Psoriatic Arthritis...

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Posted Tue 11 Mar 2014 19.19 by Anita
I have had it for many years and sometimes it has made me very depressed, I have had so many different medications the latest being methotre

Methotrexate was like taking poison to me the side effects were horrendous !!! doctors give methotrexate because its cheaper than the biologics which are extremely expensive

Posted Sat 5 Jul 2014 23.03 by Gadders1980
I've had psoriasis since I was 11 on my scalp and knee. Then when I was 19 I was diagnosed with psoriatic arthritis in my hands and feet. It

Hi I'm new to this site, I would like to hear from people that have been diagnosed with PsA. I was diagnosed when I was 19 it was in my right hand and feet in a lot of pain after a lot of injections I started my tablets of azathioprine, these helped and I was on a high dose for about 5 years. Then my arthritis calmed right down and I didn't have to take any medication at all. Now I'm 34 and it's come back big time in my other hand and hip. Yesterday was the worse I've been in years I couldn't even open or touch my hand. Is this normal for PsA to swap hands? I'm waiting for an appointment at my local hospital but I don't know what to do I've been prescribed Naproxen in the mean time. Lisa

Posted Sat 16 Aug 2014 12.43 by Amandine (edited Wed 20 Aug 2014 19.40 by kkpradhan)
Plaque Psoriasis since childhood, now nail psoriasis, psoriatic arthritis, eye problems, the full monty really!

I've started a separate thread for 'complications' of PsA, such as eye problems, throat problems, tonsil stones, dislocating jaw, etc if anyone would like to discuss (it's currently at the bottom of the list on the left!)

Posted Wed 20 Aug 2014 19.45 by meatloafuk
i have psoriasis and psoriatic arthropy

HI Ellie I am new to this site but ive been on Methotrexate for 3yrs now. Last year i had it reduced because i was started on anti tnf my skin got worse but my psa slowed down . It seems treatments work different on each person the only thing i didnt like and wouldnt recommend is Cyclosporin i also found methrotrexate injections were more effective

Posted Thu 21 Aug 2014 18.06 by fruitbat46
hell yes, and PSA

Hey you, I had methotrexate for 2 years, total waste of time. I say this because the arthritis side of things just got worse over time, but it did stop (more or less) the psoriasis side of things. The skin probs don't bother me as much as the pain from the arthritis does, so I stopped it. I also found out that it is NOT effective against PSA only rheumatoid arthritis. For you - you have to way up the odds I am afraid. Which is worse for you hun. Hope this helps. Love Mel x

Posted Fri 17 Oct 2014 09.41 by zippymum
I have been affected by psoriasis with my ears and head also I have psoriatic arthritis which is very painful

Hi my name is Caroline and I have been recently diagnosed with psoriatic arthritis before that they didn't know which arthritis I had I now have to start taking injections the bio ones I think its called Enbrel its used with a MYCLIC pre filled pen don't know how its going to go are there anyone else taking this medication thanks xx

Posted Mon 10 Nov 2014 13.24 by stevebowe (edited Sat 3 Jan 2015 23.39 by alicejohn1973)
Diagnosed with Psoriatic Arthritis 3 years ago, aged 45

This is a reply to Caroline's post on 17/10. I was diagnosed with PA around 3 years ago after being troubled with a swollen index finger. This progressed to pain in feet/ankles making walking difficult, particularly in a morning. Initially I was put on 20mg Methotrexate tablets, but after a while I began to suffer with terrible nausea. I was then switched on to the injections and they too gave me nausea. After flirting with a combo of Methotrexate and Sulfasalazine, I was eventually put on Etanercept (Enbrel). The effect was positive and very quick. A year in and I feel relatively well. I still suffer a bit with stiffness and some sore/tender joints but the medication does seem to be keeping my PA under control. I have heard that eventually the benefits of any one of the anti-TNA products can reduce although there are variations that you can be switched on to (ie Humira) if that happens. Good luck :)

