Chronic psoriasis, latent TB and Otzela!

I’m really sorry your feeling like this, it’s terrible to feel this way, i to know what your going through, it’s a vicious circle, the sleepless nights, not wanting to go out, not wanting to visit family and friends, It’s a bad bad repetitive feeling, the stress of not getting anywhere with medication, waiting for hospital appointments, all this makes it worse It’s took me just over a year to get Biologics tomorrow is my first injection. I have been on No treatment for over 12 months with my liver not coping with methotrexate, so I’m in a complete meltdown ATM It doesn’t help your mental health and I think this is what you have to strongly get across to your Derm I also have PA so hopefully my joints will start to improve Your a young mom with little ones, P is holding you back from doing all the fun things, depression and mental health needs to be addressed when you feel so low dealing with this. some can have P and walk around go swimming with confidence and there’s others who can’t, I was one of those, I had a lovely little job at my local school I had been there a good few years, then I had a really bad flare up, where it affected my hands, bad lesions open wounds, that was my final straw, I gave my job up my confidence was gone, I called it an early retirement, I hide my P well with my clothes, and I never let anyone know what I was dealing with at the school. but I just couldn’t do it anymore I really hope you get on the biologics and things will soon improve for you very soon Put your brave head on and stick to your guns, don’t be fobbed off. Xx. Every best wishes..

Hi Summer, i really appreciate your response. Methotrexate didn't agree with me either- tablets or injection. But amazing news about the biologics…..crossing everything that they work quickly. Please do let me know how it goes. I hope you dont think im being flippant but i am not surprised you took “early retirement”! This condition takes so much from you, it is cruel! However i think because its not life threatening it isn't taken as seriously. Unfortunately, my derm isn't very helpful. She doesnt ask me how i am or even acknowledge my children when they are at appts with me. The pso fight is exhausting!!! But we keep at it, dont we, in hope that one day it will be treated and managed well so that it isnt staring back at us in the mirror every morning xx

Your derm should be listing to how it is affecting you, it’s not acceptable Stick with it xx

Hi Summer, hope you are well? How are you getting on with the biologics? Have you had any improvement? Id be interested to hear how quickly your skin improves. Although derms say it takes 16 weeks, my Dad saw improvement after a couple of weeks xx

Hi ld1609 Good thank you Iv only had the one injection, so tomorrow will be the second, I’m joints are a lot happier?( again you do have flare ups I believe my joints are so much better with warmer temperatures) Is it down to all the lovely warm weather we having,? my skin looks like it could be calming down, not so red and angry, but again we’re having lovely sunshine, I don’t tend to sit out, but still get to be out and about. Which can make a big improvement on my skin, ( that is the skin that gets to see the sun) So it’s a bit difficult to say, I was told if you’re going to see results anything from a couple of weeks to 12months 😳 I’m taking Secukinumab 300 Thank you for getting back in touch I hope things are improving for you too, it’s a long hard slog getting to the biologic stage, but stick with it and PUSH for it. This P can put you in a very dark place, and your dermatologist should be taking this on board.. Very best wishes. X