How long have you had pso?

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Posted Sat 6 Dec 2014 12.40 by donthogtheblog
I have suffered with it since I was about 12, and Still do till this day. It mainly affects my scalp. It hasn't just been the physical issue

I forgot to add the link http://donthogtheblogg.blogspot.co.uk/2014/12/suffering-with-psoriasis.html

Posted Mon 15 Dec 2014 10.05 by Jewels
I have had it on my scalp for about 30 years before that in my ears and the nail of one thumb.

Hi, Ive had it on my scalp for about 30 years, I remember having it as I left school and maybe had it before. When I was young (junior school) I had it in my ears and before that on one of my thumb nails. I think Ive now got proriatic arthritis which Ill be disusssing with my gp at my next appointment.

Posted Wed 17 Dec 2014 05.32 by AraceliFranco
I have been told that. Its just egsima..its in my mind I just want pain meds and that I just want attention...:'( :'(:'( I'm at my wits end

I NEED SOMEONE TO PLEASE HELP ME..ABOUT 5YEARS AGO WHEN I WAS PREGNANT about 6months into my pregnancy..and put on bed reset due too complications..I begain getting these burning red bumps on my back by my ribs..it hurt so much for even my shert to touch.. My doctors assistant when I showed her she freaked out..stressed me out emberised the hell out of me and almost broke up my marriage...she yelled "eewe hurpies" it took her a week to find out it was shingles.. So a month later when I got these scailey patch's on my arms I was too scared to even bring it up..so I never brought it up..It went away on its own and I had my son..my Medicaid expired and I wasn't able to get it back..iv had joint pain for long b4 all of this but I had older brothers who beat me up and was a big tomboy growing up so I never put the two together... But about 3 year ago my joints hands feet knees ankles shoulder started swelling up ...and about 1year ago my dad was diagnosed with P. So I started looking into it..I started getting these scals in my scalp my hair is falling out and it hurts and itches...I have no way to get a real diegnosis I don't have money for insurance or appointments.. I'm in a lot of pain..everyday.. I feel like I'm going craz ..and at times I just want to "let go" :'( :'( :'(

Posted Fri 19 Dec 2014 06.27 by Edbad
I've had it since birth. My father suffered worse than myself but i suffer from outcrops on my arms, scalp, chest, back, shins, genitals, fe

I've had it since birth. My dad was a worse sufferer than me and it does seem to run in the family as my brother and two cousins also suffer but I seem to have got the worst. It keeps springing nasty surprises on me however, at 18 I got arthritis and at 24 it broke out on my face. I turn 30 in a couple of months, i just hope it's not planning another surprise!

Posted Sat 20 Dec 2014 16.08 by 47psoyrs
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

47 yrs. Look at my user name!

Posted Thu 25 Dec 2014 03.59 by 47psoyrs
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

New to this site. How can I start a new thread? Is it possible to change my user name & password?

Posted Thu 25 Dec 2014 04.06 by 47psoyrs
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

My user name says I've had pso for 47 yrs. Let's see, I was 5 mos. pregnant in 1967 when pso showed up. Drs. said it was just stress from my pregnancy but I knew better since my uncle had it. As time went on it became worse, & I was referred to a derm. by my GP.

Posted Thu 25 Dec 2014 04.12 by 47psoyrs
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

I've had pso for 47 years. I first showed up when I was 5 mos. pregnant with my first baby. Doctors said it was just stress from the pregnancy but I knew better since my uncle had it. Mother had it also but just on her scalp.

Posted Thu 12 Feb 2015 12.47 by Psoriasis Association (Admin)Mod - from Northampton, UK
Patient Advocacy and Communications Manager at the Psoriasis Association

