Hi all,
I was diagnosed with PSA a few years ago and since then have been on Sulfasalazine ( had flare ups with it) and Methotrexate ( started with tablets and went onto injections due to tablet side effects).
The methotrexate injections were great insofar as the Psoriasis almost went and I didn’t have much in the way of side effects and I could do most activities without being hassled by the PSA too much.
Then, just over a year ago I had a bad flare up of PSA and was changed to Leflunomide as I was struggling to walk and was in a lot of pain in elbow, knees, feet, fingers and so on.
Aside from the warning that it could really affect my liver, more frequent blood tests and strictly no alcohol ( I very rarely drink so wasn’t a big deal), everything was going fine up until about 5 or 6 months ago when I started to get tingling feet, legs and hands amongst other places. I also started to get ‘ghosting’ in my right eye vision and a slight twitch in this eye.
Initially, I didn’t think much of it as I was tired after a series of long visits to hospital to get rid of a kidney stone and associate sepsis and thought it was just me being tired.
I mentioned the tingling to my GP along with my eye who took some bloods and sent me off to the opticians to get the eye checked out. Bloods came back clear without a mention of the Leflunomide possibly being the cause of any of it - it was discounted pretty early on.
Long story short of this is that I had an MRI scan on my head and eyes, was told there’s nothing really bad in the results, have been referred again for my eye, but nowhere did anyone mention the Leflunomide.
Didn’t think it could,be the Leflunomide as I’d been taking it for a while and wasn’t having any bad reactions to it, but eventually decided to speak to my rheumatology nurse who suggested that I stop the Leflunomide and see if anything clears up and to contact them a week later.
Week later, the issues are still there, so looking to get the Leflunomide flushed out of my body and have an appointment in a months time to discuss what’s next as i started to get a flare up before contacting the nurse and they want to see the PSA in action as it were.
Aside from wondering if anyone else has had side effects like this, what is next after the 3 drugs that have been mentioned?
I’m getting a tad worried that I’ll be given a steroid injection ( which tends to clear the PSA for a bit every time) and sent on my merry way without anything to control the PSA.
We use cookies to help us provide you with a better service, but do not track anything that can be used to personally identify you.
If you prefer us not to set these cookies, please visit our Cookie Settings page or continue browsing our site to accept them.
Close