I apologise if this post is too late, but i was a sufferer of severe Guttate Psoriasis and have been meaning to post on a Forum about my experience, hoping to help others.
I always had Psoriasis in my scalp and still suffer with this at times when i am stressed (dry shampoo is also a no go), but my first outbreak of Guttate Psoriasis came out of the blue at the age of 17 years old, in the form of a rash on around 70% of my body, worst on my torso and legs.
The condition continued to get worse and on some days was UNBEARABLE, the intense itching followed by soreness was extremely uncomfortable and of course difficult for a teenage girl. Whenever I took off my clothes, there would be showers of flakey skin and i constantly felt that people could see the dandruff on my shoulders.
I had cupboards and cupboards full of creams, ointments, scalp applications, shampoos and even coal tar bath drops that i used to soak in every evening. The sore and itchy skin was uncomfortable but so is lathering your whole body in thick sticky gels 3 times a day. As well as trialling all the different lotions and potions out there, I also had a course of UV light treatment, this seemed to help with my psoriasis and over a few months it did subside, however the outbreaks lasted a long time and I had no real idea whether the light treatment was speeding up the recovery process or not.
I had thought that my psoriasis was starting to clear and preying that it wasn't going to come back, but it did. I repeated the whole process across the next 6 months and underwent another course of UV light therapy. My mum must have researched the whole of the internet and read stories of people that linked strep throat to their outbreaks of Guttate psoriasis, it was only then that it dawned on us that I was a sufferer of Tonsillitis in my mid-teens. I developed tonsillitis at around the same age and seemed to catch it every couple of months but had never have thought that my sore throat would be related to my itchy skin condition! The doctors and skin specialists said that there was no real link and that it hadn't been proven that either one affects the other, however I KNEW there was as a break out of psoriasis always followed a burst of tonsillitis. I ensured that i visited the doctor every time i had a sore throat to ensure that it was logged onto the system, as after 6 occurrences in 1 year you should be eligible for a tonsillectomy.
I had my tonsils removed, have obviously never suffered from tonsillitis again but have also cleared my Guttate Psoriasis for good (touch wood). I still suffer with mild psoriasis of the scalp but went from a severe case of full body psoriasis back to my normal regular clear skin. I am very lucky to only have suffered with this for 2.5 years and now at the age of 22 all of my scarring is gone and you would never have known/ believed that I ever had the skin condition to the severity that i did.
I hope this helps any of you that may suffer with a sore throat at the same time as a flare up, make sure you go to the doctor, even if you know how to treat it.
xx
Posted Mon 17 Feb 2020 10.21 by Johnny
Hi all I’ve had gp for around the 5 weeks mark now, came on after a strep throat infection and I’ve never had any type of psoriasis before hand so I am really down. Just wondering if any other people had it on there face or got a dry red patchy face around the same time? I haven’t got any tear drop shape bumps on my face but it’s really dry and rough in feeling on my left cheek and in between my eyebrows ahh!! Also nose is peeling and bright red!! Do you think this is due to the Gp? I cream daily 2/3 time a day especially after a bath, the back of my tri ceps seem to be much more flatter and light pink in shape is this the first sign im seeing as improvement?? Everywhere else still seems exactly the same, one questions I have got for every body is when they shower/bath did anybody’s conditions look a lot worse? My whole body looks 10x worse after a bath/shower and I get red rings around my gp tear drop shape marks so it looks like the red dots have like 4x in size until my skin drys and cools down and sort of replies would be amazing as I can’t keep ringing the doctors every time I get worried
Thanks
I had plaque psoriasis for the first time in 1980.
I 2018 I came out in gutatte psoriasis for the first time. it was 6-8 weeks after a total hip replacement (a major trauma to the body).
I used Oilatum and Oilatum Plus (bath oils) in a warmish (but not very hot) bath in the evening and it helped a lot with the itching. Bath water too hot can irritate.
You can also use oilatum in the shower, apply it directly to your skin. Watch out, it makes the bath slippery.
I also used Exorex and psoriderm coal-tar treatments in the morning, and then DoubleBase Dayleve Gel for repeated moisturisation during the day. I also took a vitamin d supplement. After 6 months it was fading and after 8 months it was cleared.
My doctor had said guttate ps often faded after 6 months or so.
Posted Mon 17 Feb 2020 11.54 by Johnny
My doctor told me my skin would be back to normal and clear within a maximum of 3 months... just wondering who’s had it on there face and where seems to clear first? My worse places is my left hand and arm and my legs and back/ shoulder area...
Posted Wed 29 Apr 2020 12.55 by MKA
Hi wondering if anyone can help me.
It's been a year my GP as cleared but when I shower I can always see the red Mark's come back up and then when i get out the shower and my skin cools down it goes.
Is this normal?
Would this go?
Does this mean my GP hasnt fully gone ?
Hi everyone, I’ve spent lots of nights scrolling through this forum searching for answers and finding myself feeling completely hopeless because no one has any answers really.
