Not sure I know what the difference is between a moisturiser and an emollient? Or even if there is one?!
31Posted Sat 11 Feb 2012 15.18 by kenwakeley (edited Thu 31 Mar 2016 23.38 by kenwakeley) I have had Psoriasis 40 yrs.
On my scalp and on my body
Hi
I have had pso for 40 yrs plus and have tried moisturisers
of all sorts and nothing really helped too control but by making the change from one to the other after a month of use kept it in check.Having said that the last couple of years found that Dovonex cream was has helping.I went too have my perscription renewed 3 weeks ago only to find nolonger available and gave me Dovobet Ointment.
This is working for me even the patches I have had for the longest have lost its glowing silver shine and the skin is going pink.GIve it a try Ken
Posted Wed 4 Apr 2012 14.43 by ianlindsay On palms of hands and soles of feet
As far as I can make out they appear to be one and the same thing.
I have had psoriasis on the palms of my hands for about 25 years and recently I have been using Simple Derma Hand Cream moisturiser which has alleviated the symptoms considerably. It is the best topical treatment I have come across and I have used many over the years, prescribed and OTC. It stops the itching and irritation and makes the skin look almost normal. I find the more frequently you apply it the better. Simple make several products under the Derma label which all appear fairly similar but the I use the specific Hand Cream - I suppose the main difference is it is less greasy.
11Posted Sun 8 Apr 2012 12.18 by Mark (edited Thu 8 Jan 2015 14.59 by VIKINGENOK) Had Psoriasis since i was 13 -mainly on either side of torso, sometimes on Scalp. A little elsewhere.
Usual issues of embarassment with fla
I have used a steroid cream for ages as i wanted to try and control it with just moisturisers.
I've used Epaderm which my kids have, great for using as a soap substitute and before bed - bit greasy but wear a tshirt to bed and the scales just flake off in the shower in the morning.
Also started using Dermol 500 lotion - again the kids use it.
However last week i had to give in and go to the walk in centre and see my randomly appointed Doctor.
I asked for the usual steroid cream and casually asked if the geniusues had come up with anything that would clear P up - to which he replied 'oh yes, definately'. Needless to say he got my attention. He was so enthusiastic.
He said it was expensive and not many Doctors prescribe it.
He prescribed Dovobet - use twice a day for 1 month. In @ 4 days the inflamed, Red, Itchy flakey skin has gone. All i have now is a faint pink patch which is going more skin colour daily. I'm already only using it once a day.
It cleared up around my ears and groin virtually immediately.
I'm am so pleased.
Give it try - oh and the same doctor said to always use a good moisturiser - he recommended Dermol 500 (above).
That went on a bit i know, but i am so chuffed - My P has never been so clear.
21Posted Tue 1 May 2012 12.19 by saintsfan (edited Tue 24 Feb 2015 20.52 by saintsfan)
For Mark
Glad to read you're getting on well with Dovobet but hope you realise it works so well precisely because it too contains a strong steroid! Trust the doctor told you that. It's little different to being on the steroid you were on before, in fact, depending on what you were previously using the steroid in Dovobet could be even stronger.
Whatever you do, don't use Dovobet for longer than the dr said. It should only be used short term ( no more than a few months) at a time. When you do stop using it, be careful how you withdraw. Using it at week ends with something else during the week is much better than just stopping abruptly. Then withdraw it completely.
Stopping Dovobet too quickly can cause exactly the same rebound and serious flare up as withdrawing from any other strong steroid.
I'm getting tired of reading/hearing about drs thinking Dovobet is some sort of safe long term alternative to calcipotriol treatments such as Dovonex - it isn't!! It is a fundamentally different drug - it just happens to share a similar sounding name. It seems gps and pharmacists are prescribing it as an alternative to recently withdrawn Dovonex cream. It isn't. If your dr suggests it ask them about exactly how to use it, for how long, where (sensitive areas are not good) and how to stop using it.
Dovobet is a useful treatment and has its place but it should be viewed in the same way as any other strong steroid so please use it with caution.
Apologies for rant but after a bad Dovobet rebound which resulted in worst symptoms for over a decade and excrutiating pain I'm now acutely aware of how often it's being prescribed by gps with little regard for the potential consequences.
