The itch is killing me, does anyone else find psoriasis harder to cope with as you age?

Posted Tue 31 Dec 2024 00.19 by blacksails

Hey, I've read a few of these and it looks very cathartic to share my experience with people who understand what it's like you know.So I have really bad plaque psoriasis, it started when I was a teen but mostly affected my scalp then which was perfect because my school jumper was black haha anyway it got bad in my late teens when I was diagnosed with a unknown breast lump, all turned out ok but for a long time doctors didn't know what type of tumor I had,took 9 months and In that time my skin went insane and I developed generalised anxiety disorder that wasn't diagnosed until mid 20's which just added to the stress, resulted in big break outs, I couldn't kneel down at work without my legs splitting and cracking, my lower legs and outside of my thighs were covered either side, my arms were covered and my nails are so badly effected. I went to hospital was turned into the mummy for 3 weeks and then started lovely light treatment! Uvb was perfect for me though out my 20's it would take 3 months and boom clear for 6 months or so it got cold it would come back and the cycle went like that. The only thing it couldn't treat was my nails, one of my thumb nails was so bad last year I had to have it removed, which wasn't to bad but it came back even when painted with the acid to stop it coming back haha so skip forward to just before the pandemic It was back hard and uvb wasn't working anymore and I got started on puva with the baths and and uva light, and would you believe it it was a hit!!! Unfortunately the day the country closed down in march for pandemic I had to stop half way through but my skin still continued to clear till it was gone and even through pandemic I was fine!!!! Like longest I could ever remember being clear haha I was amazed, literally the most stressful time to be a human and I was clear! But life being life changed things in December 2021, now bear in mind due to many operations to sort my boob out with the tumour I just kinda of never moved out,I'm an only child and my folks weren't fussed so yeh I still live at home. So a week before Xmas my dad is taken to a and e and found out the next day he had terminal cancer, he was given maybe a year tops but he was rushed to hospital Christmas eve, came home and we lost him boxing day. The following year I developed an issue with my knee which left me in great pain whenever I bent my leg, was a nightmare work was grim as we have stairs, but last July I got a op to fix it,turns out I had birth defect in there causing all the trouble. Anyway at this point I'm abit down with life and during my recovering time I got a tattoo on my leg of my cat Loki who's a beast....but guess what, epaderm be damned it turned into a big plaque and soon enough I was once again covered, unfortunately after pandemic the dermatology unit in my hospital moved off-site without a bath so puva was not an option, so I got referred for systematic treatment, that was in June, I'm currently waiting on a chest x-ray, vaccinations and continued blood work to make sure I'll be okay with a suppressed immune system but I'm at that point where say a night a week I'm beyond depressed with it all..every single night I can't sleep because of the itch, the damn infernal never ending itch :( it's literally breaking me down, my lower legs are covered, the backs of my thighs which is whoa the most itchy place ever for severe plaques everywhere even more so than the crotch area, which most of us know is awful haha my arms are pretty bad and my holes in my ears even have it and I can't wear any of my tunnels! Like I'm at my wits end just waiting on letters like please don't make me wait months again I can't do it anymore! I work in a toyshop so as you can imagine I'm knackered right now but I can't sleep cos my legs are driving me insane!! Does anyone else think it just gets harder to cope with as you get older? I didn't give a crap in my 20's and just dealt with the pain and had dark clothes and bed sheets to hide the mess!! I'm 36 now and I'm just too tired with it all, I've done my best over the years to deal with it and have rarely cared what others think if they see my legs in summer looking like they have been attacked by Freddy or Jason haha I'm not perfect I've self medicated over the years and smoking weed has definitely been my crutch during every trauma and bad times, I don't drink and I've never done any other drugs but smoking helps me quieten my mind help me sleep and helps with the nausea I get from gad. So yehh I know smoking doesn't help either but yeh this has been really good to get off my head even if no one reads it I know if anyone does they get it, inflammation is just awful and we have so many side effects and consequences in our body's due to this but apart from the skin it's all invisible really, the mental tole it can take, I mean seriously I just want the itch to stop, the strong antihistamines, all the stoopid creams that are meant to stop the itch,nothing works! The pain I can deal with it's just the itch is literally destroying me. Someone with out psoriasis would say that's the most ridiculous thing but they don't know haha On that note I'm gonna chuck my legs under the shower cold water always helps distract my skin abit and then slap another load of goop on and try not to rip my legs to bits haha Much love to anyone with patience to read this mad lack of sleep grammatically terrible rant of a crazy fellow psoriasis buddy just making it through day by day one front foot Infront of the other :) Holly

Posted Thu 2 Jan 2025 09.37 by psoriasis association (admin)Mod

Hi Holly, Thank you for sharing all of this. We're sorry to hear that you are going through a rough time with your psoriasis at the moment. Please don't hesitate to reach out to our helpline for any further support or information. We have our Facebook group too that you can join to speak to other people living with psoriasis. You're not alone. Best wishes, Georgia, Psoriasis Association

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