How long have you had pso?

Posted Mon 10 Dec 2012 19.24 by GregB
I have suffered with Psoriasis permanently for over 30 years

It feels like a lifetime, although thinking about it I suppose it virtually is. I've had the dreaded P for 26 years since I was 15. I feel short-changed by the term 'Flare up' mine has been permanent it's never improved or worsened although is pretty acute virtually everywhere - although fortunately none of the plaques are visible on areas not covered by long sleeved clothing and trousers. So during all these years only a handful of people actually know I have the condition - although like most people I'm sure we all think everyone in the world has x-ray vision and can see beneath our clothing and instantly spot the hideous P. I've had an assortment of creams, lotions, ointments, preparations solutions and diets but none of these have cleared the problem completely. Only Dovobet Ointment seems to reduce the plaques slightly, although realistically it’s pointless taking it as the effect of the treatment is only slightly noticeable. Strangely though I was in hospital around 15 years ago I had a severe foot infection and had a few days in hospital to receive a course of IV antibiotics after a few days I noticed the Psoriasis was beginning to improve and for a 2 week period after this it noticeably improved to the point where it had vanished completely on my arms although within a month it was back again. Around 6 years ago I received PUVA treatment, I was extremely sceptical but it cleared COMPLETELY. I was completely amazed I assumed that if it did ever clear up I'd be left with some kind of visible markings or blemished but there was not a mark in sight, unfortunately within 4 months it gradually started to return and creams etc were powerless at preventing it worsening. So it seems like everyone else here after all these years I'm stuck with it.

Posted Sun 16 Dec 2012 19.44 by itworkedforme
yes

try going wheat and gluten free for just two weeks and see if your psoriasis clears,i did, and mine has now gone after 40 years!

Posted Thu 3 Jan 2013 16.59 by mike26
it has had a life changing impact on my life,and now so bad i cant do my job .

hi all just joined site. i have psoratic arthritis & plantar fasciitis (foot pain) started when i turned 50,the psoriasis ive got is very mild 3 places( knees ,lower back, and behind ears) the last couple of years ive been geting slower & harder to do my job(walking about like a man of 99) working with ladders didnt help,then had accident last year to shoulder phizzio said damaged my rotary cuff mustle. then came the arthritis im 60 now didnt know this could follow (but do now) ive got it in 6to7 places and very severe.im on methotrexate/ oral steroids/folic acid. (hope thay work)couldnt walk yesterday probabley have to get leg drained (fluidon knee) and steroid jab .(hope it works 4 me) ive also had sulfasalazine but had to stop taking them(low white blood cell count) on this site we can talk about PsA everyone knows about the horible condition. just gota keep fighting it & keep on top of it your roomy will help keep regular blood test while on meds. good whishes all mike26

Posted Wed 16 Jan 2013 15.55 by richie88

Had a bout of Guttate P covering most of my body 15 monts ago. Almost cleared with light treatment, went working away and didnt finish the full course. Came back 3 months later, dianosed as chronic plaque p. Will this ever go? I am having light treatment again, which seems to be clearing most of my body but keep getting outbreaks of smaal plaques on the inside of my arms. Infact they seem to be small plaques all over when I get an outbreak. Any advice please

Posted Thu 17 Jan 2013 20.31 by sammy
hands and foots

Hi mine starts when i was 13 years old. I have P for 23 years now.

Posted Sun 20 Jan 2013 02.32 by ElliotFR
All my life...

I have had psoriasis all my life and I am now 28. It started off as a child just being on my scalp but as I got older it spread all over my body.. I cannot remember what type of psoriasis I have but it is widely spread all over. I have only just realized that it majorly helps to moisturize the affected areas after a bath by stopping it drying out, Does anyone else have any good tips? I am currently having light therapy. I also feel very conscious of wearing shorts this coming summer as it has spread more since last year.

Posted Mon 21 Jan 2013 12.32 by Sarah09 (edited Mon 2 Jun 2014 12.29 by mavisann)
I have had psoriasis since I was 4 years old....currently 30 years!

