Literally cannot do this anymore
Posted Wed 7 Nov 2018 17.10 by Justine0481
I’ve had psoriatic arthritis since I was about 15 , so for 15 or 16 years now . I was recently diagnosed because I’m getting worse and somebody finally listened . I’m on injectable dose of methotrexate which helps but not near enough . I can barely eat now, I’ve lost almost 25 lbs in a few months and I keep losing weight. I can’t afford to lose much more. I still have days where I hurt so bad I can’t walk , so I reserved tramadol for those days. Feels like I sold my soul to the devil because I finally succumbed to opioids. I don’t know how I’m supposed to live like this . I have a toddler , I am in school , and I can barely keep up . Nobody understands . I can see the annoyance every time I say I don’t feel good . I guess I just need to connect with some people who go to the same thing , because this is terribly lonely , it’s crazy how one day my knees and hips will be hurting so bad and then the next day they’ll feel fine but my backs killing me . Just seems to bounce around . It’s in my stomach . It’s in my Bladder. Is just everywhere this point . I never had many problems with psoriasis except for my hands . After a round of steroids after my hand flaredup though now I have it on my feet too. I just feel like it’s too much for me at this point I need someone I can relate to .
Posted Mon 12 Nov 2018 02.05 by Hycarumba
Justine Justine Justine :( I know exactly how you feel, both with the pain and knowing the annoyance on people's face when you try and explain, one day it's my wrist,then a thumb, then a knee all time shaking my coat of flakes offa my shoulders, luckily my kids grown up so all I get is a loud voice in asda,'dad is that dandruff!!' thanks kids,bless ,I don't like the thought of opioids ,I had tramadol for back, didn't touch the pain just made me itch more and don't fancy mind mushing anti depressents either though I Am a born worrier to, I'm sorry I can't help yet as I've just joined and trying to get my crusty head around all this,,stay strong and good luck
Posted Sat 17 Nov 2018 21.13 by Carlpeps
I know this feeling I'm 53 year old man I was told I had PA in June
I don't have kids who need looking after but do have to somehow get to work as a construction manager, I know all the feelings you have described above, I'm off the Methotrexate for a while now as i had a low white blood cell count , my lhands will not hold a pen and constantly ache my back and shoulders are stiff etc hard to look to right when pulling up at a junction and the soles of my feet felt like someone hit them with a hammer the night before when I wake up , but driving home this evening after a particular bad day , I thought back to a stressful time in my life 25 years ago I was going through a divorce and had the exact same issues as I have now ,althoigh at the time it was said i had reactive arthritus ,it was treated for a year with diclofenic sodium , to give you an idea of how bad I was If I didn't take the diclofenic I couldn't even walk , one day I had to travel away from home and forgot the meds ,I waited for the pain to come and had to wait 25 years for it to come back! The point I'm going the long way about making is don't give up hope, who knows how this illness works I know up until two years ago I was symptom free going to the gym 7 days a week, and today amongst all the feeling of dispear I brought up the logical reason of why I will be symptom free again, I am 100 % sure that i have had it once previously and it went away , I hope you believe me because it true and it's my way to cope when I have had bad days but not only that if it has happened to me it can happen to you/ everyone , don't give up the fight
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