1Posted Mon 18 Jun 2012 16.24 by Lesley (edited Thu 8 Jan 2015 14.59 by Bergs) I have suffered with it for 30 yrs
I used Dovobet for over a year without anyone advising me it shouldn't be a long term solution. I stopped using it and ended up in hospital where I had tar and bandages and light therapy this didn't worK and I'm now back to taking methetrexate. The rebound flare up has left me in a lot of pain. All the nurses I spoke to told me not to use Dovobet, as they have had a lot of patients going through the same as me. I just want to let people know Dovobet is great short term but it is definitely not a long term solution.
2Posted Tue 19 Jun 2012 01.15 by Ruthie (edited Wed 19 Mar 2014 00.35 by john.cahill2007@ntlworld.com) 20+ years of near total coverage and associated problems and now Cushings Syndrome because of misstreatment
I have had extensive psoriasis for nearly 20 years and have been hospitalised. I live in London (UK) and we have a fairly good treatment/hospital centre at Guys/St Thomas' hospitals, whom I recieve periodic treatment from. However for the last couple of years I have been prescribed huge amounts of Dovobet, from my GP, which has resulted in the early signs of Cushings disease. Please be careful with this medication. It has made me feel really ill and the side effects of coming of it are not brilliant. xx
1Posted Fri 13 Jul 2012 14.35 by saintsfan (edited Wed 19 Mar 2014 00.35 by saintsfan)
Ruthie and Lesley
So sorry to read about your experiences with dovobet and lack of management by your gp. It's my usual rant on here but they're not taking prescribing of this treatment seriously enough. It can be great short term but absolutely not for the duration and amount you describe.
Cushing's is something gps should be aware of as a possible side effect of long term steroid use.
It's probably the last thing you feel like at the moment but I wonder if it's worth you making an official complaint to the surgery about your gps? There seems to be a recurring theme among consultants about seeing people with side effects/rebound after gps have failed to manage dovobet properly.
If it is something you might want to do or think about it, I'm happy to help. I worked as a lawyer defending drs for years so have a good idea of the difference between what is an unfortunate outcome and where a medical professional may have got things wrong.
If you do, put a message on here and I'll contact head office so we can make contact off forum.
Take care and look after yourselves
1Posted Tue 14 Aug 2012 16.00 by Sara (edited Thu 8 Jan 2015 14.59 by carol) I have psoriasis all over and I am in a constant flare up. My legs are the worst and I have 2 very bad patches on my lower legs which I need
Hi guys just reading your reports on Dovobet - I used it for about 4 years and it was great until my psoriasis start getting worse - I still fall back on it but am trying to stick to Dovonex which has a vitamin D derivative in it and it is good - although they stopped making the cream you can get Dovonex ointment which is great, although is doesnt seem to work very well on my legs but works well on my upper body. Hope that helps. Sara.
Posted Thu 6 Dec 2012 15.40 by petlamb
My dad (also a pso sufferer) has used dovobet for a long time interchangably with other creams - he had to come off it for quite a while when he found that the slightest knock to his skin meant tearing and a significant amount of bleeding.
As someone really just getting to grips with her own worsening pso, it's good to know what to approach with caution.
1Posted Tue 18 Dec 2012 11.49 by Tezzer1 (edited Thu 8 Jan 2015 14.59 by pedro200933) Recently diagnosed with patches on my lower back but worse of all on eyebrow and either side of nose
I have patches on my face and eyebrow. Steroid makes it fade however it keeps coming back and I don't want to use steroid on my face all the time. Any ideas what is best to use?
Posted Thu 10 Apr 2014 06.45 by Shoon Scalp, torso, legs, creating agony and depression.
Hey! Not sure if anyone has talked about this...
For my scalp, when I got psoriasis and winter came, it was horrible. Extremely red and very flakey, which was so embarrassing.
I found that the best method for me to have a healthy scalp now (and I've tried EVERYTHING) is not to use many shampoos, avoid hot water (which is impossible when I get only 3 months of sun where I live).....
And to use a natural body wash only, which can be used on scalp very lightly and rinse immediately... and not very often...
My main tip here is to only MOISTURIZE with COCONUT OIL after a shower. I get a huge tub from costco to eat and to lather on at night after a shower.... a few days later I was back to normal.