I was diagnosed when I was 4 years old, 34 now so I've had psoriasis for 30 years. 30 long, painful, itchy, demoralising isolating years. Hospitalised & treated like an infectious leper by archaic paediatric medical "professionals" as a 7 year old, put on display by a different "expert" for her medical students as a developing 12 year old. Finally, at 21, treated by someone who understood the psychological causes as well as the physiological. Because I've had it since childhood, most people I grew up with never really commented on it & I was lucky enough that school wasn't too bad. It wasn't until I was 26 & training to be a nurse that I met with the ignorance & discrimination that I knew I was lucky to avoid until this time. My surprise was that it was from experienced medical personnel. They made me ashamed, not of my skin, but of the profession I was training to be a part of. I was isolated from certain placements & learning opportunities. But, thanks to my fantastic friends & family, I persevered & triumphed in the end! I took great satisfaction in knowing certain people had to eat their words when it came to me! Now, I'm happy in myself & my life & my psoriasis has never been as good as it is now!! Thanks for reading if u got this far, my journey has been a long 1!

Posted Wed 23 Jan 2013 16.49 by Joalpin
I Have had psoriasis since I was two years old (now 33) this has affected me in many ways and stopped me from doing lots of activities in wh

I have had it for 31 years, I get it everywhere and in winter it goes twice as bad. it's awful but you just have to get on with life as nothing seems to clear it up. It's the reaction of other people which annoying some people are so uncaring and act like you have some skin eating disease

Posted Sat 2 Feb 2013 00.39 by juddpig86
had psoriasis since i was 11, i'm now 26, after having my son 2 years ago it has become so widespread im waiting for light treatment for the

Im new to this site but already I can't believe how refreshing it is to be amongst people with psoriasis, I wake up most mornings thinking it's just me, but it's so nice to be able to sit, relax and 'speak' about something that seems so taboo with some people. I've had psoriasis since the age of 11, i'm now 26 and it's currently the worst i've ever had it, waiting on light treatment for the 2nd time. i feel so bad some days that even getting on public transport to go to work just makes me want to cry there are too many small minded people in this world.

Posted Tue 12 Feb 2013 14.17 by carinabalbo

Hi all, This post may seem a bit off-topic, but please do not report it as abuse. I am conducting at the moment, which might be of any help to you in the long term. First of all, let me introduce myself. My name is Carina Balbo and I am the Local Project Manager (in the UK) of the MAPI INSTITUTE, based in Lyons, France. At the moment, I need to conduct cognitive interviews to 5 patients based in the UK who suffer from NAIL or PLAQUE PSORIASIS, and by reading some of your posts I thought I found the right people. The aim of these interviews is initially to discuss the wording of self-administered questionnaires used to detect patients with this disease. They were designed in the USA and adapted to UK English. We now have to "pilot" them to make sure they can be understood by all patients. I assure you everything is SERIOUS, and confidentiality is 100% guaranteed. To those of you who are reading this post, and would like to collaborate in this project, please do not hesitate to contact me for more information and/or a reference letter: babell@ntlworld.com. Many thanks in advance. Carina

Posted Wed 20 Feb 2013 04.43 by Rosie85
I have had psoriasis since I was born

Hi there all I'm new to this site I've had p since I w as born and I'm now 28 I've had times when it has Complety go away and times when it's been so bad I've wanted to chop my hands off to stop me from scratching my arms legs hads belly off, I still don't really understand p and at the moment I've had a very bad allergie to a hair die and my p has really started to flare up I have no idea how to stop the itching or anything been to the doc but nothing is working please if anyone has any ideas I would be great full it's got to a point were I can't sleep and I have two beautiful boys to look after its taking it's toll........ Sorry to have cut in like this x

Posted Thu 21 Feb 2013 18.24 by Rosie85
I have had psoriasis since I was born

Hi there I've had p since I was born and I'm 28now it has come and gone for me but when it flares up it dose it with vengents it covers almost all my body it's a nightmare I ha v two beautiful boys and I am one of 6 sibling and the only one with it I get so excited when it clears up its so nice and that manly happend when I was carrying my children and been to a hot country or when the sun is out I find the sun really works but I can get so depressed over my p and not want to live the house I don't know anyone who has it so can't confined in anyone and I've change my doc so many times as they don't know much about p just recently I've found a doc that has told me there are new ways to treat p and there are new cream but what I really need is a new body grrrrrrrr

Posted Fri 22 Feb 2013 19.11 by Sammy27
Have had psoriasis since I was a baby

I've had psoriasis since I was a baby and I'm 25 now. I've got it full body. My face is much better but is lighter where the psoriasis was :(

Posted Sat 23 Mar 2013 19.57 by Dave
To cut a long story short, psoriasis ruined my life when i was just a teenager.

