Hi Billy
I have it on my scalp, and thought i would reply to you, i know it is hard and it has upset me to know you are depressed it is awaful, I do know what depression is it has nearly killed me over last 5 years and it will not help with the psoriasis at all, Bily try i know how hard it is to relax as best as you can even if you try a computer game to take your mind of things failing that get a large gigzaw puzzle have a nice deep soke in the bath with very little chemical in maybe the doctor can give you something for the bath, get out and start the gigzaw on a large table or floor were ever you are comfortable concentrate on doing that at least it will sway your mind from the depression and hae some mellow music in the back ground, i could brake my heart for you keep your chin up and may the lord above bless you, in my prayers this evening
Yours Sincerly Vitoria UK
Posted Sat 26 Jan 2019 03.42 by anneshrew
Billy, I have also felt this way for a long time, and am so sorry to hear you're feeling the same :( I hope you can take comfort knowing you're not alone in this - and closer to you than you might think! - From a fellow Belfastian
Posted Sat 26 Jan 2019 05.02 by Belfast billy
I can't even work my phone às it's a touch screen
Posted Sat 26 Jan 2019 09.15 by victoria
Hi Billy
How awful for you. I wish I could give some words of advice to you. Boil all drinking water and keep in glass bottles in fridge for a start, you need something to bathe in please consult GP this is not good at all . The central heating is making my scalp worse but what do you do freeze . Try and get out in garden bit of fresh air when you can. Feel for you and Anneshrew god bless you both in my thoughts
Victoria
Hey Billy have you been referred to a dermatologist?
When mine was all over I bathed with emollient in the water which was prescribed but I believe you can buy it in most pharmacies. These eased the itching and the pain.
I also received twice weekly UV treatments at the hospital. This cleared up my psoriasis nearly completely. If you can't get prescribed this then some trips to the sun bed would probably work a treat.
Hope you get some relief soon
Posted Wed 6 Feb 2019 19.27 by Sarucia
Gosh your an amazing bunch of people!! Psoriasis is such a difficult thing to live with...I have psoriasis on my scalp and have baldness from it...things that have massively helped are: low or no central heating, no alcohol, cutting out meat and dairy... Putting Sweet Almond oil on my scalp for 30 minutes before using nizarel shapoo/ t gel...and the biggest surprise has been Body shop Ginger Conditioner..totally soothes my scalp and itching minimal...I would recommend. X
Posted Thu 7 Feb 2019 12.10 by Scoobyw
Hi Billy,
I am 43 and too am covered head to toe (around 70%) and it has become unbearable to work, sleep and socialise. The anxiety, stress and depression I feel is immeasurable! I teach and play music but cannot begin to think about facing people in public or in work.
My flare up started in September 2018 and had knocked me for six, still waiting to be seen by my local hospital, they have said mid April, just sit at home covered in hydromol cream which does very little.
I find it painful and uncomfortable to wear clothes so I sit in shorts at home. I sometimes drink to excess which helps with the pain both physically and emotionally, however only in the short term.
My teaching is part time and will soon end as I can’t work and they are demanding a fit for work meeting which I physically cannot attend, I live in Newcastle which is a Universal Credit area so no chance of support there, feeling close to the edge!
There is not much light at the moment.
Posted Sun 10 Feb 2019 23.38 by Vickie
Try biological med's they were the only thing that worked for me had head to toe as well now only hands and feet also have PA. I know the pain your in both physical and mental, I've been there have had for over fourth year now and through it all I tried to stay up and know one day will be better than the last took a long time to find what would work for me. Keep your chin up and don't give up on the fight God put you here for a reason, mine was for my son. You will find your reason to. Come out of the darkness and into the sun life is and can be so good you will see just try. Stay strong and I am praying for you
Posted Wed 20 Feb 2019 13.56 by Karenlouise15 I used to be so confident and outgoing but now a shell of my former self due to psoriasis
Aww I really feel for u Billy , I’m covered in it and I feel so self consious and embarrassed about it I work for the nhs and daily I get asked “ ooh what’s that on ur arms n hands looks nasty “ by patients , it’s massively affected my social life and I can’t see me ever having another relationship again as I feel like a leper. Have u had puva treatment I started that last year 3 times a week for a while and it did smooth the patches but the burning and itching was bad so had to stop it I’m seeing my dermatologist end of March and going to ask about biologics.
Hope ur ok x
Posted Wed 20 Feb 2019 17.14 by Lou
Hi I feel just like that mine has really flared up, and trying to put cream on only the effected areas is a nightmare,not enough hours in the day 😪 all round my ankles are so sore I’ve just made one bleed where it was itching so much.. wish my appointment with the dermatologist would hurry up.
Posted Wed 20 Feb 2019 20.20 by Belfast billy
I've had all the creams and light therapy now am on acitretin last resort it seems can't sleep cause of the constant itching soles of my feet bleed the only place I don't have it is my face don't want to go out or go to work and can't remember the last time I laid with a woman life certainly can't get any worse
hi billy.
I have tried light therapy and acitretin too. I suffered all over my body apart from my face. All over my back, legs, arms. The acitretin should work to a point, but it did take some time. It makes things less red.There are a few side effects such as mood swings, dizziness and sickness. My dermatologist put me on Cyclosporin about 12 months ago. It has worked incredibly well. last summer I wore shorts and had my shirt off. I know however this is something that the dermatologist has said I will be unable to take long term. The main problem is monitoring blood pressure, and it has made my joints ache. I have got down to the lowest dose, and a few patches have returned, but nothing like what I was in 2017. When you next see your dermatologist hopefully going on this may be the next step for you. I am due back in march, so they may change my medication then, but I can recommend cyclosporin.
Posted Fri 22 Feb 2019 21.05 by Shazz
Billy. I live in Belfast too. I hate my psoriasris. Soles off my feet has to be the worse.
I'm being referred for light therapy. I could go on and on about my psoriasris, maybe talking helps. Like you I'm so glad its not on my face.
I don't know if we can but you ,I and anneshrew are from Belfast. Meet up , compare psoriasris and chat, compare what works or doesnt
Posted Fri 22 Feb 2019 22.18 by Belfast billy
I'm from Belfast but l live in Norfolk England but if you want to visit I do have plenty of room x
Posted Fri 22 Feb 2019 22.24 by Shazz
Billy. Do you not have pills to help with itching? Dermatologist gave me fexofenadine hydrochloride. Helps when I take them.
Posted Fri 22 Feb 2019 22.27 by Shazz
Why did you leave Belfast?. You must have found love
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Posted Fri 25 Jan 2019 10.05 by Belfast billy
1
Posted Fri 25 Jan 2019 10.39 by victoria
Posted Wed 20 Feb 2019 13.56 by Karenlouise15
Posted Wed 20 Feb 2019 17.14 by Lou