Posted Thu 21 May 2015 13.10 by Eddie Psoriasis big time
Hi, I was taking a hot bath for 15 mins with a chemical I can't remember then given UbV in a shower type stall afterwards. It was for a few seconds then over the weeks increased to around a minute then over a few months up to about 2 mins.The result was good, bath, uv and emolients. (free sun tan too!)I moved house and had to stop the treatment while finding a new consultant etc. It returned during my move and change of job, eventually got back on the program and made the condition even worse. My consultant has put me on a trail drug I think is called cyclosporin, normally used for transplant patients. In the first few weeks this reduced a lot of the plaque, especially on my hands and feet but now its not claering anymore. I'd love to hear from anyone who has success with the above.
Posted Wed 3 Jun 2015 10.08 by shteg06 I have had psoriasis since I was 6. When I was 23 I had a blood transfusion and a massive flare up. It has been severe ever since. I went on
Hi I am new to this site so apologises if this is posted incorrectly!
Has anyone tried cologan bed red light theropy?
Thanks in advance x
Posted Tue 9 Jun 2015 10.47 by EmilySx Have suffered from psoriasis covering all areas of my body from a young age.
I have been suffering from psoriasis on almost all areas of my body (armpits, stomach, breasts, back and even private areas) since a very young age. My doctor has subrscribed me with many types of creams but nothing has ever worked so i began trying sunbeds but this only made it worse. It wasnt until recently that i have found a treatment routine that has almost entirely cleared all of psoriasis away. I use uvb light treatment every 2 days (i had to purchase my own as doctor would not provide this- adrov medical) along with this light therapy i consume 2 table spoons of coconut oil a day and apply dovobet ointment to my psoriasis every night, i also moisturise as often as possible using diprobase. I know this sounds like alot to do and very time consuming but the results are totally worth it. I am only 18 years old and havent been able to wear belly tops or short dresses or even go on holidays with my friends and wear a swimming costume but at last i feel so much more confident and my skin is looking better than ever, i strongly recommend trying this routine out to anyone who has suffered long term psoriasis and cannot seem to find a course of treatment that works.
Hope this helps EmilyS :)x
Posted Wed 26 Aug 2015 15.42 by Kim
Hello I'm new to this website I started my light treatment today when will I start to notice a difference thanks please reply
Posted Mon 14 Sep 2015 17.21 by Kim
I now on my 9th light treatment and I've not noticed any difference yet in my psoriasis I gotta go hospital 3 times a week every mon wed and Friday
Posted Sun 17 Jan 2016 23.15 by ashleighx0 I have had psorisos for about 2 years which came out of no where (21) now and I had full body. It affected me a lot I couldn't sit without
Hi I tried uv light treatment as I had severe psorisos all over my body although not bad in my scalp (touch wood it won't ever be ) I had 8 weeks then they up it to 10 wks altogether, three times a week - it cleared everywhere the results were amazing as I literally had no skin on my arms which was a nightmare as I work in a hosp and due to infections etc was effecting me greatly so meant I could return to work even after second week could notice results! Although it didnt clear up too well on my knees. I had my last treatment 23rd Dec 2015 & unfortantly for me it was returned not as bad but bad enough to be itchy and sore again. But don't let this dishearting you as they did not even think the uv would have much affect on me so I am greatful I got a lot of great results even if was for short time as places effected again is my knees were didn't work too well and my legs! I hope you have some amazing results and it stays away!
Posted Sun 31 Jan 2016 10.36 by JoBriggs1 20 years
Having just completed an intensive course of UVB therapy at a hospital (which has been fantastic but is incredibly time consuming) I am looking to buy a narrowband UVB canopy to use at home to keep my psoriasis at bay. Can anyone recommend one? And is there any reason why I shouldn't let other psoriasis sufferers use it, once I've got it?
Posted Sat 20 Feb 2016 12.38 by JKClements I have scalp Psoriasis, also on my elbows and I've had guttate all over my body previously.
Hi. I have a fully body UVB 311 lamp and stand to sell.
It is a Skinlight 700 SL which I had imported from Germany a few years back.
In v good condition. Would need to be collected from North London.
If you are interested please email me on clements@verdion.com or call on 07970 230 381 and I will send pictures and all the info you need.
John
Posted Sat 20 Feb 2016 12.42 by JKClements I have scalp Psoriasis, also on my elbows and I've had guttate all over my body previously.
Hi. I have a full body UVB-311 lamp + stand to sell.
