Black Seed Oil - seems to have "cured" me
Posted Wed 16 Aug 2023 14.56 by NYGuy11
No worries. :) I just wanted to make sure that I wasn't taking too much, but literally everything in my search was serving size of 2000. I just took my first black seed oil capsules 20 minutes ago!
Thanks for your responses.
Posted Wed 16 Aug 2023 17.34 by Nape999
I don't document things and try to avoid my psoriasis being in photos but here is a before and after:
https://imgur.com/a/hhlMPS8
I'm perhaps not giving the cream enough credit: that video of the watch was taken on 22 November 2022 and the second photo was taken 5 minutes ago.
My first order of black seed oil on Amazon was in July 2022.
It did make it much better - that area on my wrist was much worse in the past, as were my knuckles and fingers - but it's been completely clear for several months now and I began using the cream close to the start of 2023.
I'll try to find better pictures but, as I said, I was embarrassed about it so tried to avoid any photos of it.
I'm a watch enthusiast so any "before" pictures will likely be of me wearing watches 😂.
Posted Wed 16 Aug 2023 20.12 by NYGuy11
The before and after looks great! Your psoriasis in that first pic isn't even that bad compared to what it could be, but I totally get it!
I prefer to heal things internally and to moisturize. Using creams constantly gets tiring after a while and it's not sustainable. I use Psorent to attack new spots that pop up before it takes a hold on my skin. But to apply cream over larger areas on daily basis is not something I want to do.
I bough the L-Glutamine powder and Black Seed oil, so we'll see how that goes. I was already taking L-Glutamine in pill form, but I didn't realize it wasn't enough. Hopefully both will provide a big benefit.
Posted Wed 16 Aug 2023 21.47 by Nape999
I know what you mean but there are certain areas where I much prefer a cream.
It's so much better on my hands, as it feels soothing.
I also prefer it for small patches that would pop up but I agree it's not feasible to use cream only a lot of the time.
Posted Thu 17 Aug 2023 09.08 by Cardiff_Dai
https://www.jceionline.org/download/evaluation-of-efficacy-safety-and-antioxidant-effect-of-nigella-sativa-in-patients-with-psoriasis-a-3557.pdf
Hi, I am new here but have been lurking in the forums a while now as I have developed psoriasis about 3 years ago at 65. The paper above describes a treatment using black seed oil both orally and topically . It seems both is the best option. I have just ordered some but realise I will not have enough to see any improvement so will have to get a larger amount.
Posted Thu 17 Aug 2023 11.39 by Nape999 (edited Thu 17 Aug 2023 17.07 by Nape999)
Here are several more. It was the ones that found it to be "as effective as a corticosteroid cream" that made me give it a go.
https://anatomypubs.onlinelibrary.wiley.com/doi/pdf/10.1002/ar.23690
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3785163/
The last thing I want is for people to think I came on here to sell to them - it's literally just an idea - but I hope I could be on to something here..
I'm going to make a batch of proper cream and it will be 100% natural.
If it doesn't turn out disgusting and you live in the UK, I'll send you a sample for free.
I just left my job to help my wife with our twins so I don't exactly have the financial resources to be starting anything big.
Posted Thu 17 Aug 2023 14.00 by Cardiff_Dai (edited Thu 17 Aug 2023 14.04 by Cardiff_Dai)
Thanks for the offer, I would be very happy to try it. Yes I am in Wales.
I ordered a 100ml bottle of the oil and I am wondering if this can just be used as a lotion as well as orally?
I looked at those links and they do not seem to be do with psoriasis.
Posted Thu 17 Aug 2023 17.08 by Nape999
Sorry, I don't know how I managed that.
I've linked a couple of relevant studies and will find more later but have twins to help feed!
Posted Fri 18 Aug 2023 06.53 by Lisa555
Hi so glad you found the answer to help your psoriasis! Think I need to give this black seed oil a try. At the moment am using some steroid cream off the gp, week two and my leg/foot is driving me mad with burning and itchy I could scratch it off! Stress is quite bad just now so maybe that's why it's worse. I could cry with it.
Might try and make some of this cream but don't know where to start.
Posted Fri 18 Aug 2023 14.30 by Nape999
Hi Lisa, I know exactly how you feel and all I can say is that I am sorry and that you have my full empathy.
I stopped using that cream because it wasn't doing much other than making my skin greasy.
I am NOT REMOTELTY advising you stop using it but I've done a lot of research over the last few days and there is a huge community online of people going through "Topical Steroid Withdrawal (tsw)". On Instagram, for example, loads of people have usernames like "tsw.andrew". I know nothing about it so do as your GP says.
Do you live in the UK? I will send you my cream for free if you want but I don't know if there's a way to PM me.
If there isn't, I will set up a new email address that people can send me their address to, as I don't really want to share my main email addresses on public forums.
Unfortunately I've only ordered enough ingredients to make small sample batches but if it turns out OK then I intend to make more for people to try.
Posted Fri 18 Aug 2023 14.34 by Nape999
I have been looking at studies and black seed oil seems to be very helpful with psoriasis. The reason seems to be because of its anti-inflammatory properties, meaning it also helps with a variety of health issues.
Not all of these studies mention psoriasis specifically but they do talk about anti-inflammatory properties.
I'm also weary of studies on mice because, well, we're not mice but maybe I'm being an idiot.
