Scalp driving me nuts - what about Otezla

Posted Sat 22 Aug 2020 21.48 by Half Pint

I think I must have shares in dandruff shampoos on the market. The GP has given me every topical cream, ointment and coal tar shampoo in the universe. OK so I am over reacting a bit but my scalp burns, feels as though someone is sticking pins in me - then I start to scratch and can scratch for hours, do not sleep as I am constantly scratching. Large scales, constant itching, dare not wear any dark coloured clothing. I see a dermatologist on Monday and wonder if anyone has has success taking Otezla as I have seen really positive feedback on line? Has anyone had a good response to taking otezla?

1 Posted Mon 24 Aug 2020 14.16 by OhNo_NotAgain?

I had good results using Alphacade PRO . ordered from https://www.cocooncenter.co.uk/item-dermatologie-alphacade-shampoo-pso-severe-cases-of-dandruff-200ml/14313.html shop around, prices can vary. It almost immediately stopped the itching in my scalp, and very soon stopped the flaking as well. It did not feel at all harsh on my hair and has a pleasant smell.

Posted Mon 24 Aug 2020 22.50 by Half Pint

Many thanks. Because of recent mastectomy there are no medication that is safe to take for 5 years and my problem is not serious enough. Only scalp and fave. Now to try dovonex!

Posted Wed 26 Aug 2020 10.13 by OhNo_NotAgain?

Alphacade PRO is simply a shampoo, active ingredient is salicylic acid.

Posted Wed 26 Aug 2020 16.19 by WelshChappie (edited Wed 26 Aug 2020 23.06 by WelshChappie)

My scalp is the only place that psoriasis remains and regular flare ups. The most effective Topical Gel I find for my scalp flare ups is: Eumovate ointment: Clobetasone butyrate. (100g tube, too!) I kid u not, even a bad or more severe flair up on scalp is Brought under control in two or three days, for myself anyway. I personally cant recommend this gel more highly. This one is made soleiy & specially for the use on head and scalp. (skin is thinner on the face and scalp than the rest of the body so corticosteroid creams such as Dovobet are not good at all go use over extended periods of time. apparently they will end thinning out your already less thick skin over time.

Posted Wed 26 Aug 2020 21.30 by Half Pint

Thank you it is a relief to hear that there is relief out there. I really do not feel that my scalp problem was looked at seriously as it is only my scalp. When you live with it it is very distressing.

Posted Wed 26 Aug 2020 22.25 by WelshChappie (edited Wed 26 Aug 2020 22.48 by WelshChappie)

I too (Tohch Wood) now have it on my scalp but when I first had it come on it did ao all over, arms, legs and usual elbows etc. Now it's on scalp only and I've got the Eumovate Gel along with my dark green Alphasil Coal Tar 'Scented' shampoo! Yep... Scented! Yeah, if they mean with Oily Coal Extracts, then yes. My concern is not how lovely it smells, but rather, who discovered that Coal Tar oil was successful in slowing skin cell production and therefore, favourable for trestinf psoriasis? I mean.... Who? *...... How?...... Why??? Someone Must have gone through a whole lot of random self help attempts at, we'll, everything before one day Joe Bloogs decided... No time like the present to start diving head first into masses of coal and the rest, as thwy say, is History. 😉 No but, serious.... I would also say try to see the glass half full, not half empty, Yes, it's irritating and doesn't look the coolest symptom on Earth, no. However, if you happen to know or meet another person who has, I dunno, skin cancer, Or a 3rd degree burns victim over 70%0 of their bodies, kinda feel like my psoriasis being a bit irritating and itchy.... Could be a lot lot worse!. 👍👍