23 years! Got no real treatment for it at first, just given a crappy tub of coal tar cream, told it's incurable and i'd have it for the rest of my life. I was understandably devastated as i was just a teenager. The worst feeling i've ever experienced.

Posted Thu 28 Mar 2013 19.13 by 11thdoctordrew
I've had psoriasis for 15 years.

I've had Psoriasis for 15 years. Thankfully these days it's less severe. Been on various creams, but I've found Aloe Vera and Bio-Oil to be one of the few things to lessen it.

Posted Fri 29 Mar 2013 15.18 by Jrn1862
It's affected by confidence, affected relationships and generally been a royal pain in the backside since I was 18. That's 22 years and coun

I've had guttate psoriasis since I was 12, although only 'extensively' since I was 18. I'm 40 next week and pretty much every area of my body is still affected, including my face when i'm really run down. I've been using Dovobet for the last 10 years, once a day every day initially but only a couple of times a week for the last few years, to control it. It never goes completely but a bit of sun and relaxation helps for a short while. Overall I think I'm lucky compared to others with the condition. Bit worried about some of the other posts on the the threads on this website about how nasty Dovobet is though, although I've not noticed any skin thinning etc. My GP just keeps signing the repeat prescription - when I do see him he just says keep using it if it works!?! Anyone else have the same issue? I'm thinking about trying a change in diet for the hell of it. Any views on the non-dairy, loads of green veg, no red food or sugar route?

Posted Fri 29 Mar 2013 16.47 by Rach

I've had it since I was a child, It flares up now and again when I'm stressed out but not as bad as what it was when I was younger, I had to go to hospital when I was in school I was totally covered in it and was kept in hosp for a week, they gave me daily baths and would put wrap me up in bandages after using coal tar (I think it was coal tar) and then after that I was getting UV treatment, A couple of years later when I was having trouble in work it flared up again and had to get UV treatment. I just joined the site today and its great to read stories and be able to relate to people who are going through the same.

