Hi, I’ used enstilar foam for my scalp psoriasis for about a year and it does work however it would come back within 2-3 days later- (quick tip for washing it out is to smother your hair in coconut oil just before you wash the foam out then shampoo twice with t gel shampoo or sylic acid shampoo and honestly it makes the foam come out a lot easier!)
I’ve stopped using the foam now as I’m scared it’s just going to make it so much worse in the long run. During lockdown I’ve just been putting coconut or organic virgin olive oil all over my scalp sleeping in it then washing it out with t gel shampoo the next day - the results aren’t as good as using the foam but they last around the same time (2-3 days) and I feel better using something I know won’t make it worse in the long run. Hope this is helpful to someone!
Posted Sun 14 Feb 2021 21.43 by Old Girl
Ref. "Enstilar Foam" why are posters saying you should only use for a few days, then have a break & not use for more than 4 weeks?
Posted Mon 15 Feb 2021 06.35 by Pladecalvo (edited Mon 15 Feb 2021 06.37 by Pladecalvo)
My daughter has started using the goat milk shampoo bars and so far her scalp is clear. She still gets redness across her hairline but no thick scales. We’ve used enstilar and yes it worked but would come back quickly. Would defo recommend buying the goats milk bars. They worked for her and she’s been clear since Christmas. We also bought the goats milk lotion for her body but it hasn’t been so successful.
Posted Mon 15 Feb 2021 22.26 by Old Girl
Thanks for reply, but my Ps is not in the scalp, about the only area that is clear!
Posted Thu 18 Feb 2021 19.30 by Old Girl
I have body Ps , approx 80/90% of body covered. have been using Enstilar every night for 6 days.
To date Ps on back has mostly cleared but no improvement on Legs/Arms/rest of body.
Have any others experienced this type of progress or lack of it?
Posted Sun 21 Feb 2021 14.58 by Old Girl
So no knowledge of this type of situation?
Posted Tue 2 Mar 2021 11.58 by Tina
Hi All
I have had hand and foot psoriasis for about 6 months and despite trying 4 or so treatments it's not improving. Also adjusting diet, lifestyle, gut health etc. Moved house. New GP who after econsult (filling in form and getting email) I have been prescribed enstilar "something stronger"
Anxiuos about rebound effect making it worse in the long term.
Should I continue my healthy plan or take the meds or do both..
Quandry 😃
Posted Wed 3 Mar 2021 16.53 by Onj
Hi Everyone
As a fellow sufferer with most of my body covered I also use the Enstilar Foam and it is the only medication that seems to bring some relief (tried everything) I am lucky as I am permitted one can per month on NHS. Even so I do not use is consistently or days on end but more sparingly maybe a couple of times a week as the can doesn't last long.
The only two magic options for me are UV light treatment which I have to fight for each year as I can't have immune suppressants and the Turkish sun when it clears up in a week.
Posted Wed 3 Mar 2021 18.19 by Northerner21
Work on your psoriasis from the inside out. People get flare ups in winter because of the lack of sunlight. Get a blood test to see if youre vitamin d deficient. I'm not hating on creams or foams or anything, but I think its masking the problem. I cleared my severe psoriasis with vitamin D3, 10,000 iu
Posted Wed 3 Mar 2021 20.39 by Linda
I have had a bad flare up of psoriasis this winter and my Dermatologist prescribed Enstilar which l have found very good.l am wondering weather to buy a Light treatment lamp so when l get a little flare up l can treat it at home, what experience have people had with these.
Posted Thu 4 Mar 2021 12.23 by Onj
For those who have had light treatment before, you will know the exposure doses are very careful regulated.
Apparently there is a maximum on how many you can receive in a life time. I have to argue for repeat treatments as I need it now and not second guess how long I may live for.
I have read that many people take the light treatment into their own hands with reported success. The good news is I believe there is no VAT on the equipment.
I have also looked into this and can offer the following supply company. You can buy from hand held to the size of the hospital ones. Please note as of yet I have not purchased any lamps.
https://treatpsoriasistl01uvblamps.co.uk/contact-us/
MBS (Much Better Skin)
I hope this helps you in your decision
I did try the vitamin D pill route without any success for me.
Posted Thu 4 Mar 2021 12.55 by Sizzy Psoriasis 40 years, most treatments tried over this time, currently on biologics (stelara) as nothing else work.
I believe I had around 40 PUVA sessions and I reached my limit. That was about 20 years ago! Be careful when self treating with light therapy people, cannot stress enough the risks of over exposure over weeks, months or years.
Posted Mon 8 Mar 2021 19.18 by Old Girl
Been using Enstilar now for 3 weeks.
My Back is now clear but legs still very bad.
Any advise?
Stop for a few days & then re start?
Posted Tue 9 Mar 2021 11.41 by JoshCarder Diagnosed with Psoriasis in 2011. Diagnosed with Psoriatic Arthritis in 2018.
I'm in Methotrexate, but I find using Enstillar once a week, alongside a once weekly bath with Hydromol, is the only topical treatments that work and are effective for me. The only issue with them is they stain everything they touch.
Posted Tue 9 Mar 2021 16.56 by Old Girl
As I inferred, I've stopped Enstllar after 3 weeks & do not know whether to restart.
It's cleared my back & a certain amount from the legs, but they are far from good.
But also noted a number of warts have come up on my body.
Is this due to the Steroids?
Posted Thu 25 Mar 2021 19.04 by dcncway
Just received my first bottles of Enstilar today to use. Been using Dovobet for a few years now on and off and its always worked. Had a major flare up a few weeks ago and used the Dovobet as usual but it came back straight away after 1 week of use. The specialist recommended Enstilar today and i picked up the prescription earlier so looking forward to trying it. if not its back to a course of UVB treatment. last had that in 2005 and it worked for about 10 years
Posted Thu 25 Mar 2021 22.55 by Linda
Hi l used Enstilar every day for six weeks it was great, l was putting Epaderm cream on after that and now it is coming back very quickly I am very disappointed, so am waiting to see what the next move is.
Posted Fri 26 Mar 2021 08.02 by Old Girl
Linda, Same for me Enstilar & then Epaderm, vast progress after 5 weeks, stopped the Enstilar & it's coming back!
Posted Mon 29 Mar 2021 09.26 by june
Hi, I've bought a book called
Healing Psoriasis, it's by
John O. A. Pagano, D. C.
Its, about healing Psoriasis from the inside, what we eat,and what we should avoid ,it's very interesting . I have decided to give it a try started a diet change ,will keep the group informed of any progress .l managed to buy the book used ,on Amazon
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Posted Fri 12 Feb 2021 19.46 by Kt
Posted Tue 9 Mar 2021 11.41 by JoshCarder