Posted Tue 1 Sep 2020 09.34 by SharonG

Have you tried Cocois? Google it. Cocois (Coconut Oil Compound Ointment) Patient Information Leaflet: Cocois® Coconut Oil compound Ointment Coal tar 12%w/w, Salicylic acid 2%w/w and sulphur for external use 4%w/w Read all of this leaflet carefully because it contains important information for you. This medicine is available without prescription. However, you still need to use Cocois carefully to get the best results from it. Keep this leaflet. You may need to read it again Ask your pharmacist if you need more information or advice You must contact a doctor if your symptoms worsen or do not improve. In this leaflet: 1. What Cocois is for 2. Before you use Cocois 3. How to use Cocois 4. Possible side effects 5. How to store Cocois 6. Further information. 1. What Cocois is for Cocois contains coal tar, salicylic acid and sulphur for external use. Coal tar and sulphur are mildly antiseptic and relieves itching. Sulphur also has an antifungal action. Coal tar, salicylic acid and sulphur help to reduce the excessive hardening, thickening and scaling of the skin. Cocois is for the treatment of dry scaly skin disorders of the scalp such as psoriasis, eczema, dandruff and other inflammatory conditions causing irritation and scaliness. 2. Before you use Cocois Do not use Cocois if: You are allergic to any of the ingredients in Cocois (see section 6) You have any acute infection of the skin You have broken or infected skin You suffer from any form of psoriasis which causes the appearance of blisters filled with pus (acute pustular psoriasis). If the patient is under 6 years old. If any of the above applies to you talk to your doctor or pharmacist. Warnings and precautions Talk to your doctor or pharmacist before using Cocois. Do not smoke or go near naked flames - risk of severe burns. Fabric (clothing, bedding, dressings etc) that has been in contact with this product burns more easily and is a serious fire hazard. Washing clothing and bedding may reduce product build-up but not totally remove it. Tell your doctor if you are taking any of the following medicines: Any other medicine, including medicines obtained without a prescription. Pregnancy and breast-feeding Cocois Ointment should not be used during pregnancy or if breast-feeding. 3. How to use Cocois Follow these instructions about how to use your medicine. If you are unsure about anything, ask your pharmacist. Remember: Avoid any contact with your eyes and mouth. Cocois may stain clothes and jewellery. Care should be taken to protect or remove these before application. Cocois should only be used under medical supervision in children aged 6-12 years. It is not recommended for use in children under the age of six years. Do not use Cocois if the tube membrane is broken. Instructions for use Pierce the tube membrane by inverting the cap. Attach the scalp applicator to the threaded portion of the tube. Part your hair and apply a thin ribbon of Cocois to the affected areas of your scalp. Take care to avoid contact with your eyes. Gently rub in the ointment and leave in contact with the scalp for approximately one hour. Wash your hands afterwards. After one hour, Cocois should be shampooed out of the hair with warm water. Take care to avoid getting the application in your eyes. Always wash your hands immediately after use. In severe scaly scalp conditions, it is usually necessary to apply Cocois daily for three to seven days until control has been obtained. With mild scaliness, use intermittently as necessary, e.g., once a week. If, after the first week, the condition does not improve, or symptoms persist after four weeks, consult your doctor. If you accidentally get Cocois in your eyes, wash it out immediately with plenty of cold water. If your eyes become irritated, talk to your doctor or pharmacist. If you use more Cocois than you should If you use more Cocois than you should it is unlikely to lead to any serious side effects. If you accidentally swallow any Cocois, immediately tell your doctor or contact your nearest hospital casualty department. 4. Possible side effects Like all medicines, Cocois can cause side effects, although not everybody gets them. These include: Irritation of the skin Inflammation of the hair follicles Acne like eruptions Hair loss Discolouration of skin and hair A rash from sensitivity to sunlight. This is rare. If you have asthma or if anyone in your family is allergic to asprin, Cocois may cause difficulty in breathing or tightness in your chest. This is very rare. Reporting of side effects If you get any side effects, talk to your doctor or pharmacist. This includes any possible side effects not listed in this leaflet. You can also report side effects directly via Yellow Card Scheme Website www.mhra.gov.uk/yellowcard or search for MHRA Yellow Card in the Google Play or Apple App Store. By reporting side effects you can help provide more information on the safety of this medicine. 5. How to store Cocois Keep this medicine out of the sight and reach of children. Do not use after the expiry date shown on the label. The expiry date refers to the last day of that month. Store between 10°C and 25°C. Medicines should not be disposed of via wastewater or household waste. Return all unused medicine to your pharmacist. 6. Further information What Cocois contains: The active ingredients are: Coal tar 12%w/w, Salicylic acid 2%w/w and sulphur for external use 4%w/w. The other ingredients are: coconut oil, white soft paraffin, cetostearyl alcohol, glycerol, liquid paraffin, polyoxyethylene glycerol monostearate, hard paraffin What Cocois looks like Cocois is a buff coloured ointment. It comes in aluminium tubes with a plastic cap. It is supplied in 5 g, 15 g, 40 g or 100 g tubes. Not all pack sizes may be marketed. Marketing Authorisation Holder RPH Pharmaceuticals AB Lagervägen 7 136 50 Haninge Sweden Manufacturer Bioglan AB PO Box 50310 S-202 13 Malmö Sweden This leaflet was last revised in May 2019. If this leaflet is difficult to read and you would like it in a different format, please contact RPH Pharmaceuticals AB Lagervägen 7 136 50 Haninge Sweden 911379

Posted Fri 18 Sep 2020 13.37 by falguni

Well, I have stopped taking external medications, because many of them are used to suppress your immunity or have various side effects. So, I just started taking omega-3 fatty acids supplements a month back and my scaling and itching reduced. I hope it helps.

Posted Wed 4 Nov 2020 01.49 by SLH

We have used Aldi’s organic pure virgin coconut oil on my grandson’s awful lumpy scalp. My daughter massaged it in almost daily. He sat about 30 minutes with a cute sharks head shower cap while it soaked in and then she gently combed his hair loosening and lifting the scales and then gently washed off the oil in the bath - it was gone within a month.

Posted Thu 5 Nov 2020 08.56 by Lynette

Hiya, I really feel for you because at times my scalp used to be so bad. On top of your current treatment, I used to warm up olive oil - a fair bit of it, and pour it onto my scalp and hair at night. I would immediately wrap it in lots of cling film and follow that with a hand towel. After an hour, I would use my fingers or a gentle comb to lift off the plaques one by one and comb them out. It would take quite a while but it felt so good to get something warm and natural to loosen the psoriasis. I would wrap up the hair again, put on the towel and leave it on to sleep with it on. In the morning, I would wash my hair twice, comb out all the plaques again and apply a really good conditioner to the hair from the nape of the neck downwards. I would never leave the product on my hair. It used to make my hair shine beautifully and all psoriasis would be gone. I kept doing this until the head plaque eventually stopped and it did! I wish you the very best of luck with it. Kind regards, Lynette

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