UVB treatment at home...

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Posted Fri 13 Jul 2018 08.21 by lwrightuk

BM: That's great to hear that you are clear after your home treatment. I really hope that when I do take the plunge that it works for me. I'm taking the next few weeks to stalk eBay. Silly question, did you end up getting a tan after your treatment? The last thing I want is to look like Mel and Madge from the Benidorm TV series. Leigh.

Posted Fri 13 Jul 2018 08.28 by lwrightuk

Hi Niall, That's very true, there is always someone worse off that you. If you do go down the home phototherapy next, I wish you luck. Let us know how you get on. I'm going to spend the next few weeks stalking eBay for a second hand canopy. If I manage to find a decent, quite new-ish canopy, I'll replace the tubes with the Philips narrow band tubes. If I cannot find a suitable second hand canopy, I'll be getting in touch with MBS or Skin Matters Bristol. Thankfully I'm not a beer (or Guinness) drinker... Gin is my weakness!

Posted Fri 13 Jul 2018 08.45 by BM

Hi I’ve used my mbs canopy for a few months now, initially every other day, starting off with very short periods of time.....30 seconds each side then adding 10 seconds each time I used the machine. At the moment I use the canopy three times a week maximum and am on it for 2 mins each side. I’m careful as you can burn if the times are excessive and a slow build up is essential. Have not got a tan.......... This has been a great summer so far, great weather and more to the point my skin is in great shape to enjoy the weather Good luck

Posted Fri 13 Jul 2018 09.10 by lwrightuk

BM: Thanks for replying.

Posted Fri 13 Jul 2018 13.56 by Lew

Hi all. New here. Have suffered pustular p for over 20 years. Its soo bad on my legs and hands. At nght its soo itchy i cant sleep. Now i have stiiness and pain in my joints. My nails turn to pink and pAINFUL. Went to a dermatoligist last month and was given a november 2018 date for uvb. Does anyone know how to get a reduced waiting time for light treatment. I cant afford private ones. I live in london. Thanks. Lew

Posted Fri 13 Jul 2018 21.49 by Magic74

Hi all thank you for your posts on home treatment. Does anyone have a second hand canopy for sale? I am covered 90% in scales and given up with the doctors.

Posted Sat 14 Jul 2018 10.07 by lwrightuk

Lew; Hi. No advice but keep us updated.

Posted Sat 14 Jul 2018 10.09 by lwrightuk

Magic74: I'm looking for a second hand canopy also. At the moment I am stalking eBay! It will be cheaper to buy a second hand canopy and then replace the tubes with Philips Narrowband Tubes - this is what I am planning on doing. Good luck and keep us updated.

Posted Wed 3 Oct 2018 17.32 by Burk3

@lwrightuk I am also looking to buy a second hand canopy and then replace the tubes however to replace a 10 tube canopy it will cost £690 at least. Does anyone know if all tubes have to be replaced or can you just have some normal lamps in there as well?

Posted Wed 3 Oct 2018 18.09 by tracey

Hi lwright, you can use a combination of narrowband and ruva tubes, however the more narrowband tubes you have, the better and quicker results you will get

Posted Thu 4 Oct 2018 09.54 by PsoGoAway

Burk3. I have been told these lamps seem to last for ever. Are these genuine Philips tubes as im told these are the only ones that really work and are safe? If so they they probably don't need replacing at all. If you are wanting to purchase these tubes separately there is a good company called www.psoriasiscare.co.uk. There tubes are genuine and by far the cheapest. I would say MBS (as someone mentioned previously) if you wanted to buy a full unit but seems you will get a canopy separately. Im also thinking about purchasing something for home. Had a handheld but only good for small areas.

Posted Thu 4 Oct 2018 11.17 by Mike

Excellent advice on timings from Parker & Silverfox1703 above. My legs needed about 3 to 4 minutes which I built up to over two or three weeks with a session every second day. I made myself a simple mask to reduce exposure on my face about half way through as the sessions got longer. It's important to establish your skin type:- 1,2 or 3. I simply asked my Doctor and he came up with Type 2. Away I went. Slowly, carefully and ultimately successfully. Until it partially came back of course. Below the knee is my stubborn area. Regarding my Canopy, it is still on the market as I have not pushed it due to a rap on the knuckles I got from the forum administrator after my original post. Mike@Ruse.org.uk if anybody is interested.

Posted Thu 4 Oct 2018 22.15 by ateeq

Hi Can anyone recommend a light therapy chamber - i have psorasis head to toe -

Posted Fri 5 Oct 2018 02.15 by BM

Guys I bought the 9 tube canopy in feb/March this year, from ‘much better skin’ - please see my previous posts over past months..... I have used it on and off since then, at first 1 min each side (standing) building up over weeks to 2:5 mins each side every other day. I’ve missed weeks sometimes through working away from home but seriously, my Psoriasis has virtually gone..... My elbows and knees - clear Stubborn ankle - hardly noticeable I spent £1500 ish, worth every single penny I am completely independent from that company, Buy a canopy from any company - they work All my other coal tar; dovabet creams are redundant Bryan

Posted Fri 5 Oct 2018 08.56 by lwrightuk

BM: I've been using my canopy standing up also. How far away from the tubes do you stand? Along with taking a break because of being ill, I've also had to take a break previously because I managed to burn my nose. I've only managed to reach 1:40m so far and I am concerned that this is not enough time. Any advice?

Posted Fri 5 Oct 2018 16.09 by BM

Hi The timings I find are less important than the regularity, I stand about 6-8 inches away from tubes, I also have in the past covered up areas that are sensitive or may burn. Little and often works for me, I generally use the canopy every other day and have built up to two and a half mins front then back. My Psoriasis has virtually gone, so I now have weeks off from the canopy. It’s important not to burn yourself so reduce the times and cover vulnerable body parts. Let me know how it goes BM

Posted Fri 5 Oct 2018 18.21 by lisab

hi I have managed to find a second hand canopy which I am picking up in a few weeks. I'm confused though as it's a derma something one and I'm worried it won't be as good or the wrong one.I'm 39 and suffered with psoriosis since I was 15.had about 5 courses of uvb treatment at hospital over the years (my first ever holiday abroad 3 years ago was ruined coz I had to cover up coz doctor didn't see me as bad enough!! grrrrr..last summer was amazing..my hospital light treatment was granted at the right time,and for the first time ever I was able to wear shorts in public! I felt amazing to say the least!! I'm covered in psoriosis again. single parent so I can't afford a new unit..second hand is only option. is the dermabed 6 tube canopy ok as I can't afford to waste 300

Posted Fri 5 Oct 2018 21.12 by BM

I’ve had a quick look on internet and can’t really advise..... my experience is with the Phillips tubes, they are the ones used by hospitals for light treatment so I went for the canopy that used the same light source, the Phillips tubes are tried and tested - not sure what is used in the machine you describe

Posted Fri 5 Oct 2018 21.18 by lisab (edited Fri 5 Oct 2018 21.19 by lisab)

this unit has arimed b tubes in it.and after I have read that there tubes won't work and are broadband and not narrowband i have pulled out of the sale.it's shpok and aparantly it was legally binding.the lady got really rude and made out I was a bad person when I'm not going to waste all that money on a unit that won't work.I'm gutted.i was really over the moon and thought it was fitted with Philips tubes.just my luck lol

Posted Wed 31 Oct 2018 09.04 by monty77

eBay 273535186561 ...my UVB wand from Amazon (via mbs) up for sale. Barely used, only bought it as a top up unit when I was traveling - no longer required.
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