Hi there,
I'm new to this website but just reading up on everything. Hope everyone's doing okay.
I've just been diagnosed with inverse psoriasis (I was previously told it was vulvar eczema). The diagnosis process has taken about 2 years including seeing a dermatologist (who first told me it was the vulvar eczema) and suffering painful, itching and uncomfortable symptons.
If it would help anyone on here to share my treatment information, I wanted to do that. After I was told it was ezcema (and this hasn't changed for my new diagnosis of psoriasis) I've been given:
- Elocon Ointment (0.1% Mometasone Furoate)
I've been told to use this whenever I've breakouts. I did explain the 'red shiny welt' breakouts are constant now, and the dryness/sore skin/cracks/itching flares up each month, but the dermatologist didn't seem to say much unfortunately.
- Zinc & Castor Oil Ointment - to use this twice a day after showering and before bed.
I've been told to avoid stress (little hard to do!), soap, make the best of it that I can. It is distressing and having an impact on my life (I'm only 37) but trying my best though day to day.
In addition, following a biopsy, I've been diagnosed with Frontal Fibrosing Alopecia, which is affecting my eyebrows badly and my frontal scalp. Its a form of permanent scarring hairloss that normally affects postmenopausal women (I'm not menopausal though, far as I know, its rare that I have it). I think this started around the same time as my eczema/psoriasis issues, about 2 years ago when I was 35. I've been told I've very low iron ferrotin levels of 17 too (which should be 90 apparently for good hair growth).
I'm not sure if they are all connected, if I have an issue with my immune system, but, all in all, its not been a good time the last few years.
The Elocon and Zinc castor oil do help the irritation and itching though so I'd recommend them for anyone if you're unsure of what to try/what to ask for. They haven't gotten rid of it, as far as I can see, but they help help alleviate the symptons a little.
I'd advise always insisting on seeing a dermatologist rather than stopping at a GP. GP's are wonderful but they don't have specialist training and knowledge about some issues. Always insist on seeing someone if you're suffering, even if its not 'serious'. Having assured knowledge from an expert about whats happening to you can't be underestimated. xxx
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