New user

Hi - I'm a new user but can't work out how to post a new forum. I would like to start a campaign / get funding from a university / get the backing of the Psoriasis Association / the support of a well known person, anything to get a product like Potters Psorasolv back on the market. So many people have used it over the years and it actually does work. I cannot get a definitive answer as to why it was taken off the market - if purely commercial then there's hope, if one of the ingredients became 'illegal' that's more tricky. I don't understand why a chemist can't make it it. This is the start of my campaign and I don't intend to stop until its available again.

Hi Jayney, I've just had a short course of UV treatment discontinued because I burned . Whilst having this I started following the diet recommended by John Pagano in his book Healing Psoriasis The Natural Alternative. The results have been miraculous with my skin 99% clear and only some tiny specks occurring. However, I don't know if this is due to the diet or the light treatment or a combination of both. I'm persevering with the diet in hope but it's a tough regime. The book is available on Amazon.

I have been on detox diets where I just had carrott juices and basically lived on rabbit food. YES it does improve. YES it takes months for your body to rid the crap you put in it and then heal. And NO I can never stick to a diet. Try getting rid of milk and gluten.

Hi Jayney, Well, I am 70 and have had ps since I was 20. I was very fortunate that my wife now (was my partner then) and, despite the ps, she stood by me. I think that, over the years, I have tried lots of things. Talking to others with ps I realise that it is a condition that has no real pattern; different people report in different ways about the various treatments. I have had 2 lots of outpatient hospital treatment; both got rid of my ps completely (except for my scalp)....but it came back inside 3 months. I have tried coal tar, almond oil, Dovonex, Calcipotriol, occlusive dressings, and the steroid treatments. Early on I was told a "low-Triptofan" diet would be good...but it didn't work for me. Once, when my partner and I split for 6 months it went completely....but this proved to be a red herring. Over the years I have found that the ps does NOT respond well to continuous treatment. I try to leave it as long as possible between smearing on the ointments, using moisturisers in between. Almost every year we have 2 weeks at a villa in Spain where I can swim and soak up the sun. Some years it goes completely....and I pre-treat myself before the holiday. If there is a universal agent that works it's SUN. But you need to experiment with suntan oils (I used Bergasol until the bergamot oil was banned)....but oils that allow the sun through are best. I use tanning oils on my ps and sunblock on the rest! If you get it on your hands treat them before going to bed and wear soft gloves (from Boots). More than anything moisturise....

Has anyone prescribed u coal tar? I think its the best treatment outside of ingrams