It is a Skinlight 700 SL which I had imported from Germany a few years ago.
It is in v good condition. Would need to be collected from North London.
I would advise medical advice if you have not had UV treatment before. It worked very well for me and thankfully I no longer need it.
If you are interested please email me at clements@verdion.com or call 07970 230 381 and I would be happy to send you pictures etc.
John
I am currently suffering from my second spell of p and the creams aren't working so I'm going to give this a go. How long each time do you go in for and how frequently do you go?
Posted Thu 28 Sep 2017 23.51 by Anthony
Hi, I've just started this treatment and finished my first week today. I have psoriasis pretty bad on my arms and elbows, including my knees and a few patches on my lower back. The arms and elbows are the worst.
Keen to hear of any updates from those who have had this treatment.
Posted Fri 29 Sep 2017 13.13 by Toodlesoodles
I started light therapy 2 months ago. Currently on my 16tn treatment and go twice a week, Monday and Wednesday.
Don't think there has been much improvement yet but it's hard to tell as the Enstilar I use (was told to use this as the flatter the plaques the better the light penetrates and does it's thing) obviously makes the psoriasis look better anyway..
Posted Sat 7 Oct 2017 01.45 by Alex M
I’ve started my treatment sept 2017. Had 3 sessions so far starting off at 23 seconds. Seems a little low considering I’m olive skinned but il wait it out and see what happens :)
Posted Sun 8 Oct 2017 12.21 by Robert
Has anybody used the Philips blue control light therapy.It is a portable device for mild to moderate P.
Posted Mon 9 Oct 2017 02.30 by Anthony
I'm into my third week of treatment, going three times a week at 37 seconds. So far haven't noticed much change. Fingers crossed it works.
Posted Wed 11 Oct 2017 20.35 by Toodlesoodles
Went for my 19th session today and the nurse admitted it was surprising it's had no affect on my psoriasis yet so I'm a little down hearted about it. She did say that some people don't start responding until they get bigger doses of UVB and are in the cabin for 5 minutes or so.
Having thought about it though I've never found sunlight does anything for my psoriasis. I got plenty of sun on my arms this summer and they were very nicely tanned but did nothing for my psoriasis.
Hey everyone.
I have had psoriasis since the summer 2012 (guttae psoriasis caused by infection in my throat). I am lucky it cleared down to very limited patches (elbows, knees, a few other small ones here and there) although it still affects my lifestyle and confidence. I can't wear dresses and skirts without thinking people would notice my knees and patch on my knuckles makes everyone ask me whether I had just been in a fight...
I am currently doing the UV therapy and as most of people who posted here I am finding it very useful. I am at 6th week and 3min 14sec, my bigger patches got flatter and don't flake up. I know it will all come back once the treatment is over but I am now at the stage when I can see my elbows for the first time in 5 years and they are beautiful!!!!! ;) I am desperate for tricks and tips that worked for others- diet, creams, herbal treatments... anything? Can you share what was useful for you to tame and calm down your psoriasis? What moisturisers do you use? I sense everyone here uses dovobet - what are your experiences ? Any response would be amazing!!!
Posted Fri 20 Oct 2017 03.06 by Anthony
Update of my UV treatment...Just finished week 3 and have 5 weeks left of treatment. Currently on 90 secs. My skin, especially my arms and elbows is looking the best it's ever been for years. The angry redness has pretty much disappeared but still slightly evident. For the first time in years, I can now comfortably and confidently wear a T-shirt instead of a long sleeve shirt without feeling embarrassed or shame. Feels like a huge relief. I'll update as time goes on.
Posted Sat 25 Nov 2017 00.37 by susan191052 (edited Sat 25 Nov 2017 00.37 by susan191052) Legs, arms, body, nails, scalp. Psoriatic arthritis. I hate it.
I’ve found uvb successful, initially I had it at the local hospital 3x a week but Xmas 2015 my husband bought be a fill length UVB narrowband lamp for Xmas. Brilliant - until he was diagnosed with pancreatic cancer a year ago, now life has changed and my routine doesn’t always find time for the lamp and dovobet. It all seems relatively unimportant. My PSa consultant wants me try Methotrexate but I am scared of it because I lost thick layers of skin off the palms of my hands and the soles of my feet with sulphasaladine. Dunno what to do now.
Posted Sun 26 Nov 2017 22.28 by Anthony
I'm taking Novatin capsules once a day. They seem to be working well.
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Posted Thu 21 May 2015 13.10 by Eddie