Help Please

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Posted Thu 3 May 2018 01.44 by Luke4392

I've had Psoriasis since about December 2016, only on my face and not anywhere else, it just started out as dry skin but just gradually progressed and got worse. It's hard living with it especially working in a shop and seeing customers all day, I've been to the doctors twice and both times they just gave me different creams to apply to it but I just find them really thick, greasy and they just get everywhere (mainly on the pillow and in your eyes when you have a bath) which isn't nice and it stops me from using it that much because I just don't like it. My question is, is there such thing as a spray on cream or moisturizer that I could use instead, sort of like a sun cream that you spray on because it would be so much easier and I would definitely use it daily, oh and the other thing I wanted to say was that I have been browsing this forum for about a few days and the other day I came across a post about these capsules called clear free (I think anyway) but it just seems to have disappeared, has anyone used them and did they work? Thanks for reading :)

Posted Thu 3 May 2018 06.56 by Nan50
I've had psoriasis most of my life.

Hi Luke, in my experience of P which spans 50+ years, diprobase is great for keeping the skin well moisturised as it absorbs quite quickly and can be used throughout the day as you find necessary.. I always keep a small pot on me wherever I go !! Hope you find this helpful..

Posted Thu 3 May 2018 08.17 by shy_girl1988 (edited Thu 3 May 2018 08.54 by shy_girl1988)

Hi luke I don't personally have it on my face so not sure what to suggest but I have seen a few posts on here that some creams have helped. There is a post on sudocrem & one called sorion I think. Should maybe check it out. People have said they have great & surprising results from these. I have also heard coco butter & tea tree treatments can help. Also without sounding harsh sometimes with psoriasis we have to do stuff to ourselves that we don't necessarily like or want to, in order to get results. I go to work sometimes wrapped up in cling film lol I put my cream on then wrap up so it absorbs it all in and works a lot better than just putting on normally. Yes I understand you cant exactly do that with the face but I just mean keep at it. Surely the results can outweigh the hassle ..... sometimes??? Hope you find something out there PS a few people from here have made a fb group support page if you fancy joining.... We are all sharing pics, stories, feelings & positivity. We might not have the answer but could maybe help with confidence and being n public, I know I feel better now about going out into the world showing my skin off after talking on there. https://m.facebook.com/groups/375000316315644

Posted Thu 3 May 2018 09.55 by OhNo_NotAgain?

Luke: here is a link to a dicussion on here about clear-free. https://www.psoriasis-association.org.uk/forums/topic.aspx?ID=1231 I am cynical about many things, and I am aware that some companies will market products and treatments knowing that many of their target market will be willing to try almost anything out of desperation. I found the discussion by typing "clear free capsules" into an internet search. There are numerous other discussions about this product. I am naturally sceptical of anything called a "miracle cure".

Posted Sun 6 May 2018 20.00 by souxies

Hi Luke, I second Diprobase as a great emmolient but can I ask what are these ointments you have been given? I spent most of my teenage years with patches of p on my face and I know how damaging to your confidence it can be as theres no way to hide it, Many treatments can not be used on the face but I was given a hydrocortisone cream to use for short period.

Posted Mon 7 May 2018 01.22 by Luke4392

thanks for all the replies :) the one I have at the moment is called fifty:50 and it's kind of like vaseline, it's really thick and doesn't soak into your skin at all and like I said in my first post just gets everywhere plus it gets in my eyes and starts to sting (that's when I use it under my eyes for the dry flaky skin) My face is flaky in my eyebrows, nose, side of my face and down under my eyes, not particularly on the forehead though and no dry skin near my mouth and chin. What would be simpler for Psoriasis sufferers would be to have a spray on cream that just soaks in, but I've researched that and that kind of moisturizers is pretty much sun cream

Posted Tue 8 May 2018 17.36 by Luke4392

I was just wondering what actually happens when you visit a dermatologist, how often you have to go and just really what they do?

Posted Tue 8 May 2018 20.23 by OhNo_NotAgain?

Some years ago a jaded and cynical GP (I got on well wiith him) told me that Dermatologists merely guessed what your skin condition was by looking, and "tried" a treatment. If that did not improve your condition, then they would try something else - basically trial and error. The way the NHS is structured in my experience, GPs have a limit to what they are allowed prescribe for psoriasis. If they cannot improve your condition or it is getting worse, then they should refer you to a Dermatologist. The Dermatologist is able to prescribe a wider range of treatments. To my mind the other key difference is that a dermatologist deals only with issues related to skin or skin symptoms. I would expect the Dermatologist to be far more experienced in terms of which treatments have delivered how much success in general. I would expect a Dermatologist to have time to keep up-to-date with journals, new treatments and new developments, more easily than a GP who is exposed to a much wider variety of conditions and complaints to keep informed about. Fundamentally the Dermatologist is a specialist. Specialists are not more intelligent or better trained than GPs (in general), but by definition they specialise, so I would expect them to be able to know more about their own speciality than a GP.

