Is it just me....

Posted Thu 16 Feb 2012 23.16 by scotty89
Had psoriasis on scalp, arms, face, torso, back since the age of 16

Does anyone else find that the majority of treatments are not exactly convenient- mosturisers/creams/gels etc that make you stick to all your clothes and give you a not-so-radient shine? UVB which demands waiting in hospitals for around an hour a day 3x a week. Anyone have any which are easier to adapt to? I know this sounds daft, and of course I stick with what makes mine easier to deal with but just wondering if anyone had any other advice ?

Posted Fri 17 Feb 2012 14.42 by cathy92
I have been affected by psoriasis since the age of 7. I now continue to have flare ups if I am not on meds

Hi. Yes i completely know what you mean. Over the years i have found that the creams that i am given are very inconvenient and they also only temporarily relieve psoriasis. As for the UVB, it is hard to get to the hospital 3 times a week. Recently i have been taking ciclopsorin and have now moved to humira which is an injection. I find that these are much more convenient as they are tablets and an injection that you administer yourself.

Posted Tue 1 May 2012 18.23 by Mike P
Reasonably mild at present. Mainly affecting elbows, calves and forearms

Not sure this will help you but I use Goats Milk Cleanser and Goats Milk Moisturiser. They are non greasy and you can put clothes on almost at once. Not saying they will work for you but I find them good - although it is expensive. They also do a soap and a shower gel which are good too but again, they are not cheap .https://www.natural-skin-care.com/index.php?referer=psoriasiscream.co.uk

Posted Fri 14 Sep 2012 14.04 by joshua (edited Sat 28 Sep 2013 13.43 by richardo745)
Body, nails and scalp

Hiya, Yes, I have found some of the topical treatments to be very difficult to fit in with also living your life day-to-day. I think dermatologists forget that as well as manage your psoriasis you also have to live your life - earn a living, manage relationships, etc. However, NICE guidelines do say that if some treatments, such as topical or UVB, are not compatible with your lifestyle, then you should be considered for other treatments that are normally reserved for more severe psoriasis - such as systemic treatments. However, I did have to mention this NICE guidance to my dermatologist for them to listen to me. Josh

Posted Sat 23 Mar 2013 14.32 by Dave
To cut a long story short, psoriasis ruined my life when i was just a teenager.

Hi, Scotty. It's a nuisance with the application of creams i agree. The last UVB course i never waited more than 10 minutes to be seen, i was in and out in 15 minutes mostly. Maybe your hospital needs a kick up the backside. As for systemic treatment, mentioned by Josh, this is a last resort rather than something which patients can pick and choose to suit their lifestyle. There are many terrible side effects and i don't envy those who have no choice but to take tablets. I thought feel it's worth stressing the point, what might seem inconvenient, might be a hell of a lot better than the alternative. Dave

Posted Thu 11 Jul 2013 06.21 by tweeks258
Knees and elbows

Hi. This is my first post. I would have started a new one but can't work out how and will probably "reply" to several as I would like to share my recent experience. Like you I find the creams inconvenient. My own psoriasis is (so far) confined to my elbows and knees and appeared shortly after I was diagnosed with Type 2 diabetes c.2000. I'm not going to claim to have found a cure but would like to share an experience which has helped me and which I will pursue further. I injured my left knee in December 2012 and started to wear a neoprene support during the day. I noticed that after taking the support off before retiring for the night that the whole of my knee area that had been covered was moist and that some of the dead/dry skin was sticking to the inside of the support. Over the next few months (and using several different neoprene knee supports to allow laundering), I noticed that the psoriasis symptoms on that knee were reducing to the point where I now (July 2013) consider it to have "cleared up". I stopped wearing the supports a couple of months ago as they were not helping my knee (meniscal cartilage tear), but the psoriasis signs have not yet returned. The other knee and both elbows remain as affected as before, so I am going to experiment with the neoprene support on my right knee and get some smaller ones for my elbows. The neoprene fabric seems similar to that used for diving gear. I assume it is working in reverse and keeping the body's water in rather than keeping the ocean out! I bought the support from the medical section of a Pound (type)-Shop, but also bought one with Velcro straps from my local Aldi when they had one of their Sports promotions. In terms of the psoriasis benefit the cheaper neoprene "sleeve" type functioned as well as the Velcro strapped version, but neither was expensive and anyway were being purchased as knee supports not psoriasis cures! I have no idea if my experience can be repeated with others whose symptoms match mine, but felt I had to pass it on. My GP has not heard of this before, but perhaps the combination of psoriasis, knee injury and neoprene has not occurred before? Good luck to any who try. Tony