Here is what I've found so far:
A review of Nigella sativa plant-based therapy in dermatology:
https://pubmed.ncbi.nlm.nih.gov/33899217/
Antipsoriatic activity and cytotoxicity of ethanolic extract of Nigella sativa seeds:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3785163/
Evaluation of efficacy, safety and antioxidant effect of Nigella sativa in patients with psoriasis: A randomized clinical trial:
https://www.jceionline.org/download/evaluation-of-efficacy-safety-and-antioxidant-effect-of-nigella-sativa-in-patients-with-psoriasis-a-3557.pdf
Dermatological effects of Nigella sativa:
https://www.sciencedirect.com/science/article/pii/S2352241015000286
Thymoquinone-loaded lipid vesicles: a promising nanomedicine for psoriasis:
https://bmccomplementmedtherapies.biomedcentral.com/articles/10.1186/s12906-019-2675-5
Black Cumin Seed (Nigella sativa) in Inflammatory Disorders: Therapeutic Potential and Promising Molecular Mechanisms:
https://www.mdpi.com/2813-2998/2/2/27
Posted Fri 18 Aug 2023 15.08 by Lisa555
Aww thank you a sample would be amazing! I live in Newcastle upon Tyne.
Barely sleeping with it at min so anything that may help would be fab, thank you!
Gp prescribed Hydromol also. I've appointment with her next week.
Posted Tue 22 Aug 2023 18.15 by Nape999 (edited Tue 22 Aug 2023 18.16 by Nape999)
I don't want to reveal how much I've spent on ingredients that won't make very much cream 😔 but that's me got everything I need.
Assuming it works, it will be plant based, vegan (obviously!) gluten free (I also have coeliac disease), non GMO and cruelty free.
I wanted this to be 100% natural and finding a natural preservative was pretty difficult.
I planned to put aloe vera in it but I can't find any aloe vera that uses a natural preservative.
Posted Tue 26 Sep 2023 21.04 by NYGuy11
I've been taking blackseed oil for over a month now. My skin is pretty clear from phototherapy, but I do have some stubborn spots there and there. I haven't noticed any changes.
Posted Tue 26 Sep 2023 21.30 by Nape999 (edited Tue 26 Sep 2023 21.31 by Nape999)
Sorry to hear that but you know what psoriasis is like: what works for one - or lots - of people won't work for you.
Give it a bit more time but if it's not working then don't go pouring money down the drain.
I bought cold pressed liquid with a high thymoquinone level recently and it said one teaspoon of that was equivalent to 11 capsules; I have never taken close to 11 capsules because I thought it could end up being an overdose!
I'm not sure if that might be worth one last throw of the dice.
There's a study which shows that black seed oil taken orally and applied topically made a difference in something like 85% of participants.
Oil would allow you to do both, although it was applied in an ointment for the study.
Unfortunately the trial was small (60 participants) but here it is:
https://www.google.com/url?sa=t&source=web&rct=j&opi=89978449&url=https://www.jceionline.org/download/evaluation-of-efficacy-safety-and-antioxidant-effect-of-nigella-sativa-in-patients-with-psoriasis-a-3557.pdf&ved=2ahUKEwi8x6XhjMmBAxUhkFwKHUxKAoAQFnoECCUQAQ&usg=AOvVaw2crDB-8IqJ18hEy4emoZw5
Unfortunately you could end up bankrupt if you used what worked for every person with psoriasis 😂.
There's vitamin E, calendula oil, flaxseed oil, pumpkin seed oil, colloidal oatmeal etc. etc.
I've seen colloidal outmeal work wonders on some folk but I can't take it because I have coeliac disease, thus I am allergic to it.
Posted Wed 27 Sep 2023 08.37 by Cardiff_Dai
I bought a 100ml bottle and rubbed it on a stubborn area for a few weeks, I did not really see any change. However my PSO has generally got much better lately and my back is almost clear, it might be the home made kefir I have been taking, who knows?
I was also taking a teaspoon of the oil orally but have stopped for the moment as I was worried it might be causing a slight pink areas on my sides - its very slight and maybe nothing but want to see if it goes.
I bought a 500ml bottle of it which I am not using at present.
Posted Wed 27 Sep 2023 18.55 by mt382
Genuine question, but assuming you're right and there's some compound in the oil which suppresses the immune system sufficiently to treat psoriasis, why would you favour that over available medicines, given that actually controlling the dose in the oil would be really difficult, and your bloods wouldn't be monitored in the same way?
I mean, I personally think its just another snake oil, and that you can find the odd study or two to support most claims, but assuming it isn't, and it works, why prefer that over medicine that actually works? If it treated psoriasis, it would have the same side effects (immunosuppression) as other meds.
Posted Wed 27 Sep 2023 19.23 by Nape999 (edited Wed 27 Sep 2023 19.52 by Nape999)
I would never recommend taking it instead of medicines but the stuff I was given didn't work and I didn't have bloods taken once over a span of several years.
Maybe it was a coincidence that it cleared up after taking black seed oil but there's undeniable evidence about its anti-inflammatory effects.
My balm contains vitamin E, calendula oil and jojoba oil to bame but a few and, again, the evidence for improving certain skin conditions is undeniable.
Take Balmond's balm, for example. Loads of people swear by that and it's not a "medicine"
What is in that that makes so many people swear by it?
I am just one of many folk who prefers to avoid topical steroids, especially after seeing absolutely no improvement whatsoever while using them and the effects of TSW.
No medicine "works", really, given that psoriasis is incurable.
It's sold as a moisturiser, not a cure, so it's anything but "snake oil", considering moisturising is an important part of dealing with psoriasis.
This second before and after isn't psoriasis related, but the balm is literally all he used, so natural ingredients do work:
https://theoneskincarecompany.com/testimonials
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