Facebook support page.!!

Posted Thu 26 Apr 2018 08.17 by shy_girl1988

A couple of us on this site decided it would be a good idea to start a FACEBOOK support page where we can share stories, feelings, pictures, motivation etc Everyone is very welcome. Come on in and lets support each other. https://m.facebook.com/groups/375000316315644 Embrace psoriasis & life x

Posted Thu 26 Apr 2018 15.16 by lynno

come on in everybody! So far a few of us sharing stories, pics and positive vibes!

Posted Fri 27 Apr 2018 14.10 by shy_girl1988

Come on in guys :) Getting to each other, sharing stories, feelings, thoughts & photos. You are not alone x

Posted Fri 27 Apr 2018 14.22 by Metarie1985
Beauty standard ignorer, unapologetic P sufferer for 10 years, determined to stay positive!

What is the full name of the group? I can't find it by searching on FB.

Posted Fri 27 Apr 2018 14.24 by shy_girl1988 (edited Fri 27 Apr 2018 14.25 by shy_girl1988)

https://m.facebook.com/groups/375000316315644 Copy & paste this into the URL bar. I don't think it works if you just put it into google x I think the status of the group has been secret so you will not see it by searching

Posted Fri 27 Apr 2018 14.41 by Metarie1985
Beauty standard ignorer, unapologetic P sufferer for 10 years, determined to stay positive!

I'm on a work computer which won't load facebook and it would be easier to search facebook than finding this post on the website and copying the link on my phone :) Why is it secret? Why not let it be discoverable for everyone who needs support?

Posted Fri 27 Apr 2018 14.46 by shy_girl1988

I am not admin so I didn't change it. I think its because you get so many horrible trolls online . I am not sure. The last thing someone suffering from psoriasis needs is someone saying horrible things. Yeah I totally understand that, that's why we started it up. Maybe e-mail the link to yourself and copy & paste on your phone?? I totally get that its a pain but it might work. I think it could be a nice wee supportive page x

Posted Fri 27 Apr 2018 14.47 by OhNo_NotAgain?

Metarie1985: you could simply type the URL of the page directly into your browser on your phone. No need to search for anything.

Posted Fri 27 Apr 2018 14.52 by shy_girl1988

yes ohno_notagain That's what I had to do also and at that point the group was just closed. I automatically searched but had to copy it right into the URL

Posted Fri 27 Apr 2018 14.59 by Metarie1985
Beauty standard ignorer, unapologetic P sufferer for 10 years, determined to stay positive!

Ah, right OK. I've obviously set my phone to open FB pages in facebook so this isn't working for me and too much of a faff to be trying at work. Never mind! Good luck with it - great idea.

Posted Fri 27 Apr 2018 15.03 by shy_girl1988

Aw don't give up on it :( Could try it at home To be honest im not too clued up on fb group pages so there may be an easier way lol I will ask

Posted Fri 27 Apr 2018 17.08 by lynno

Name of the FB group: psoriasis girls and guys x

Posted Sun 29 Apr 2018 18.43 by Ciaras_journey_
Irish 24 year old Psoriasis & Psoriatic Arthritis Warrior. Sharing my journey on IG & FB via Ciara's Journey

Going to join now 😊 I think it's great to have these kind of things. (I'm new to these forums also)

Posted Sun 29 Apr 2018 20.39 by OhNo_NotAgain?

@Ciaras_journey: Keep in mind that there is more to this site than just the forums. If you look under the heading "psoriaisis and treatments" in the bar across the page just below the logo, there are a whole range of topics covered. There are information sheets on each type of psoriasis and the FAQs cover quite a few things that get raised in these forums. Good luck.

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