Posted Fri 5 Apr 2013 09.23 by leebailey008
yes

I've tried almost everything that claims to cure/treat Psoriasis over the last 24 years. I have stopped beating myself up and gradually accepted that this was here to stay and it's about managing rather than curing. I do not believe in quick fixes and potions that lead us into temptation of parting (with yet another £60 or so) only to find Psoriasis Dave have proved yet again, it's a fake and praying on the fear of " this might be the one". £1000's maybe £10,000's and that's just my shopping basket over the years - Skin Cap, Blue Cap, steroids, ointments , prayers (although I do admit the last one is a long shot) ! Above is a very shortened and unemotional version of the last twenty odd years , which brings me to presebt day and CHD-FA (Carbohydrate Derived Fulvic Acid) Layman's Introduction; The definition of what CHD-FA is should help people who do not know the product. CHD-FA is different in important ways from environmental sources of Fulvic Acid (see also the home page) and so definitions are given for both CHD-FA and Fulvic and Fulvic Acid from other sources. CHD-FA is used primarily in human health products. Therefore it has been necessary to provide a short explanation of the role of Bacteria and Viruses in human health and disease. Much of human aging and disease is due to high levels of free-radicals in the body. These are produced by the body when it expends energy and can be harmful if not removed. The way in which free radicals are removed is by anti-oxidants of which CHD-FA is a powerful example. CHD-Fa is also anti-inflammatory and therefore a description of inflammation is included to assist in understanding the anti-inflammatory properties of CHD-FA. Carbohydrate Derived Fulvic Acid (CHD-FA) Carbohydrate Derived Fulvic Acid is a name that possibly sounds difficult to understand and maybe even dangerous. Carbohydrates are substances like bread, potatoes, and sugar (but CHD-FA contains no sugar so diabetics do not need to be concerned). Secondly, "acid" refers to safe-to-use types of acid such as vinegar or lemon juice and not dangerous kinds of acid. So what the name means is Fulvic Acid that is derived from a carbohydrate source. Fulvic Fulvic ~word origin: [ful < Old English < full] full of, characterized by, having the qualities of, having the ability or tendency to, apt to [vic < Old French < vicaire < change] alteration, to bend, to change. Also [fulvus ] deep yellow, reddish yellow, golden, or tawny colour. ~definition: Fulvic is an extremely complex bioactive yellow organic substance, the ultimate aerobic decomposition product of all living matter, with unusual and exceptional qualities and abilities to change, alter, molecularly combine with, or act upon virtually all other organic and inorganic matter. Having the characteristics of fusion at the molecular level. Fulvic Acid Fulvic Acid~description: An extremely bioactive low molecular weight yellow substance that is the end product of decomposition of all once living matter, which is readily water soluble and soluble in both acid and base, and at all pH levels. Consists of extremely complex molecules made up of microbial exudates and highly protective and seemingly immortal plant phytochemicals which are combined and recombined during the humification (decomposition) process, requiring digestion by at least three different species and successive generations of appropriate species of microbes, ultimately becoming the most complex natural substance on Earth. Also contains latent solar energy hidden deep within its complex molecular structure, which originated from photosynthesis of the plants of origin, which is partly responsible for the most unusual properties and bioactive nature of fulvic acids. More correctly called Fulvic Acids (plural), because Fulvic Acid is not a single consistent substance, but is a highly varied and complex substance reflecting the nature of the plant and animal species of origin, and also the nature of the specific species of microbes responsible for its creation during the humification process. Some key points to remember are; Fulvic Acid falls under the umbrella of naturally occuring “Humic Substances” – those organic compounds that arise from the decomposition of organic material in the environment. Fulvic Acid is that unique fraction of Humic Substances that is soluable in water at all pH values. Fulvic Acid is characterised by having low pH, low molecular weight & high Cation Exchange Capacity. Fulvic Acid is a colloidal material that can withstand both high & low temperatures. Fulvic Acid has, amongst others, anti-bacterial, anti-fungal, anti-viral and antioxidant activity. CHD-FA is derived from a carbohydrate source, and is totally clear of heavy metals, pesticides and other contaminants usually found in other forms of fulvic acid. Antioxidant An Antioxidant is a molecule capable of slowing or preventing the oxidation of other molecules. Oxidation is a chemical reaction that transfers electrons from a substance to an oxidizing agent. Oxidation reactions can produce free radicals, which start chain reactions that damage cells. Antioxidants terminate these chain reactions by removing free radical intermediates, and inhibit other oxidation reactions by being oxidized themselves. As a result, antioxidants are often reducing agents such as thiols or polyphenols. Although oxidation reactions are crucial for life, they can also be damaging; hence, plants and animals maintain complex systems of multiple types of antioxidants, such as glutathione, vitamin C, and vitamin E as well as enzymes such as catalase, superoxide dismutase and various peroxidases. Low levels of antioxidants, or inhibition of the antioxidant enzymes, causes oxidative stress and may damage or kill cells. I've been taking CHD-FA for the last 3 days both in a topical form (gel) and ingesting (liquid 1 teaspoon a day) both taste disgusting !However, Since the scales have subsided and the redness decreased to almost nothing (remember only 3 days so far) and to boot it's all organic ! Guy's if you would like to know more just ask I'm not here to say I've found a cure and the holy grail - it doesn't exist but I've found something that definitively works for me and maybe for you! Just keeping the information flowing.............

Posted Fri 5 Apr 2013 23.42 by Circlecaster
Had it since I was 3 years old. Have it constantly on my elbows and knees but do get terrible flare-ups now and again on my face, body and s

I've had Psoriasis since I was 3 (I'm 31 now). I've tried every cream going, but funnily enough I find the more I put cream on (I use E45) the worse it breaks out. I leave mine alone and it eases off by itself. I do have to moisturise my face every day before applying make up as I have it on my face and along my hairline. My dad has it terribly though.

Posted Tue 9 Apr 2013 11.56 by Peaches81
I've been affected by the condition since I was 8years old it itchy and somewhat pain at times. Also there are the aesthetic issues as I use

I've had psoriasis for 23 years and its only in the past year I've managed to get it completely under control. I use La Roche Posay's Lipikar Baume and their Cicaplast treatment. As well as this I go for seaweed bath treatments once a month. I have the condition in patches over my body

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