hands and feet I have seen a dermatologist for three years now and tried everything from Methatraxate pills to injections creams and more pills nothing they have given me worked. I am in constant pain and feels like I am walking on broken glass most days when the cuts dry up I am in pain with a dull ache almost like someone crushing my feet. My mental health is suffering and I feel constantly depressed with the pain. Anyone any hints or advice to help I am in agony
Posted Wed 27 Jun 2018 22.21 by Sue P
Hi Joe, sorry it’s taken so long to respond to your post but I had problems with my password.
I can totally appreciate the pain you are going through & the situation you are now in.
I myself have been through the same, with no answers, I have lost my job of nearly 40 years & was rock bottom.
My turning point was when I said no more & took control of my treatments. I refused further meds. stopped the steroids & everything else they tried to get me to take. None of it worked !!! My Dermatologist who was great said that ‘ hands & feet are the hardest to treat & sometimes don’t respond to the treatments.
I accepted the condition & was determined to look at alternative options.
I looked at diet, read loads of books & tried to become healthier all round. I make & drink goats milk Kefir daily & have implemented dietary changes. There have been ups & downs, my feet are better than they were but they still crack & bleed daily & can be very painful. My hands are a lot better at present. Each night & sometimes at lunchtime I soak my feet for 30 mins in foot spa, then cover in Aveeno moisturiser which I get on prescription & then wrap in clingfilm & leave on all night. They’re great in the morning but start deteriorating by the afternoon. This enables me to do as much as I can earlier on & be thankful of the improvement. My spirits have lifted so much.
I don’t know you’re situation, age etc but please don’t give up.
I hope this has helped a bit, I wish I could do more.
Take care
Posted Fri 6 Jul 2018 15.30 by Joe woods
Sue
Many thanks for your response, I am 43 keep very fit and healthy I am a member of our local mountain rescue team and do lots of cycling so really enjoy being fit.
I have had an appointment with my dermatologist who says that she now wants to test me again to see if I am elegiac to anything even though she has done this before and results are negative. I have pretty much gave up with them now anyway as they don’t help. I read about changing my diet but was told that it was nothing to do with my diet from my dermatologist.
I am depressed fed up and so down and se to be searching and getting nowhere.
Any way thanks for your advice
Posted Sat 7 Jul 2018 10.07 by Amandae
Hi all. I went to my specialist appointment last week expecting to be put on methatraxate but one of my blood test hadn't come back. My doctor then called another doctor in who specialised in hand psoriasis. She advised that ciclosporin was the best option as it works quickly. My hands were so bad that they took photos to use for medical studies. I have now been on the ciclosporin for a weekand my psoriasis has cleared up. They are still dry and look a bit plastic but I can do normal things and my hands look nearly normal. I soak my hands in oilatum when they get too dry and follow with cetraban. The only problem is this tablet can't be taken long term so I hope it stays away when I stop taking it. So far only side effect is really swollen ankles but that could be the heat! Hope everyone can get a bit of respite from this awful condition but I would recommend the ciclosporin.
Posted Sat 7 Jul 2018 19.16 by Connie
Hello all,
I am grateful for your postings. I come here and read so I don’t feel so alone and freakish with this condition. My skin has been perfectly clear and soft all my life. I never experienced teenage acne. So this horrific condition was the last thing I expected to deal with.
I’ve been keeping up with the Aquaphor cream, and it has prevented cracking. I generously apply it multi times a day, wear socks and gloves if I cook or wash.. or when watching TV or using the keyboard. I think massaging my feet and hands has helped them feel better.
I decided to try a new approach since I’m allergic to most medications. Acupuncture. I’m a real sceptic but had nothing to lose. I arrived Extremely nervous, got dry mouth, then overheated and needed her to lower the AC and a fan. The needles weren’t such a big deal. 30 min later I woke to hear a soft alarm outside the exam room. Yes! Woke! I fell asleep! I’ve had 2 treatments so far. I paid in advance for 10. Reduced rate and I wanted a reason to commit to this. Today I woke to no pain in feet and hands, no new cuts, light pink instead of red fiery skin. Applied my Aquaphor and gloves and have renewed hope. Let’s see where this goes.
Added Tumeric to my diet. Also ginger and pineapple for their anti inflammatory properties. Drinking my 2 large cups of coffee still but added green tea decaf with pomegranate the rest of the day. Green tea is also anti inflammatory. Please share what things you are trying.
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Posted Thu 12 Jul 2018 01.37 by Connie
I am hoping this post will be the first day to freedom from PPP. A physician friend has been researching on my behalf and learned something that could explain how and why I got this. First, I never fit what is described as the profile for PPP. Researchers say that 95% of persons who get this are heavy smokers and heavy drinkers. I do neither and never have. So I just figured I’m in the 5%. Another profile is obese. I need to lose a few pounds but I’m not obese. So again, I said, either way, I have this horrid painful affection. Now the news. The on Rx medication I take for 3 years is a beta blocker for heart A-fib and high blood pressure. My pressure is controlled with a very small dose of Atenolol, 25mg am and pm.
So yesterday my physician friend discovered there is a link between beta blockers and PPP. The allergic reaction shows between 4 to 48 months. It takes a while for your body to react to being allergic or toxic to the beta blocker and what the beta blocker does. My cardiologist put me on a channel blocker, Ditiazem, generic, been around a long long time and proved safe.