Posted Tue 23 Dec 2014 03.58 by 47psoyrs (edited Wed 21 Jan 2015 15.46 by sandrab)
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

do you go to a derm. to see if you have psoritic arthritis? Thanks

Posted Sat 3 Jan 2015 23.56 by Pollyanna
19 years

Hi, I've had psoriasis for 19 yrs and I can't believe I have never been on this site before. I have had psoriatic arthritis for the last five years and I'm sitting here crying as I read through some of your posts. I have tried just about every cream, lotion, potion, light treatment and shampoo from my doctor. Some of the steroid creams worked but only for a short time as it was too risky to use them long term. Once I had been diagnosed with the arthritis they tried steroid injections which sent my skin crazy. I have since been on methotrexate tablets but came off them due to the horrendous nausea. I went onto the injections which was better for a while but I have now been off them for the last three months again due to the nausea. I am just awaiting appointment to decide if I go on an alternative drug. In the meantime my skin has hon wild again :(. About 7 yrs ago I went on a food intolerance diet to see if it would help but didn't really see a difference but now I have researched other options within my diet of things to avoid and juice diets to combine the two to see if I can avoid the drugs as I'm worried of the long term affects on my body. Does anyone else use this method? There are so many things I could add to this post regarding psoarisis and the effects it has on your life especially when you are younger and looking for a partner. I have argued with my doctors for years that my skin is linked to diet in some way but have always been told no. It is the worst thing and takes over everything when it is sore and painful. Hoping things will pick up soon :/

Posted Tue 3 Feb 2015 12.22 by paull
Have Psoriatic Arthritis

Hi Im new to this site but have found it very interesting. My brief story was that I was diagnosed with PA about 15 years ago as a direct result of a wasp bite, how unlucky is that given I am 50 now and never been really ill or spent one night in any hospital. I have had numerous steroid injections (painful experience IMO) over the years to treat various flare ups which in my case are asymmetrical and mostly hands and feet, little fat toes and fingers etc. For me these injections have been 90% successful so Im grateful they help keep the curse at arms length. Some joints are permanently damaged which is very attractive. Still could be worse as still all functional. I was on Methotrexate but in my case I had no major improvement and found the regular blood tests and restriction on the odd alcohol indulgence to be to much so I stopped. I can honestly say if I looked back the only thing that has had any beneficial impact to my PA is exercise, agreed not easy if you ache and suffer fatigue, no pills or dietary changes have worked for me, slight improvement now and again but nothing sustainable. My plaque psoriasis has always been restricted to only knees and elbows, its always there some good and some bad days, never have understood why it gets better and worse. UNTIL NOW disaster and a major depression, had a flare up of guttate psoriasis all over about a month ago, unsightly and itchy it is horrible and no hope offered by the local GP's (no surprise there). Anyway have appointment with Consultant Dermatologist so will see if he can save me. Thanks for reading and I will look to contribute my thoughts and experiences going forward. Take care.

Posted Tue 29 Sep 2015 13.26 by dordor
I have had Psoriatic Arthropothy for over 20yrs

Hi Ellie, how did you get on with the Methotrexate injections. I tried the tablets years back also Sulfasalazine both of which had side effects on my blood. I have had 2 sessions of ultra light treatment the last one has been brilliant but as I have steroid pills for the Arthritis I am expecting it back in the future. I was suffering really bad with the plaques on my skin this last bad bout I had patches the size of dinner plates on my skin

Posted Mon 21 Mar 2016 11.03 by LynneD
Had to consider a career change as nursing and psoriasis don't mix too well I feel like I am so ugly

Hello I am just about to start on methotrexate I have nursed many people on it in the past and a low maintenance dose was valuable I have to start on 15 mgs but want to stay on 2.5 mgs if manageable Don't relish the nausea though

Posted Fri 22 Jul 2016 19.09 by mogs51
Diagnosed with p.arthritis 4yrs ago, it started in my toe and gradually spread to my other toes on my right foot. Also suffer with p in my s

Hi I was diagnosed with psoriatic arthritis about 6 yrs when my toe started to swell on my right foot and was extremely painful, I was initially taking Ibuprofen but then was put on diclofenac. I was also given steroid injections into the toe joints which gave some temporary relief, I was surprised by the initial diagnosis as apart from some problems with my scalp I have not experienced any problems with psoriasis. It has spread to my other toes on the same foot and does tend to flare up for some unknown reason. I play golf and I am very active but I try to come off the anti inflammatories and the tablets that protect the stomach lining if I feel I can!! Currently the underside of the same foot is very painful, body scans have indicated arthritis in the right knee, hip and even jaw. Has anyone experienced anything similar It did not become apparent until I was 56 I am now 62.

Posted Fri 29 Jul 2016 18.42 by CanadianVal
I am sure that all the drugs I have been on have affected my health in other ways.I also suffer from extreme itch and I am tired of people c

I have been on both methotrexate pills and injections and could not tolerate either. The doctor then suggested that I take another med to try and stop the severe nausea but I didn't want to be on more meds. Now I am taking light therapy and Otezla and hoping to see some improvement in the future.
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