Posted Tue 9 Mar 2021 14.41 by Josie (edited Tue 9 Mar 2021 14.42 by Josie)
I’ve had psoriasis on my scalp for 23 years, the only thing I found that worked was Diprosalic scalp application. I’ve been using it regularly now for about 14 years. I recently did some research and it says these steroid treatments aren’t good for you in the long term, my doctor has never warned me of this. I have tried to come off it before but it seems my skin is addicted to it now as it flares up really bad when I stop using it. I’ve been using it less and less as vitamin d tablets are helping along with a vegan diet. But I was wondering if anyone has tips of other scalp applications which don’t use steroids that I can change to? Or tips on weaning off scalp steroid treatments? I can’t wash my hair with olive oil or coconut oil, I’m too lazy! Thanks in advance x
I have had Psoriasis on my scalp for over 30 years and the only things that work for me are Cocois ointment ( VERY messy ) and steroid lotions
as soon as you come off the steroids it flares up again ,I have purchased every lotion and potion under the sun that promises miracles ( but NONE of them work or they would be available on the health service as it would save them money )
Instead of using it daily i am now down to twice a week and have been put onto a different lotion ( Elocon ) which although is another steroid i am finding I don't need to use it every day
As you say using the oils in your hair is such a mess and I Like you would not go down that route ,I even tried a UV hand help lamp but sadly it comes back as quickly as it eases.
Everyone is different and i hope you find something that helps
There is a well known effect called "steroid rebound" where something such as psoriasis can re-appear with a vengance immediately a topical steroid treatment is stopped.
The genral approach to try combat this is to slowly taper off the use of the topical steroid and NOT to just stop immediately eg after 4 weeks.
Dovobet is a newer steroid than Diprosalic, and combines one of the same steroids wirth a vitamin-D analogue. During development it was observed that the rebound effect with the included vit-D was less than with a straight steroid.
What I did afer consultation with my GP is to reduce gradually after four weeks from twice daily, to once daily, then once every 2 days and so on.
Posted Thu 11 Mar 2021 12.12 by Josie (edited Thu 11 Mar 2021 12.21 by Josie)
Thank you both, very helpful. I’ll book in with my doctor and look at how I can wean myself off of go to a lower dose steroid first.
Are you still on the Dovobet now or have you managed to stop the steroid altogether?
Posted Fri 12 Mar 2021 07.02 by OhNo_NotAgain?
Hi Josie, I have been very lucky. I get now only get occasional flare-ups occasionally on my elbows (which will bleed) and a few days application of Dovobet seems to clear it up.
If you google "steroid rebound" or "steroid rebound psoriasis" you can read up a lot more about this.
I am 63 and my plaque psoriasis first appeared the day after my 22nd birthday and within weeks covered my entire body. In 1980 the main treatment was a coal-tar preparation that looked like brown lard. Betnovate steroid was available but not usually recommended to apply to large areas. Even back then there was a phrase "betnovate face" used to describe the red-faced appearance of someone who had over-used betnovate on their face, and the thinning skin was allowing blood vessels to become more visible.
Posted Fri 12 Mar 2021 10.21 by Josie
I apply it on my head, but have noticed a redness in my face which I presume is the blood vessels and my skin thinning. Thank you for the advice and for sharing your story. I’m glad that you have managed to control your psoriasis.
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