Posted Wed 19 Feb 2014 20.52 by clareeade I have psoriasis and I am about to start UVB light therapy.
I have had psoriasis on my scalp for as long as I can remember. On my body it started on my elbows 16 years ago and pregnancy was my stresser. It slowly spread to most common areas but became very bad recently when I quit smoking. I am now constantly uncomfortable and 50% covered. After many infections and complications I was finally sent to a dermatologist who has been amazing. I was given coconut oil for my scalp and within a week I had no plaque at all!! I was given Dovabet for my body and it helped so much but I could only use it for a week. then I was given coal Tar. I did 2 days with that and binned it. I am now starting UVB therapy and cant wait. Fingers crossed this will help me.
P.S I have just joined this group but reading all your stories makes me feel so much less alone x
Posted Sun 2 Mar 2014 20.50 by viffanytu I have psoriasis all over my body since I was about 5. I'm 16 now so it's been a while.
I've had it since I was about 5 and now I'm 16.
Posted Tue 11 Mar 2014 19.14 by Anita I have had it for many years and sometimes it has made me very depressed, I have had so many different medications the latest being methotre
I have had psoriasis over 30 years, it started when I had my first baby, I have been able to control it up until recently when I developed psoriatic arthritis and the put me on methotrexate, the side effects of this terrible drug were horrendous and I had to come off it quite quickly since then I have had the worst flare up of psoriasis I have ever had !! I am considering taking a biologic to treat the psoriasis and arthritis together as after researching the new biologics I think they are the way forward for this awful illness. In the usa the biologics are the first thing they use as they say they are the best and the only reason they don't use them in uk is COST, that is why you have to have tried everything else (including the nasty cheap methotrexate which I call poison by the way ) before the doctors will give you a biologic drug.
Posted Wed 26 Mar 2014 17.50 by Georje I have had all types of Psoriasis and I now have PsA
From reading all the posts relating to the heading it would appear that I win the badge holder for the longest with psoriasis! My age is 60 nearly 61 and have had PsO since the day I was born, so my immune system has been shot to pieces since then, I also have IBS - D, another auto immune disease and was diagnosed with Psoriatic Arthritis in 2010.
I have had all forms of the skin disease and it looks as though I am getting all forms of the bone disease. I am currently taking Entercept by injection per week and Leflunomide by tablets. It was supposed to clear my skin as well, which it did to start with unfortunately it is now back.
I have taken it that this skin disease will be with me until the day I die as all medication appears to not want to clear it any way. As to the PsA that has been reduced from 0-10 to 0-5 on the scale for pain. Fatigue is still a major concern as I can only do a little bit at a time. I had to give up work completely as I could no longer cope, it was bad enough trying to get out of bed in the morning without trying to work on top of that!
Thank you for reading and getting to the end.
Posted Thu 27 Mar 2014 08.12 by Boog Had it since I was about 10, am grown up now and still up and down with it, bored now… Had lots of help including psychodermatology which h
Feels like a 100 years some days…
started about 10, am 54 now, so 44 years and have tried everything there is. Drugs gave me my life back for a short while when I had totally had enough, but I love life more than my vanity and decided to tough it out because drugs are also a huge compromise. Being without it was a wonderful break though...
Posted Wed 2 Apr 2014 20.56 by isy9512 Psoriasis mainly on my arms, self-conscious especially in summer, embarrassed which prevents me from taking my hoodie or jumper off when I'm
Hi
I'm 18 and I've had psoriasis for roughly around 8 years. I used to have it on my back and legs and it just disappeared suddenly and so now I just have it on my arms and a bit on my face, I would like to get to know and chat with anyone who is a similar age to me and perhaps lives in the same area as well (Oxfordshire) my email is i.j.cook95@hotmail.co.uk if anyone around my age or the same area would like to chat :) we could also chat on face book if your interested, let me know
Isy xxx
Posted Tue 27 May 2014 13.31 by susan191052 Calves elbows 7 scalp particularly affected
I believe I first had psoriasis when I was about 15 (though it was diagnosed as being allergic to my own earwax as cylindrical pieces of skin came out of my ear canal! It real started up when I had my second child when I was 33. Since then it has been an ongoing saga. My psoriasis is currently the worst it has ever been and I have had psi arthritis for 2 years now.
Posted Wed 28 May 2014 05.26 by Deejay Hello,im deejay 32 and have had it since i was in college years,i get it on my scalp, back and legs,have tryed many treatments but the effec
Keep it up sarah.
Cheers!!!
Posted Mon 2 Jun 2014 12.27 by wani1981 how? dont know? :)
i had it for last 6 years, for first few months i thought its just my dry skin.
then gradually it became worse. only my joints (knee n elbow) got effected 1st, then my skull , my ears, palm, back.
i started my treatment with allopathic medicine (doctor). these creams include steroids, which are only temporary relief but when you leave them , psorasis sticks back 2 to 3 times more the actual one,
then after 1.5 year i shifted to homeopathic. used it for one year, my psorises got improved but my over all immune system got weaker, i started facing huge pimples on my skin, on my eye in my nose. very painful. i left the homeopathic medicine and that pimple never came back.
one day my wife told me that there is a cure in herbal medicine in china. i had a customer in china so i asked him about this. he gave me a positive answer.
normally once or twice a year i do visit china for business reason, so i decided that this time i will visit the herbal doctor.
