PsA treatment stopped though pain continues

Posted Thu 13 Dec 2018 09.34 by welshun

I was diagnosed with PsA in 2010 and Fibromyalgia in 2015. My doctors have just stopped all my medication following US of my hands/feet showing no inflamation. Am still awaiting results of Spine MRI Whereas I should be happy that the ultrasound of my hands and feet was reported as normal I am upset that it does not reflect the pain I have been getting. My 2nd toe end joint is extremely painful to walk on and clicks which is definitely not ‘normal’. I am unable to walk barefoot as this makes it worse which means I have been unable to go to my exercise class (impossible to do in trainers) which has been very important in helping keep the aches and pains away, endorphin = natural painkiller. Unfortunately i cant take NSAIDs I had a spine MRI about 2 months ago as I have also been suffering with sacroiliac/hip/lower back pain and I am concerned that if this comes back normal I will be left suffering with unexplained and untreated pain. It is really affecting my quality of life and my mood is very low. It doesnt help that i'm a secretary and trying to hold on to my job in the NHS as the Sickness policy seems geared up to get rid of people with chronic health problems. I have asked for referral to pain clinic for coping strategies but I feel like I am being told the pain doesn’t really exist. What do I do now? Has anyone elese been made to feel the pain is all in their heads?

Posted Wed 10 Jul 2019 14.22 by DeborahRed

I'm new on here...just joined. I have both conditions.....recently diagnosed. My diagnostic tests are very similar to how you describe yours at this point.....not conclusive. Have you made any progress since this post ?

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