Posted Wed 9 May 2018 11.02 by Gaming Empty Nester

Hi , here is the link to the NICE Assessment and management guidelines: https://www.nice.org.uk/guidance/cg153 These documents have their use to patients not just HCPs so take a look at the pathways then the guidance documents and go armed to your next appointment. I have my consultant appt on Friday for psoriactic arthritis, blood results should be back and I'll find out about next steps. Had a month of etoricoxib 60mg and lansoprazole. No chnage to the foot tendon pain but fingers slighty less red.

Posted Wed 9 May 2018 12.58 by olivermorgan
I have had psoriasis since I was 9.

For a simple moisturiser, I find Boots aqueous cream work really well... http://www.boots.com/boots-pharmaceuticals-aqueous-cream-b-p-500ml-10115225

Posted Wed 9 May 2018 14.54 by Chrissie NW

I have had P for 50 yrs some times good , some times horrendous, but I plod on. Been to the Dermatologist yesterday and Im going once again for the lamp, had a good discussion with him about Biologics for Psoriasis and Psoriatic Arthritis which I have both, if this works it will be tremendous everything has been praised by NICE and it is still a new medication, I dont want to be taking a cancer drug and feeling terribly sick, so the Biologics this has been on trial and has been produced by speciially for Psoriasis so it works on the T Cells its a type of immune cells, which is better than the systemic medication usually tablets such as methotrexate and ciclosporibn the difference is that these treatments suppress the immune system as a whole whereas biologics selectively targets the chemicals that are involved in the condition being treated the biologices will potentially have no serious side effects like the systemic medications have on the body. these are done at the Hospital by injection and will be available hopefully by the end of this year, Its a fantastic break through and I myself will be at the front of the queue for these injections. For Luke with P on the face I have Protopic Ointment from Doctor spread very thinly as it goes a long way and It works for me. Hope this helps.

Posted Thu 10 May 2018 20.16 by Luke4392

I've been using my cream that the doctor gave me at the end of last year, I needed the kick up the bum that you guys gave me, pretty much cleared the whole lot in just a few days, only used it once a day unlike the 4 it says on the cream, Is that normal for it to clear like that without barely any use? there was months and months worth of dry skin that all just built up and now it's just gone, the cream I use is pretty much the same one in the link below that oliver posted, but it was way more expensive and just called Fifty:50 http://www.boots.com/boots-pharmaceuticals-aqueous-cream-b-p-500ml-10115225

Posted Thu 10 May 2018 21.05 by SS1980

Is it definitely psoriasis if it is just your face? Maybe you could try Trimovate (doctors hate giving it to you for your face but I’ve always found it to work better than anything else)

Posted Thu 10 May 2018 21.19 by Luke4392

the doctors never said what it was both times I visited, just gave me 2 different creams each time I went. I pretty much just diagnosed myself from google after someone let me know that it could be it

Posted Thu 10 May 2018 22.01 by SS1980 (edited Thu 10 May 2018 22.01 by SS1980)

I thought just having psoriasis on your face is quite rare. Ask your Dr to try it, it’s worth a try. I only suffered with my face for years until recently but was also told that it was eczema/seb dermatitis.

Posted Thu 10 May 2018 22.08 by Luke4392

I started noticing it the time I really blocked both of my ears really bad, stupidly was using cotton buds, my fingers and also tissues and really just left them so blocked up, can something like that be a trigger for some kind of dry skin disease?

Posted Fri 11 May 2018 07.44 by SS1980

I would not have thought so. Get to the Doctors and ask again. Possibly worth sucking it up and paying the money for a specialist dermatologist. It sounds like it will make a huge difference to your life and worth the money. Try your regular GP first though.

Posted Mon 14 May 2018 01.37 by Luke4392

has anyone had any experience with this https://www.chemistdirect.co.uk/emollin-emollient-spray/prd-rmc or an e45 spray on moisturiser?

Posted Mon 14 May 2018 07.56 by PrincessFlaky

Try MooGoo - it moisturizes really well.

Posted Mon 14 May 2018 16.43 by OhNo_NotAgain?

I have tried MooGoo - I thought the smell was pretty unpleasant, and it was expensive (over £20 for a 120g tube). It was the only treatment that I have tried , including coal tar based preparations such as psoriderm, that had an unpleasant smell to my nose. I found it no better than Childs Farm as a moisturiser, and not as good as Doublebase Gel or Oilatum Cream.
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