last year april 2013 i visited them , i stayed there for 3 years, that doctor sits every sunday. he gave me medicine for a week and after one week he checked me and then gave me medicine. he also gave me a diet plan (what not to eat). i gave back to my country with 2 months medicine,. i stayed with the diet n medicine for 7 months. 95 % psorises where gone.
doctor told me that this psoriese is stubborn skin disease, it will take time but it will go. after 7 months i stopped the diet n medicine. for next 3 months all was good, then i had to go to germany for business in feb. i stayed there for 10 dayz , due to cold it came out again. my skin was effected, but its not like i had in start. its limited, now this april i when to china again and now im using herbal medicine again, its almost 2 months im using the medicine and now its getting better again.
its 100% herbal, you have to boil the herbal and filter the water and have to drink the water twice a day.
this is my story and i would love to share this in more detail if someone wants to.
my email is wani1981@hotmail.com
Posted Wed 4 Jun 2014 12.07 by emloujenki I've suffered with psoriasis since I was 10 and I am now 32. I have and still do suffer from depression and have no self confidence. I feel
Hi I've recently join this forum and thought I'd share... I've had Pso since I was 10 years old, which is now 22 years ago! It's never gone and made a massive impact on my life. I suffer with depression and other health issue because of it.
Posted Mon 30 Jun 2014 01.49 by Slcjam3 I have it everywhere, but the palms of my hands and bottoms of my feet are the worst. They are very painful most days. There's days I just w
I have had what I will call baby flare ups for several years, but it would clear up. Then about 6 years ago the palms of my hands and the soles of my feet started to break out. I have had good days and bad since then, but this past year has really been terrible. My job requires me to be on my feet and the use of my hands all day. The itching is horrible and they are very painful right now. There are times I just want to cry and times I just do.i have been to a dermatologist and been diagnosed and have used just about every cream out there most don't help they just make them dry out more. I am willing to try anything. HELP........
Posted Wed 30 Jul 2014 15.11 by Suki-87 I have had psoriasis on my scalp since I was 14 years old
I have had it since I was 14 on my scalp and now I am 27. its not as bad as it used to be, I have learnt to manage it better. it has gone on to my eyebrows now, causing the hair to fall out. dreading what will happen when I am left with no eyebrows! I use pure coconut oil on scalp it does help me so if you haven't already given it a try I deffo recommend...
Posted Mon 4 Aug 2014 01.06 by charlotte pustular psoriasis
Like another commentator I have only recently been diagnosed with palm and planter p after 37 years! 1st it was eczema and 2 years ago athlete's foot (even I knew the GP got that wrong). Recently it became v bad and I found it had moved to my right foot and hands as well so went to visit a new GP who diagnosed it in a second. I've been given Dovobet cream, but only intend to use it for a month, once daily and I will wean off it in the 4th week because I know frequent use of steroids can be harmful. I have thought that trying a gluten free diet might help. Certainly my condition has become worsened since the removal of my gall bladder which is all connected to the gut. As a hairdresser it is difficult to keep my hands moisturised because the cream would transfer to the clients hair. also I have seen clients with the most awful flare ups on the face and head so, for me having it on my hands and feet doesn't seem so bad compared to some who, must suffer so much more than me. I am certain that there will be a complete cure and probably sooner than later in the form of stem cell treatment. One thing is for sure; I'm not going to let it get me down.
Posted Tue 7 Oct 2014 21.46 by lilycole786 Yes I have it on my scalp and I have lots of hairloss with it ....
Im 19 now and it started from the age of 4 so for 15 years
Posted Sat 18 Oct 2014 14.01 by NaomiRDaw I have been diagnosed with Psoriasis since I was 3 years old.
I've been diagnosed with psoriasis since I was 3, I'm 19 next year. So 16 years.
Posted Wed 22 Oct 2014 09.48 by Thombears
I've had psoriasis since I was 14 years old. I am now 47 and have only been psoriasis free for 3 short periods during the past 33 years: once when I was 15 and had phototherapy, once when I was pregnant and once 2 summers ago when for some reason it just went away on its own for around 4 weeks. I usually get it on my elbows and knees like most people but this year I have been covered from head to foot and so flaky I feel like a sausage roll!
Posted Wed 22 Oct 2014 14.43 by David67 I am a mild suffer but it sometimes stops me going out and enjoying swimming which I love.
I've had it for 47 years - so all of my life. I think I am a mild sufferer with the occasional patches here and ther but Over the last 10 years or so I have had a ridiculously persistent patch on my left shin which is approx hand sized. I've used Dovobet and am now using Silkis. Neither of which seems to be doing the trick. It's gettign me down at the moment.
Posted Wed 3 Dec 2014 02.21 by Jimin26
i have had it for 14 years now i was diagnosted when i was 9 years old and i still can't accept the fact to have it
Posted Wed 3 Dec 2014 02.44 by nensianne Hi. I'm Nensi. i have this skin disease for 9 years now. Because of this i can't wear clothes that shows off my skin. It started in my sculp
I've had it for 9 years now. It started on my sculp like a dandruff and now it is all over my body. The sad thing is i can no longer wear clothes that shows of my skin and can no longer join pageants unlike before. The doctor said this disease is called psoriasis vulgaris.
Posted Sat 6 Dec 2014 12.40 by donthogtheblog I have suffered with it since I was about 12, and Still do till this day. It mainly affects my scalp. It hasn't just been the physical issue
I have just done a blog about Living with Psoriasis. I am 22 in a few months time and I have had since I was 11!
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Posted Wed 19 Feb 2014 20.52 by clareeade