Hi everyone,
I am in hope of starting my Phototherapy next month and trying to hear about as many peoples experiences i can. If you have had light therapy and would be kind enough to let me hear your experiences that would be great.
Thanks all
i had light therapy PUVA a few years ago and had to take medication a few hours prior to treatment to make me light sensitive , the tablets however made me violently sick and i could not continue after about 8 months , it did work in the short term but as soon as i stopped it was back
I also had PUVA some years ago, had to take medication and wear glasses afterwards for a couple of hours. As I was working, I had some sunglasses made so I didn't have to wear their goggles at work! It worked really well for me - and I got a tan. I used up the amount you are allowed in a lifetime and had to stop and of course it came back.
Posted Thu 1 Apr 2021 15.17 by Moggy1
I am also hoping to start light therapy shortly and heard people have had excellent results but everyone is different. I have been told you can either take the tablet or bath in a solution so maybe if the tablet upset your stomach you could try the bathing option. It a big time commitment but I understand it going to be 6 weeks 3 times a week ,8 months sounds a very long time.
Good luck hope it goes well keep keep us posted
Hi, I recently finished a course of light therapy uvb 1 had 28 sessions as that is the max that NHS will fund each year! It was amazing for me I was covered in April last year never had it before started light therapy in December and finished a few weeks ago. The good news I noticed a difference after the 1st 2 weeks, I started to have less scales the itching was not so bed which was intense! At the end of my sessions I was basically clear all that was left behind was a few shadows of where the psoriasis had been I did have a few areas that were still slightly raised which were my worst parts but they said that I was clear I asked for a couple more sessions just to make sure but they said that I didn’t need it. Bad news is that just two weeks after the areas that hadn’t completely cleared have now started to flareup. I have use this forum and have now made the decision to purchase my own bed I know they are expensive but it’s worth spending as far as I’m concerned I don’t want to go back to where I was a few months ago. However I’ve had many people stay clear for years after light therapy so I hope for you my sweetie that is the case for you 😇 x
Posted Fri 2 Apr 2021 20.27 by Moggy1
Yes I have also heard of many people who have stayed clear for many years my friends husband was 6 years clear . So stay positive and believe you will be one of those who goes into remission for a long period. I live in West Yorkshire and I have tried to find private phototherapy but haven’t been able to as I and I believe others would be willing l to pay for top up treatments.
Good luck
Posted Sat 10 Apr 2021 17.01 by V62
I have had both PUVA and Narrow band UVB. Both nearly cleared my skin but I have never been without psoriasis in 39 years. However I was very happy with the result which kept my skin reasonable for around 2 years before the deterioration really set in. Of the 2 my understanding is narrow band is considered the safer treatment. (Less risk of skin cancer)
There is a limit as to how much light therapy you can have in your lifetime so I have really tried to stretch mine out. I found using Aloe Vera on my skin afterwards helped to take any heat out of it and moisturised it.
If you are having the UVB treatment I listed to music as it helped me know how long I was in there and made it more bearable especially once the time goes above 5 minutes.
Good luck I hope it works for you.
Absolutely no way I would have that without my goggles on. I had goggles and closed eyes. I never opened my eyes until the machine switched off! I think as your skin clears it just starts to calm down everywhere. I have psoriasis everywhere so my scalp improves even though my hair is covering it.
I would strongly challenge the advice by that individual/ their colleagues/boss.
It’s your body - do what feels right for you.
Posted Sat 10 Apr 2021 21.13 by DorothyMac
I'm thinking of buying a mini-lamp or hand held UVB light as my psoriasis isn't responding to anything else and is almost unbearable under my chest - does anyone have any recommendations or experience they'd be happy share here? Many thanks
Posted Mon 12 Apr 2021 18.53 by Moggy1
I am also thinking of buying a hand held lamp
Can you use and take acitretin?
Does anyone know ?
Posted Mon 12 Apr 2021 18.56 by DorothyMac
I don't take anything and am hoping the hand held lamp will be enough - email from supplier saying it's on its way!
Posted Fri 16 Apr 2021 11.37 by jpd
I bought a unit from uvblampsuk.com, it works, It cost £850
Posted Thu 1 Apr 2021 15.01 by Patchhy99
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Posted Thu 1 Apr 2021 15.06 by scarletsmummy