Let’s see if this is the explanation for how I got this. Now that I know I googled Atenolol and beta blocker with the words Palmar Plantar Psoriasis and find all kinds of related reading. Also, on the drug side effects listed as a minor side effect is rashes and effects similar to
PPP. In addition to beta blockers, NSAIDs, non perscription pain meds Aspirin, Ibuprofen and Naproxen ( Advil and Alere) will bring this on. Here is from the Journal of Clinical Dermatology explaining drug induced PPP.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2921739/
If this truly is an allergic reaction to the beta blocker then that means once it goes away then it will not return once. I am full of hope.
Do your research of any medications you take.
Connie
Posted Thu 12 Jul 2018 16.46 by SheilaM
Shall also check this out as I have been on naproxen for many years, will talk to my gp never considered any of this as I have always had psoriasis and thought it was all linked!!
Sheila sm
Posted Fri 13 Jul 2018 03.36 by Connie
SheliaM
Found this for you on WebMD :
https://www.webmd.com/skin-problems-and-treatments/psoriasis/what-causes-pustular-psoriasis
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Posted Sat 28 Jul 2018 17.44 by Connie
Update on previous posting 2 weeks ago:
Since my doctor took me off the beta blocker Atenolol and switched me to a calcium channel blocker for A-fib, my skin has improved incredibly! No more cracks, no more pain, thickening skin growth has significantly slowed. The inflammation in my feet has reduced so much that my sneakers and slippers are way too big, they flop, unwearable! My hands feel normal but still have areas bright pink. At this rate of improvement I can predict that in 2 more weeks this horrible and painful condition will be gone! Bold statement for sure. I’m going to try to post some pictures. Truly horrific and embarrassing pictures of what I’ve been dealing with on my feet and hands. Emotional and physically it’s been difficult. I’m so grateful not to feel alone in this. Your posts have inspired me to keep searching for an cause. Thank you for your posts!
Posted Sat 28 Jul 2018 19.46 by Sue P
Thanks Connie,
I’m in the bath at the moment feeling sorry for myself. This bloody condition is always there & impacts on my daily schedule. Never mind it has been worse, feet now easing, candles lit & listening to Ed Sheeran.
Thanks for your input & I will look at your link, great to hear your positivity.
I’ll keep smiling x
Posted Sun 29 Jul 2018 20.14 by Cattango
Connie,
I just read your past two messages and need to know more. I’ve been on Atenelol since I was 21... now 34. About a year and a half ago, I developed what looks like little sores on the tip of my tongue. I had a biopsy done, and all that came back were inflammation markers. With the ongoing sores, my right hand would produce small blisters, forming in a cluster, eventually breaking and peeling my skin away. I now have this a raw patch that extends from the left side to the middle of my right hand. I’m currently on 25 mg of atenolol and 40 mg of Diovan. Please let me know dropping atenolol has helped you further. I want to believe this could be the answer I’m possibly looking for.
Thank you,
Rob
Posted Fri 10 Aug 2018 13.58 by Jo
Hi everyone,
I have had PPP for about two years now and it was triggered by taking Humira for Crohn’s disease. I came off the drug 9 months after I started it as the PPP on my hands and feet was so bad. After about a further 5 months the PPP calmed but I was still applying diprosalic 0.05% everyday but at least could walk and wear normal footwear but I still had plasters on my hands covering the cuts. I was then diagnosed with Ankylosing Spondylitis and put on infliximab for this which has given me psoriasis all over my body now as well as the PPP which is disabling me. I have been having phototherapy for 3 months which has helped the psoriasis on upper body but nowhere else and have been taken off infliximab. I also have just had a months course of coal tar with steroid which has made my feet so sore and painful I can’t stand for longer than 10 mins. Has anyone else experienced this?
It has also now spread to 6 nails on my fingers all my nails on my toes. I soak my feet twice a day and moisturise with diprobase cream and wrap them in cling film at night after applying diprobase ointment and also still use diprosalic 0.05% when the blisters appear.
However after all this my feet and hands are just not improving. The itching, redness and scaling just will not improve and I have no idea where to go from here as my life is consumed by this condition. Has anyone out there had a biologic called Secukinumab? And did it help
Any advice would be greatly received as I don’t know where to go from here to treat what I have.
Jo
Posted Fri 10 Aug 2018 14.55 by McJu
Jo,
Please scroll up & read my post of 27 May 18.
I too have PPP in one fingernail & toenails,
Do not apply steroid daily as it thins the skin and when you are in cycle of bluster peel repeat...well like you say can't stand or walk for long.
Buy Skechers memory foam shoes or trainers they do help a lot!
I now don't use moisturizer emollients or steroids & my condition is so much more manageable, can go on long hikes, stand as long as I want. Doing this has by and large stopped the blistering, I just go straight to peel stage, but feel I have my life back!
I feel your pain sweetie & no how down this shitty condition can make you, but try stopping "treatment" lets face how much worse can it get? So glad I did!
Hope it improves soon.
McJu
Xxx
Posted Fri 10 Aug 2018 14.58 by McJu
P.S.
Do you know you are only allowed phototherapy 5 times in your lifetime?
Posted Fri 10 Aug 2018 15.18 by Jo
Hi McJu,
Thank you for your advice about stopping everything, funny as that is exactly what my fiancé said earlier today.
Can I ask you what normal moisturiser you use if you don’t use emollients? I have been using Aveeno on my body but doesn’t seem to work so well on the feet.
And no I didn’t know about the amount of phototherapy you could have. Interesting!
I think it’s a vicious circle as I am stressing about the condition which is probably making it worse.
It’s nice to know that I am not alone and looking on this forum just makes it that little bit easier and everyone understands.
Thank you
Jo
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