I just want anyone reading this to know that I felt like I’d have this forever. Within a month of finding the first spot, I was completely covered, it even spread to my face. But one day I woke up and it just looked less angry. Then it just started to fade. I’m still getting small amounts pop up, but I’ve definitely turned a corner and it’s manageable. I have every confidence it’ll go.
I believe that lots of health issues can be helped by diet, BUT please note that I already don’t eat gluten or dairy, so don’t think that will cure everything as some people may claim! If that were the case I would never get psoriasis in the first place!
I changed so much all at once to try to combat this, so I can’t pinpoint what has worked, but here’s what I’ve been doing:
Wash with epaderm ointment (the Vaseline type stuff). Bathe in oilatum and mix in some Dead Sea salt (no more than 15 mins and warm water, not hot). I use an emollient twice a day - either epaderm cream or double base. I’ve used dovonex and advocate RD steroid cream, but I use them only when it’s been unbearable. I also take antihistamines when needed. I read that people with psoriasis tend to be low in vitamin D, so I’m using an oral spray. I’ve been prescribed enstilar but haven’t used it after reading horror stories on here. I’ve also cut down on nightshades (tomatoes and potatoes).
Be kind to yourself. Don’t fall down the rabbit holes and convince yourself it’ll never go. Persist with whatever course or action you decide to take.
When you do start to feel better, please remember to post on the forums that you spent so much time reading through. I think lots of people don’t think to and it gives the impression that no one ever recovers x
Posted Wed 8 Nov 2023 11.01 by Yogacherry - from Hastings, East Sussex Hello, I was diagnosed with guttate psoriasis October 2023, after symptoms began in May 2023. II am 60 and have just finished an MA.
Hi, I am writing this November 2023. I started getting pink spots here and there in May 2023. I have recently been diagnosed with guttate psoriasis in October 2023. So I have now had it for nearly 6 months. It is on my arms, legs, chest and now getting worse on my face. For my body I was prescribed Enstilar foam that seems to have helped alleviate arms but not so much legs.
Yes, my experience seems to be that after having my shower/bath everything flares up. I am also coming to the end of my first recommended period (4 weeks) of using Enstilar. I can't use that on my face so that is quite depressing as it seems to be getting worse there - covering forehead and creeping downwards.
As far as I know I did not have strep but it could have been asymptomatic as there was a lot of it around earlier in the year. Other than that I had covid but that was in March 2022.
Posted Sat 11 Nov 2023 17.45 by OhNo_NotAgain? (edited Sun 12 Nov 2023 09.41 by OhNo_NotAgain?)
@Yogacherry: it could be that your bath or shower are too hot, and that is causing the flare-up. What products are you using in the bath or shower? Some regulat soaps and gels can irritate sensitive skin of course.
Back in the 80s I found that Wrights Coal Tar soap had a markedly positive effect on my psoriasis. Unfortunately 10-15 years ago the coal tar was removed and on the labelling now it is described as having a coal-tar fragrance.
Four posts before yours I have posted on things I use.
Posted Sun 12 Nov 2023 15.51 by Yogacherry - from Hastings, East Sussex Hello, I was diagnosed with guttate psoriasis October 2023, after symptoms began in May 2023. II am 60 and have just finished an MA.
@OhNo_NotAgain? Yes thanks for advice. I try not to take hot baths and shower and have been using a Eucerin product as a body wash on arms and legs and in bath and that does help. I am just trying to find something to moisturise face with as this is the recent place that has flared and of course it is very annoying and uncomfortable.
Posted Wed 29 Nov 2023 08.31 by Cailinpaige (edited Wed 29 Nov 2023 08.32 by Cailinpaige)
Hi all,
I followed this forum for weeks and someone earlier had really stressed the need to share our positive experiences as many people feel there is no end after months/years of psoriasis. My psoriasis started 5 months ago after a strep throat infection, I tried a number of steroid creams and changing my diet etc. I had it everywhere besides my face and it was chronic! I purchased a light therapy machine of my own as the wait time to see a dermatologist was 8 months and that, paired with Enstillar and taking tumeric with bioperine cleared it up in days!! I have scars at present which I’m confident will fade in time but I’m feeling so much relief! Our bodies and our psoriasis are all different, but I hope this can help someone else!
Posted Wed 29 Nov 2023 09.54 by Yogacherry - from Hastings, East Sussex Hello, I was diagnosed with guttate psoriasis October 2023, after symptoms began in May 2023. II am 60 and have just finished an MA.
@Cailinpaige,
Thanks for your experience. I was prescribed tacrolimus for my face as it was really flared especially on my forehead and was creeping down the sides too. I have been taking for a week and it has helped. It is not a steroid but it does specifically say do not use light treatments or expose to sunlight while using. Or drink alcohol. I was previously having derma light therapy on face but it was difficult to see if it was doing anything. I will see what happens when I stop using the ointment. Meanwhile the spots have started creeping around my shoulders and top of back so we will see what happens next. I have ran out of Enstilar but have a derma appt 11 December. I wonder if anyone has any tips on scars or is it just a case of waiting it out. Hope everyone is managing ok.
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