ARAVA - anyone ? (aka leflunomide)
Posted Mon 12 Mar 2018 07.06 by new to it
started a week ago , as methotrexate was intolerable and did not reduce inflammation .
1. wasn't told so by the doctor but read in the leaflet that you need a special "elimination" process if you want to stop arava - what's that ?
2. a day after starting . got an exacerbation of inverse psoriasis - familiar to anyone?
3. joint are so painful all over -ankles, knees; hips; wrists' elbows, shoulders, neck,an spine - if i sit still more than 10 minutes it is excrutiating painful to get up an d it takes a while for the joints to move. wha has helped you with this ?
4. has anyon been diagnosed with fibromialgia in addition to PsA?
thank you!
Posted Mon 12 Mar 2018 07.20 by Scottie Dottie
Can only answer part. 'The active metabolite of leflunomide, A771726, has a long half-life, usually 1 to 4 weeks. Serious undesirable effects might occur (e.g. hepatotoxicity, haematotoxicity or allergic reactions, see below), even if the treatment with leflunomide has been stopped' basically it means some people need another medication to get rid of it if they have had severe reactions or very abnormal liver tests. It's called cholestyramine and us usually taken for 11 days to 'wash out' your system
Posted Mon 12 Mar 2018 07.48 by new to it
thanks, Dottie!
wondering also about the allergy to it , as from day 3 on i am itchy all over/
Posted Fri 6 Jul 2018 22.38 by Bracken
Can you tell me how you are on it now? My Dr mentioned it the other day and im looking for a little heads up!
Are you still on any methotrexate? :)
Posted Sat 7 Jul 2018 19.59 by new to it
Bracken , sorry to tell that it was stopped after only 10 days as I turned out allergic to it ... now awaiting approval for biological ....
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