How long have you had pso?

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Posted Tue 26 Jun 2012 16.09 by Paddyellis
For many years

Around 10 years!! Feels like a LIFE TIME!! :( Elbows/body/behind ears

Posted Sun 1 Jul 2012 16.33 by dawnmaxine (edited Wed 12 Mar 2014 06.51 by hermes-kelly)
i hate it, always covered up in the summer

i,ve had pso for 28years now,it really flared up after my second son at the age of 23.since then it seem to get worse as every year passes,its worse on my stomach,it starts as alittle bit then i get more patches and in the end it all connects up to make pretty big patches.i,ve used dovonex cream then the ointment but both have now been discontinued.the docter has now given me curatoderm ointment which has,nt helped at all,so now it,s back to being red and itchy again.can anybody recommend another cream?

Posted Sun 1 Jul 2012 18.30 by Steve

I can't remember how it first started, but it was about 15 years ago when I was in my early 20's. I've only ever used 2 treatments; Calcipotriene ointment, which is messy but works for me on small patches, and phototherapy when I had a particularly large patch which covered my chest. I can't speak highly enough of phototherapy. I had 18 treatments over 6 weeks, and they only last a few minutes each. The patch being treated was the worst I've ever had but it completely cleared up following this treatment, and you get a free tan! Several people asked where I'd been on holiday!

Posted Wed 4 Jul 2012 15.13 by Couture (edited Thu 21 Mar 2013 11.24 by JD)

Hi, I am 42 and have had psoriasis since my parents split up when I was 7 yrs old. depressingly makes that 35 years. i cant say any medication has really helped. A childhood of tar baths and my mother gressing my scalp and hair was disastrous for my self confidence. Leaving home at 21 gave me the freedom to cook and research for myself food groups that I found to make my psoriasis agressive. Lesions that would not move for 10 years dissappeared when I stopped eating dairy and red meat as well as many other foods. happy to tell people my diet that has worked for me. At 31 I developed psoriatic arthritus in my hands, chronically, and my feet. This was stress induced by divorced but i have managed to keep under control without medication. Good luck everyone finding what works for you.

Posted Sun 22 Jul 2012 12.10 by maryday9 (edited Wed 2 Mar 2016 08.47 by Kito619)
i have psoritic arthritas ,i have psoriasis in my hands , my scalp stomach and genital area's . i am driven mad with the itching and embarre

I have had p since a child ,i had a few years with littel or no patches . now i even have it on my lady area's not nice in fact i am loosing sleep with the constant itching .i am depressed with the situation . I am also embaressed by it . I am 56 i wish i had a magic wand !!

Posted Tue 24 Jul 2012 14.27 by dizzy
Have had psoriasis since I was 6years old, never completely gone

I have had p since I was about 6/7 Im now nearly 25 so just pushing 20 years

Posted Mon 6 Aug 2012 10.53 by DianaP54
I have had psoriasis for 5 years, and am struggling to control it and find it very hard to manage. It is very sore on my elbows and bottom a

I have had Psoriasis for five years, since giving up smoking it has gradually taken over my body,recently i have used Dovobet,my God it just made it ten times worse. It is so sore and bleeds alot, i know i scratch it so in a way its my own fault. Thanks for information about Exorex cream, will try it gott1. Nothing worse having to wear long sleeves on a hot day, people look at you gone out and ask why you havnt taken it off. I thank God that i am fifty seven and not seventeen i feel for anyone with this thing and being young must make it harder to deal with, having said that you must stay positive you cant let it beat you. Gives me comfort to know i am not on my own, would be great if we all went to bed tonight and woke up without it.

Posted Wed 8 Aug 2012 00.40 by kirsty
10 years and now having yet another flare up

Hi all , I've had mine for ten years now since i was 15, it came up with chicken pox and went all over my body and scalp. It was horrible as i lived in a small town in cornwall so got looked at a lot. I try and deal with it but you always get those hard days when you have a flare up. Im now 25 and starting my 3rd new injection and just come out of hospital for the 6th time. Ive noticed when i was younger i was in hospital 4 times with plaque and now in the last 6 years i have only been in twice but the pain is a lot worse when it flares, it affects my legs the most when it flares that i can hardly walk. I got told i might grow out of iy which im still hoping for but it worries me that i won't and the pain might get worse when it flares. Kirsty

Posted Wed 8 Aug 2012 20.07 by ncarrier87
Psoriasis has been a constant part of my life over the past 12-13 years. Its had its ups and at times had its downs but overall I don't thin

Had Psoriasis for 12-13 years, I've had ups and downs and at times it has been difficult to live with. The only way I've been able to look at it is "yes I have it, yes I'm unfortunate" but I could have other issues. I could be a lot worse off. It will continue and I'm sure its not going away just yet but who knows. Anything could happen.. :) Keep your chins up all..

Posted Tue 21 Aug 2012 17.08 by sarahj1125
For as long as I can remember. Utterly fed up.