If you have CRACKING around the ears like me the use VASOLINE.
Posted Sat 4 Oct 2014 13.06 by Ramlag7 I have Guttate Psoriasis in the most severe way
The best moisturizer for my psoriasis is organic hemp seed oil (has a grassy smell) mixed with Cerave lotion or even cocoa butter lotion. This oil has anti-inflammatory properties. I never had much itching because I took Tumeric tablets which has powerful anti-inflammatory effects and is a very strong antioxidant. Choose a good brand like Organic India.
Posted Sat 6 Dec 2014 00.24 by Womana Extreme itching and affected on legs
I have had psoriasis on my legs (behind my knees and lower leg) on and off for years - and it has recently gotten much worse.. I tried Hydrocortisone, coal tar, alt moisturisers + UV beds.. Nothing helped for long .. I've just started coating it in good old Sudocrem and it's been amazing! Its taken a while to completely clear up as I had been itching it for a long time .. But coating my psoriasis in Sudocrem every night and morning has easily been the best result I've had!.. It's even stopped the itching ..Everyone is different but its worth a try! Good luck!
Posted Tue 24 Feb 2015 20.55 by sheena I feel so stressed and have a lack of confidence.
In reply to some of the comments about Dovobet, I have been on Dovobet for a few years now no one said I should only have been on this ointment for a short time. I have an appointment with the doctor tomorrow as my psoriasis has been getting worse this past few weeks .
Posted Thu 5 Mar 2015 22.44 by mlisscomeau@yahoo.com
Does anyone have a regimen using Dovonex? Should I moisturize? If so, how long after application of Dovonex? Any recommendations on moisturizers?
Posted Tue 3 Nov 2015 13.45 by Alex2015 I have to keep covered up.
I have recently read about a cream produced by a Norwegian company called Gavonex. I have ordered some and am going to give it a go.
Has anyone else tried this? What results did you have?
Posted Tue 17 May 2016 16.41 by callie85
I'm not an expert on the scientific difference but I can say moisturizers tend to work best for me. I've had real progress with Yu-Be Moisturizing Skin Cream, a heavy-duty (but gentle and light in feel) cream that really targets the driest, most painful areas.
Posted Wed 29 Jun 2016 16.52 by saltnpeppa yes
I've tried all the doctor creams like coal tar (in the old days), steroid cream, emollients etc. Nothing ever shifted it.My psoriasis is really caked around my elbows, knees and I also have it around my collarbones, scalp and back of legs.
A friend was using salveation (mamam nature) for a rather embarressing issue and I happened to ask her if I could try some. I tried some on my elbows as they were really itchy and thought nothing of it. It is greasy not like a cream. A few days later I couldn't believe it when the psoriasis on my elbow was gone and the skin was smoothe. I bought a tub and applied to all the areas I mentioned previously. I am now psoriasis free and can hardly believe it. Beware though this salvation can stain your clothes (stained my blouse) so I apply it at night before bed. Amazing stuff. I will be buying more of their product.
Sudocrem works! I use it nightly. I've had seveee psoriasis & arthritis for 26 years since 9 yrs old. Tried the lot dovobet, dovonex, Enbrel, emollients etc- combo of olive oil & sudocrem actually works- give it 1 month daily nightly application & 1 hr oilatum Bath daily- seriously it'll be gone but needs ongoing control via this method. It's not a cure but a fabulous treatment. Get in the sun in Dead Sea Israel or Jordan every yr & it'll be gone. My heart goes out to people who struggle with this- taken me the best part of my youth to figure it out. Keeping a low weight- slim to normal will also prevent flares- trust me- I've gone from 85kg to 60kg & it changes a whole lot psoriasis wise- my arthritis is more active when psoriasis is clear but arthritis can be controlled by biological drugs. My exp is psoriasis cannot but with above regime it CAN! But do it daily, never never miss a day & if I've given up hope like I had- try for 1 month only & pls come back & tell us. Sudocrem, yearly sun (all over body) & daily Luke warm oilatum baths are a lifelong treatment but it's the 1 way to keep totally clear. Obviously no mental aggravation is key with psoriasis. Good luck all!
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Posted Tue 31 Jan 2012 18.48 by Eloise88