Hi I had psoriasis on my scalp when I was 16, a few months later my knee swelled and then my ankle.. after years of trying methotrexate, embel and Humira and nothing happening expect me being really poorly I decided to stop it all.
Since then I’ve been sore on my ankle but still at the gym lost 3 stone and look after my horse I just can’t walk far.
The rheumatology department want to try me on Secukinumab but I suffer with anxiety with taking medications I’m really asking advice on the side effects and how it made you feel? I’m so anxious to start this treatment.
Hannah
Posted Tue 24 Apr 2018 22.13 by Josette
I feel the same. Had scalp psoriasis for 12 years but psoriatic arthritis for at least 20 years, in knees and feet. Becoming .
less mobile and hate it. Can't see the point of living the rest of my life in pain and immobile. Cheesed off and don't know what to do.
Posted Wed 25 Apr 2018 10.45 by Hannah
Thank you for your reply, are you on any treatment for your arthritis? It’s awful getting up in pain I’m 22 and everyone is out dancing and I can’t, I have to do exercises to get going in a morning I see a Physio every week. Is there any tips you have that could help?
Hi everyone, my husband suffers from psoriasis. I research all the time for him. My advise is try to eat very fresh food and consider supplementing with B5. I buy Solaray Pantothentic Acid. This is wonderful for your skin. Plus whenever my husband gets sun his skin clears up...sunbed or regular rays. Zinc supplements can help too. Take care. Cheri
Posted Sat 28 Apr 2018 08.23 by OhNo_NotAgain?
Hannah,
I am 60 years old, and something I have learned over the years is that people can have different experiences of psoriaisis and the treatments, both in terms of the success of treatments and severity of side effects to drug treatments.
For some people, the severity or experience of the side-effects is preferable to what they suffer from the condition itself.
As a totally ficticious example: if you knew that a treatment would cause you to lose your hair, but your joints would be 100% pain free, you might think "I can live with that, my quality of life will be so much better".
Until you start the treatment, you will not know how any possible side-effects will manifest for you. If the side-effects are unbearable, or reduce your quality of life more then the condition itself, you can stop the treatment.
My advice is to TRUST the Rheumatology dept and your specialists, and discuss your concerns with them.
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