Posted Sun 15 Sep 2013 22.30 by Lauram9906
Been in and out of derm ward for months at a time was on cyclosporine which didn't work for me I'm now on sub q injections

Hi all this is the first time I've been on this website,it's very reassuring to read that I'm not the only one suffering from severe Psoriasis . Scotty the treatment id recomend would be methotrexate (subq). It has been a god send for me as I have tried almost every steroid and moisturiser possible, I was even admitted to derm ward for seven weeks where they tried light treatment with no luck I was then started on cyclosporin which was ok at first but p started to creep back although methotrexate is a powerful drug u are closely monitored and for me a blood test once a month is much easier than messy time consuming treatments that hardly make a difference anyway speak to ur derm consultant and trust me u wont regret it hope this advice is of some help because at the end of the day we all no how quickly p takes over ur life :)

Posted Tue 17 Sep 2013 20.58 by jellyfish
I have been affected badly by my psoriasis which started in childhood and worsened in my teens, I have also got the arthritis which can come

hi its my first time on forum, it is a chore applying cream everyday. is there anyone out there who has pso and pso arthritis and who is also a single parent ? I am 35 and had undiagnosed p.arth since teenager finally got diagnosed when I had awful post pregnancy flare up 3 years ago , got it in knees, ankles and wrists have been told to start methotrexate - don't want to because I fear side effects will make childcare harder, also fear of losing hair - help !

Posted Sat 28 Sep 2013 13.49 by babsrose
Now 73, have had psoriasis since I was six. Since I was 25 years I have been able to keep it at a minimum but constant awareness is key to

Absolutely Scotty89. Mind you the various ointments and creams are so much better than the old treatment of smelly brown coal tar ointment. This was terrible so much so one had to bandage over the areas where applied to avoid staining clothes, bed linen etc. Unfortunately todays treatments are also not condusive to 'life' in general but one just has to get round it and keep applying the treatment. Like one's beauty treatment, never miss a day. It does pay off and will reduce your patches. I know as I have said in my other comments I have had psoriasus since 6 yrs now 73 and I keep going. Of course now I worry how I am going to cope when I am really old and feeble.

Posted Mon 2 Dec 2013 20.16 by Amandine
Plaque Psoriasis since childhood, now nail psoriasis, psoriatic arthritis, eye problems, the full monty really!

I have found creams make it worse, ointments are best - something to do with the water content in the cream drying and causing the skin to dry more, whereas the ointment seals in the moisture. But neither are convenient I agree - but then how convenient is sitting in your office scratching, then when you get up you realise there is a trail of dry flaky skin around your chair! Lesser of two evils I say.

Posted Thu 5 Feb 2015 13.47 by mark.stilman@gmail.com
Ive had psoriasis in many areas in my body

Try Soratinex. seems very effective and clears Psoriasis for a long time. Only one that worked for me. Bought it here http://www.soratinex.eu good luck

Posted Mon 27 Apr 2015 16.35 by jonholland
Have been suffering with it for just under 20 years. Lower legs quite severe, upper and lower arms and back,

I know you posted this some time ago but I agree. I found the various creams so annoying staining clothes and chairs that I often just gave up using them for extended periods. The light treatment was a bit of a farce. Travel for 30-40 mins to the hospital each way for, at first, 5 seconds of light....then 10 and then 20 seconds....nonsense. However, the last 8 months I have been applying the creams regularly. I have 2 sets of psoriasis clothes which I wear a short while after putting the creams on. I get up early and do all the bits I can reach/see. An hour or so later I have a bath. In the evening my wife does my back (which is the main bit that drives me loopy with the itching) and I do the rest and then sit there letting it soak in, before donning my psoriasis clothes. I try and get out in the sun when I can though. I posted elsewhere but I have been taking Curcumin pills (basically turmeric) pretty regularly over the last few months and my Ps symptoms are in remission - first time in many many years.

Posted Sat 7 May 2016 18.49 by irishgeoff

Have you tried roscara ? <a href="http://roscara.com">Psoriasis Cream</a>

Posted Sat 7 May 2016 18.54 by irishgeoff

Have you tried roscara <a href="http://roscara.com">Psoriasis Cream</a> ?

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