3rd round of UV light therapy failed

Hey buddy i feel your pain I’m the same I’ve had it bad for 10 years after a MountainBike accident and it just kicked in. light is the only thing that works for me. My first amazing, second not as good as first and the third the same as the second. Ive tried ciclosporin and methotrxate they were horrible i had loads of side effects, real shitters 😡 Ive just bit the bullet and brought a second hand sun bed for £50 and purchased 10 phillips TL 01 tubes for it and self medicate light therapy as they do, start small doses and get longer through the weeks. get clear then two times a week do a 30sec blast two times aweek to keep it topped up. costly at £79 a tube but had enough of my self confidence on the floor, just had my first go on it tonight 👍🏻👍🏻 Probably no help whats so ever.. keep your chin up jack.

Ah glad that seems to be working for you! Have you had better results on the sunbed at home than you’ve had at hospital, or pretty similar? I’m reluctant to try as light therapy doesn’t really seem to be working for me anymore 😒 Was hoping to try something more systemic but the side effects do seem horrific for some 😩

I'm 17 I've had P since I was 10, the first 6 years were the worst as I had very few treatments available but now I am near an adult more options have occurred. I'm currently on a base load of acitretic which prevents flare ups which I then treat as needed with betamethasone aerosol and emollient aerosol. I was also suggested PUVA which is apparently quite effective. Because of how the NHS works I only get so many light treatments in my lifetime I'm trying to save them for the future.

Had severe psoriasis for 46 years and i can honestly say i tried almost every treatment there is including herbal options. The only things that ever helped me were 6 month spell in Dubai working in sun and swimming in sea everyday it cleared up totally but came back within a month of returning to UK PUVA always worked but would often take 5 sessions before results were apparent then there was not the restrictions ,there are now and i have received 3-4 times what would be allowed now. Always cleared it up but would return within a couple of weeks of ending treatment. Mine was severe hands face and whole body but two things i recall in the early days it took years for doctor to diagnose it . When i finally got to see the specialist he admitted me to hospital two days later. In those days it was lay under a sun bed but it worked And for the scalp which was quite bad the old coal tar treatment. Well after six weeks in hospital i was sent home continued light treatment as out patient. Twice a week for years Strangest thing 35 years after the coal tar treatment i have never had it on my scalp again. Other strange thing and it was accidental and not very clever , i got home sunbed had same effect worked but you need to change tubes at recommended intervals. I fell asleep and badly burnt my back and its never returned there 30 years later. Having reached maximum PUVA many years ago and tried every treatment there is specialist was at a loss been same Doctor for 30 years . Then i read about Embrel we had a year long battle with NICE and they refused to put it on approved list then. Couple of years later they offered me the chance to be one of the first to try it .After reading all the possible side effects and taking into account my quality of life i took the leap. After the first month it was 95% improvement, after about a year it seemed to loose its effectiveness so they put me on the larger dose been on it 5 years + no problems only odd cold no side effects . Would say 80_90% improvement Then out came generic version and i was switched cost savings after a couple of months i got a few side effects and have now been switched to original Enbrel. I can honestly say bar the couple of occasions mentioned above it has been the best five years required least time. one hospital visit every 3 months/ and least expense as it is provided free. Its not for everyone and can have some serious side effects but it really is worth researching and considering if you have severe psoriasis

In October last year I invested in a uvb canopy at quite a considerable cost. I have had P for about 30 years and for probably for over half that time used Dovobet & Betnovate to suppress the itching and scaling. I use the UVB canopy 4 to 5 times a week, gradually increasing the time under it. At the moment after 3 months I am just about clear, I havent used the Dovobet since the end of November and hope i dont have to return to it, I will do twice weekly top ups of UVB and see how that goes for a few months Paul

I have suffered for 55 years and in the last 20 have had UVB, PUVA and narrowband. All were initially successful but my last 2 significantly less so; ditto the effect of summer sunshine which at one time I could always rely on.. The consultant has said I can have one more series of treatments but recommended that I try acitretin (hair fell out but psoriasis remained) and now methotrexate ( solved plaques on face, scalp, ears and under nails but rest not budging) instead. Not a helpful response, I know, other than to confirm that you are not alone in what you have experienced.