Hi all, my name is Dominic and I work for the Psoriasis Association. Having read through the thread, I just wanted to take the chance to respond to a couple of the more recent queries and comments in here. Firstly, for the younger posters in this thread, if you're looking to chat to/share experiences with people of a similar age, we have another website, Psoteen, which is specifically for young people. The Psoteen website has its own forum which can be found here: http://www.psoteen.org.uk/connect Secondly, simmons86, to respond to your post directly, to find information and/or support groups for Eruptive Xanthoma, try contacting the British Association of Dermatologists (BAD). I'm assuming you're based in the UK? They will be best placed to direct you to the support you are seeking. Here is a link to their contact information: http://www.bad.org.uk/about-us/contact Thirdly, AraceliFranco, to respond to your post directly, try contacting our helpline by email at mail@psoriasis-association.org.uk for information or advice. I notice you mentioned 'insurance' in your post which leads me to ask, are you based in the USA? If so, try contacting the USA's own National Psoriasis Foundation (NPF). They may be better placed to advise you about treatment options available in the US. Here's a link to their contact details: https://www.psoriasis.org/about-us/contact Finally, if anybody else reading this thread would like to contact us for information, advice or support, here's how to get in touch: Call our helpline on 08456 760 076 or email us at mail@psoriasis-association.org.uk. The helpline operates between 9am-5pm Monday to Thursday, and between 9am-4.30pm on Fridays.

Posted Fri 13 Feb 2015 19.20 by Hunter84
I had psoriasis during ages 12-17, it then disappeared. I then was diagnosed with psoriatic athirtis in 2012 after a big flare up after ru

I was diagnosed in 2012, after a big flare up after running. It only affects my knee joints at the moment.

Posted Sat 14 Feb 2015 13.21 by eli_gwyn
I developed a rare form when I was a teenager. I was hospitalized by the condition. I recovered and, since then, it has been a relatively mi

Hello! I've just signed up here while searching for treatments for ear psoriasis. I developed a rare form of p when I was a teenager and ended up in hospital for a couple of months. Since then, it has been a relatively minor problem, although often very tiring. All told, I've been a sufferer for around 29 years.

Posted Sat 14 Feb 2015 23.40 by p.abbott
Had psoriasis for 37 years! Recently diagnosed with psoriatic arthritis. Happy for any help I can get or give.

Hi, Just joined on here. I've had psoriasis for 37 years now. I've had all the treatments, but they either mess you up or if they do work it's only for a limited amount of time. I gave up having treatment about 10 years ago and just use moisturiser to keep it from cracking. Winter is always toughest for me. It can virtually disappear in the summer especially if I go in sea water! I was diagnosed with Psoriatic arthritis about a year ago. Having severe issues with mobility now. I just try to keep active to keep it at bay. Cycling helps. I would swim, but my skin doesn't like the chlorine. I'm looking for a local support group in the Nottingham area if one is available.

Posted Sun 15 Feb 2015 09.08 by Sahana Subramaniam
Don't know I got it when I was 2 years old

I am having pso for over 11 years now Even I am a new member

Posted Wed 4 Mar 2015 20.45 by mike
currently living with inflammed psorasis

Hi , I have had psoriasis for the past 2 years after a change in my housing circumstances.I have increasing patches over my body, and I have seen my GP once who prescribed a steroid cream and i have purchased various moisturisers to no avail. i am feeling very low in mood and unsure which step to take next,,,,

Posted Sat 7 Mar 2015 11.27 by ganj_chishtiya
I have solution of Psoriasis!

Hello everyone! any person who is effected by Psoriasis I have a great solution for them I have used "Jungle Herbal Ointment" I brought it from this website http://www.ganjchishtiya.com/ you never believe this it is working 100% for PSORIASIS ... I just want to say that you should use once. Thanks

Posted Mon 9 Mar 2015 16.58 by rosieclements42

Had it since I was 8 years old.

Posted Thu 19 Mar 2015 21.13 by Rachel
I have psoriasis.

Hi I've had mine so far for around 8 years however I'm only 14. It's got incredibly bad recently and covered a lot of my face which it has never done before. I take methotrexate which I did about 4 years ago as well and so far it hasn't been working and honestly my psoriasis has got worse more than anything else. If anyone has any advice id really appreciate it. Does food or anything effect it?

Posted Thu 23 Apr 2015 07.32 by richard
I suffer quite bad at the moment with psoriasis

I have had psoriasis since I was involved in a accident about 22 years ago

Posted Wed 20 May 2015 14.47 by Dutson71
Since I was 5yrs old

Hi, I am 44 now and have Psoriasis since I was 5 and Psoriatic Arthritis since 21. I am guessing it will be with me for the rest of my life, well the PA anway, thats a given now,.

Posted Tue 9 Jun 2015 21.41 by Mrs K
My hubby has had P for most of his adult life. I hate seeing him feeling down about it and have been reading up on treatments, coping mecha

My hubby has had P for most of his adult life. I hate seeing him feeling down about it and have been reading up on treatments, coping mechanisms and on how to support him.
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