Erythrodermic Psoriasis Help!

I'm 24 years old and writing to you from my hospital bed. Before January I had never really had psoriasis before other than the odd patch of dry skin. However, since Jan 2022 that has sadly changed. On the 20th December 2021, like many others, I went and got my booster vaccination like many others. For the first couple of weeks, things were fine. I had no issues or side effects.  On the 17th Jan I sent pictures to my GP of some small but quickly spreading scales. I was given some hydrocortisone cream and paraffin and told to keep the skin well lathered to reduce the spread. At this point I was still working in retail, but the psoriasis continued to grow out of control into large thick scales that covered my lower legs, forearms, face and scalp. After having numerous conversations with the gp practice over the AskMyGP app and calls to NHS 111 to try get my appointment rushed through, a receptionist felt so sorry for me after seeing my pictures that she bumped me up the waiting list for a couple days time. Again, I went to the GP and was prescribed more steroid creams and tubs of emollient. Showing what I think is quite a lot of mental fortitude, I followed the instructions to the letter on my own at home for the next couple of months. Yet my symptoms continued to get worse and worse. The psoriasis changed from large scales into fiery red planes of flaky skin. This became unbearably sore and itchy. No cream nor tablet I was given from the GP - and believe me, there were so so many types - did it's job and I had to start claiming sick pay, staying home to apply greasy, uncomfortable and itchy creams all day.  Once again, I went back to the gp and finally it felt like I was being taken seriously as a patient. My GP was able to refer me to the dermatology clinic and I was given an appointment the following day (which I appreciate during a pandemic is a miracle in itself). I struggled to walk to the clinic but got myself in the door. Sadly, the first couple appointments I was given yet more steroid creams and emollients which did absolutely nothing. I continued to decay until over 90% of my body was covered in the red, angry psoriasis. I began to have terrifying episodes of the shivers combined with burning hot skin, I would lose circulation in my fingers and toes and they would turn blue. After many long discussions over the phone, the following appointment I was admitted to the Western General hospital in Edinburgh on the 23 March. Almost everyday for 2 weeks roughly, a dermatology consultant came to see me, sadly, they kept prescribing the same unhelpful treatment, only reducing the strength of the steroid cream. At this point, I became aware that I would have to leave my flat to be with my partner who could better take care of me. However, she lives roughly an hour's drive away, meaning we'd need to find a new flat together, putting more pressure on myself and her. After the worst episode of the shivers (in which the nurses had to act quickly to reduce my skin temperature and increase circulation), a consultant finally decided I could take immunosuppressants, in this case ciclosporin. While the medication can be risky, I finally felt like I was getting somewhere. The psoriasis began to shed very quickly in massive amounts. A nasty side effect was that my skin became so tight, particularly around my face. I was assured that this was good progress, and I did start to feel better. One of the only drawbacks was the need to continue the steroid creams and emollients but I nevertheless persevered. On April 1 I was discharged from hospital, and I went to stay with my partner in her flat. For the next few days, my skin seemed to plateau at a point of dry, red and sore itchiness. I tried countless times over the next couple of weeks to get in touch with dermatology but nothing happened. Since the beginning, dermatology had assured me I needed no sleeping medication despite 3 months of no sleep. I still struggle now, every night I am awake itching and sore. This was perhaps the most frustrating part of my treatment because I understand that they can be addictive in the long term, but I need sleep to get better, and without them, I get nowhere. On 15 April, I had yet another shivering episode with blue digits, and I was sent to the hospital in my partner's hometown. After an approximately 12 hour stay, seeing no dermatologists, I was sent home with more creams and told nothing new. In fact, the dermatology department in Edinburgh were not even informed that I was in hospital to my own dismay. I was so frightened because I was told by a consultant in my previous stay that if this continued, I would lose weight rapidly and fluids to my body. I like to compete at a high level of sports, so learning how my body was damaging itself was unbelieveably distressing. Yet again, I struggled on home, and diligently applied creams and took my medication. While again not getting to the source of the problem, the doctors fail to understand the impact this was having on my partner as well as me. She spends a lot of her time applying my creams, sorting my meds, washing my emollient covered clothes, running errands to the pharmacy in Edinburgh for me, and staying awake with me at night while I suffered in pain. She deserves a medal for all this, something which nobody accounted for and for which she was given no support. After my symptoms decayed further, I contacted dermatology in Edinburgh, leaving 4 voicemails and receiving nothing until the evening of 20th April, in which I was told that I could come into the clinic for a review of my medications in a couple days time. Yet they continued not to promise any change in meds as they wanted to wait even longer to see if the ciclosporin would work better. I understand they have protocols, but I think that enough time had passed for me in severe pain and discomfort to know that it was not helping enough. Sadly, I never made it to the appointment. On the night of 21 April, my skin was so painful that I was yet again admitted to hospital via A and E. A 40 long minute wait in the queue and counting for NHS 111 was not acting fast enough for me to get treatment. After a short wait, I was triaged. I have been in hospital for 2 days now and still have not been seen by a dermatologist. I am at the stage where I flatly refuse to use steroid creams until I am 100% sure what is happening to my skin, and what the best course of treatment is. When I express frustration, all I get is empty "ohhh I understand where you're coming from" or "that looks so sore, I wish we could do more to help". The doctor here finally got in touch with the dermatologist in Edinburgh who has just blindly recommended that I just carry on with creams without even examining my skin. This is the point where I feel my mental fortitude can't go any further and why I write to you. These last few months have been the most trying of my entire life. The sheer exhaustion, both mental and physical, i worry have caused me long term trauma. 4 months of my life have been wasted by NHS bureaucracy and problems with staffing. I do not criticize individual staff by any means as they work so hard and do their best by me. But the system through which they work is so broken that it leaves people like me as sitting ducks, waiting for an infection or something worse to take hold before they are allowed to act properly.  My family and friends are worried sick, with no idea what to do to help or what to recommend. I'm at the stage where, even though I can't control it, I feel guilty about having to get people to chip in so much and help me. I hate being a burden, and this is how I feel now, as irrational as it is.  On top of all this, I suffer with OCD and Generalised Anxiety Disorder which means I can find it hard to process these kinds of changes to my lifestyle. Understandably I'm not in a great mental space at the moment, but I'm hoping posting on here will get it off my chest somewhat. Many thanks.