Posted Sun 15 Jun 2014 19.20 by Katiejane I used to be covered from head to toe in plaque psoriasis inow have humira injection and all has cleared I now suffer with pustular psoriasi
Does anyone else suffer with pustular psoriasis? I have plaque psoriasis which I'm on the humira injection for could it be this causing it? I have read that it is autoimmune and I do suffer with other autoimmune conditions but its getting me down I'm so embarrassed by this in shops when people give me change they look at my hands funny I seem to have controlled the plaque psoriasis and now got this but it's so painful to the point I'm not able to drive cause bending my hands hurt and it's painful to walk!
Posted Sat 21 Jun 2014 18.11 by jenny40 I have pustular psoriasis which i find hard to control
I am suffering from the same condition, i have been off work constantly with this, tried all sorts of creams, nothing seems to ease it! I am undergoing PUVA (phototherapy) at local hospital but i am only on my second treatment. I use white cotton gloves when im driving ( i get embarrassed as it is so warm outside. Ps im in scotland
Posted Wed 23 Jul 2014 10.14 by saintsfan
Sorry to read you're having such a rotten time with your psoriasis. I don't know about humira specifically but think there can sometimes be a problem with biologics triggering or exacerbating pustular psoriasis.
If you haven't already it's probably worth having a word with your consultant about it. Pustular psoriasis is a pain in the fullest meaning of the word. As far as I'm aware it's unfortunately one of the most difficult types to manage so it may end up having to be a really difficult choice between sorting out the plaque psoriasis with humira or the pustular psoriasis.
If you're dr isn't too sure I'd contact head office. They have great info and you might need to see someone at a very specialist unit especially as it's impacting walking and driving.
In the meantime, don't know if an old fashioned salt bath (or hand and foot soak) might help - rinsing salt off afterwards of course! Or a bit of lavender oil in a bath helps when mine is very sore.
Sending you lots of best wishes.
Posted Tue 2 Sep 2014 20.15 by tfortara I have had plaque psoriasis since the age of 12 and following some traumatic teenage years it eventually settled down to a managable level i
Just been diagnosed with pustular psoriasis and am awaiting PUVA treatment. I have a cuff of it round each ankle so when it flares up I find it hard to walk as my ankles swell up and I can't fit normal shoes on. I have plaque psoriasis since I was 12 and after a few troublesome teenage years I have manage to keep it relatively under control. It was after a bout of cellulitis last year that it seems to have morphed into the pustular variety. I am finding it really debilitating as I am used to being fit and able and this is just affecting everything I want to do. If anyone has any hints or tips on managing this, please share!
Posted Sat 18 Oct 2014 19.11 by elmashoak All over body (not all at once) now pustular. have been on Infliximab for 5 years, now on Humira (Adalimumab)
Hi all, I have had p for 40+ years and up until October 2013 it was quite severe plaque p. I have been on Infiliximab for about 5 years, it worked really well until I got a chest infection in August 13. I didn't really take a lot of notice that by September 13 I was getting quite a few small pustules on my legs, October 13 I was on holiday and all hell broke loose, my legs, feet and hands became almost completely covered in pus filled spots. I couldn't wear shoes, I got an infection in both feet, my legs swelled up and I couldn't walk. When I got back from holiday I went to see my consultant who gave me 2 injections of Humira (adalimumab). This slowly got me sort of back to relative normality (if there is such). Since then, I have had extreme pain from cracks in feet and lots of bleeding. My consultant put me on a long term course of antibiotics, these didn't seem to change anything.
My latest problem is I am getting painful spots on my legs and occasionally, very painful pus and blood filled spots on the soles of my feet. Last week one of the spots on my leg turned very nasty and I ended up in A&E, the doctor put me on 1 gram 4 x per day of Flucloxacillin, quite a high dose! This cleared up the nasty one but I am still getting potentially nasty painful spots every day. Does anyone know what causes these spots? are they "just" pustular p?
My next challenge is I am going in hospital in 4 days to have my tonsils removed so I have had to stop the Humira injections. Ironically (so far) the psoriasis has not got any worse without the Humira.
I am also wondering..... without my tonsils, could this change my immune system and make my psoriasis any better!!??
Any comments would be most welcome. Keep smiling Dave
Posted Mon 9 May 2016 11.03 by Tgdn On my hands and feet first time 3 months ago(age 48).
Hi there I had same psoriasis as u I think because I' ve tried and stoped humira for my bone condition and as result after three weeks(3 months ago) I've got pustular psoriasis on my hands and feet,for the first time (I m 48).15 years ago had an episode of excema on hands and feet since than a bit of dry skin on soles of feet for which any moisturiser worked.long story short now I have outbreak of psoriasis which was only made worse with steroids(topic and oral) and I've stoped them few weeks agoand started to use Bria organics balm(after trying everything else) and happy to say with very good results(psoriasis gone).but still dealing with steroid withdrawal(red skin,itchy,splits and fissures but even this is going away and getting every day better and better.so Bria organics balm(u can only get it online expensive but worth every penny),supplements fish oil(I've always used it even before this),vit.D and turmeric.they work for for me,it's worth a try especially the balm(no more painfull and split skin on my feet).sorry for long and overdrawn post
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