10 years, Since I was 15. I don't have 'flare ups', it's always flared up!! SInce having my second child it has taken over my whole body. Some days I don't care, other days I want to die.

Posted Thu 23 Aug 2012 05.01 by Nevermind_me
1980s as a child first flare up during parents divorce 1990s second flare up at university early 2000s flare up due to family illness 2012 4

My psoriasis kicked off in the 80s when my parents got divorced. Body and scalp, I remember copious amounts of T-Gel and my thick, red, curly hair being regularly 'de-flaked' by my mother. I know I had flare ups through my teens but none specifically stick out in my memory. Horrible though, and I have always on my scalp, although normally just patches behind my ears and around the edge of my hairline. In my early twenties when I broke up with my first boyfriend I had another flare up, (late 90s), then again around 2003 when my Grandmother suffered a serious fall. That was definitely stress related as it happened overnight. Cleared with a lot of sunlight on an archaeological dig at the end of the summer. 2012 is my 4th serious flare up, have had it on my scalp and the odd patch for the past 8 years or so, but work stress has brought me out in a full body flare with spots on my back, torso, legs and arms and my scalp is awful, far far worse than the normal background level. Ah well. No choice but to just keep on. I don't like steroids and keep away from them, I'll try and eat a bit more healthily, and get lots of healthy sunlight. I have only washed my hair with water and a comb for the past 5 years but I will probably have a stint on T-Gel to get my scalp manageable again. I had forgotten the itching! Be bold and brave folks, we're still who we are, we're just spotty. I wish Deep Space 9 was still on, a very sweet and lovely ex boyfriend always said I reminded him of Jadzia Dax ;o)

Posted Mon 27 Aug 2012 09.51 by goodyuk
I have had psoriasis since I was 8. I have quite severe plaque psoriasis and last year have developed psioritic arthritis - a couple of mont

I started with psoriasis when I was 8 - I am now 38 and I have never had it so bad. What started as a few plaques on my head and one patch on my stomach has developed to a lot of plaques in my head and large coverage on my body, inparticular on my back 70% coverage, and backside - as well as legs, arm, airline, in the ears, under my nails and most recently have developed psoritic arthritis! Over the past couple of months it looks like I am also getting pustular psoriasis on my hand! So I now have the full set almost!!

Posted Thu 30 Aug 2012 15.46 by lucymargaret1993
I've had psoriasis since I was 6 months old, but wasn't diagnosed till I was 10 years old because my GP assumed it was Ezscma. Now I am 19 a

I've had mine for nearly 20 years... I first got it at 6 months and it has been stuck with me till now and I'm 20 in April

Posted Wed 12 Sep 2012 23.51 by LM1991

I've had it about 2 1/2 years on my body and about 1/2 a year on my scalp which is much worse than what i get on my body. I've only just had it diagnosed though, annoyed that it has taken so many doctors visits to find out! Can't tell you how many time i was told it was 'just dry skin' and to moisturise. All the moisturiser in the world didn't help!

Posted Wed 17 Oct 2012 10.35 by brian
20yrs

Have had mine for 20 odd yrs, Thing that gets my back up, is the total lack of understanding, From health care workers, but most of all the general public. Was asked to leave the swimming baths a few years ago, cos some one complained. shot me down, never been since. which was my only joy, and exercise.

Posted Wed 17 Oct 2012 21.33 by edoswick

I have had psoriasis for 5 years but latest outbreak like nothing i've had before - spreading from my elbows and knees, itching, behind ears etc - i am 33 and a teacher and finding it all a bit tough at mo!

Posted Tue 30 Oct 2012 02.52 by mmontero
yes

i have scalp psoriasis for over a year now. It,s making me feel so miserable.....

Posted Sat 10 Nov 2012 21.15 by pfhilton
Have sufferred with Plaque Psoraisis since my late teens

Hi, I've had mine since I was a teenager. Am lucky as it mainly affects my torso and legs so it easy to cover. I do have a patch above one of my elbows which can be seen but it's not obvious. I used Betnovate and Dovonex for years and got on well with them Doctor recently changed my prescription to Dovobet. Seems to work well and has the advantage of only needing to be applied once a day. Anyone else using it, how are you getting on with it?

Posted Wed 5 Dec 2012 09.39 by cjw
im 32 and have had it since i was 2 ,i have had times when i wont go out the door coz its on my face and i get embrassed!

hi,im 32 and have had it since i was 2 ,so 30 yrs now,i get it on my scalp,arms ,legs,ears and face,have tryed many treatments none of which help but do find mine is worse in the winter xx

Posted Thu 6 Dec 2012 15.29 by petlamb

In terms of my scalp psoriasis, constantly since at least 10 so that's 14+ years. My shins have been on and off in that time, over about the last 10 years I have also been affected to a varying (increasing) extent by a patch of inverse psoriasis. More recently I've had patches come up on abdo, arms and back too. Bah.
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