If you could talk to your psoriasis, what would you say?

1 2 Next Last

Posted Wed 18 Jul 2012 15.13 by PsoriasisAssociation

The Psoriasis Association has teamed up with the Mental Health Foundation to create a new initiative: See Psoriasis Look Deeper. The aim of this initiative is to get the voices of people with psoriasis or psoriatic arthritis heard, to tell the world what it's REALLY like living with psoriasis. The initiative is creative; express how psoriasis makes you feel by writing a postcard to your psoriasis, drawing, or even recording a film. See Psoriasis Look Deeper will be launched in the Houses of Parliament in October, at an event attended by MPs, health experts and the media. This is your chance to get involved and get heard! Go to our news page for more information: https://psoriasis-association.org.uk/news-and-views/view/we-need-you-join-up-with-the-new-see-psoriasis-look-deeper-campaign

1 Posted Fri 20 Jul 2012 21.50 by michaelswims (edited Mon 1 Jun 2015 07.17 by michaelswims)
Yes

I had the first signs of psoriasis about 2 years ago and rapidly developed psoriatic arthritis in my fingers and toes. My first reaction to the question what would you say to your psoriasis would not be suitable for printing. However, on reflection, I would ask my illness the following: Why do you take away my ability to do the things I love, like hill walking, running and cycling? Does my illness realise that I fear for my future employment as my arthritis continues to restrict my activities? How can I expect my wife to enjoy love making, when genitalia is raw and flaking and painful to the slightest touch? Are you going to affect my children? Where has my self confidence gone and why do I feel like crying so often? What can I do to destroy you before you destroy me?

Posted Sun 22 Jul 2012 12.27 by maryday9 (edited Wed 20 Feb 2013 20.51 by Kito619)
i have psoritic arthritas ,i have psoriasis in my hands , my scalp stomach and genital area's . i am driven mad with the itching and embarre

Please give me a break you ,i need to sleep ,to laugh to wear nice clothing you are so demanding go away i want my life back !!!

Posted Wed 8 Aug 2012 16.26 by MAGPIELASS (edited Mon 2 Dec 2013 20.54 by Blakey614)
It has been a blight on my life for over 40yrs

why are you so complicated to understand and change formats when you are loosing. do you realise how heart breaking and soul destroying this awful condition is. Please let someone figure out a formula to keep you at bay permanently that does not have such devastating side affects.

Posted Wed 17 Oct 2012 10.49 by brian (edited Mon 2 Dec 2013 20.54 by Helen1975)
20yrs

Some days i just want to get a Knife, and cut my skin off!! After 20 +yrs, ive stopped asking why?? and say now.:"if this is the only thing, ill suffer from then ok"

Posted Fri 7 Dec 2012 19.46 by Clairebear2410 (edited Mon 2 Dec 2013 20.54 by Broadbent)
Psoriasis of Scalp and Nails Psoriatic Arthritis

I don't think i could write down publicly what i would like to say!

Posted Wed 13 Mar 2013 11.17 by kathi1969
Scalp Ear Genital

Why me ?

Posted Fri 29 Mar 2013 17.01 by Rach

why won't you leave me alone, why is it so many diff things can trigger you to flare up, and be so hard to clear sometimes, if i ever have children will you stay away from them, I would hate them to have to go through what I have been through.

Posted Sat 30 Mar 2013 21.16 by Dave
To cut a long story short, psoriasis ruined my life when i was just a teenager.

You ruined my life you son of a b!%&h!

Posted Mon 3 Jun 2013 21.56 by ZK94 (edited Wed 27 Jan 2016 16.23 by JudGo)
in the worst way possible :(

I would say thanks: Thanks for ruining my childhood Thanks for the bullying I received at home and at school Thanks for making me cry every night because you wouldn't go away Thanks for ruining my future Thanks for breaking my self-esteem Thanks for ruining my hope when you went away for 2 months but came back 10 times harder Thanks for humiliating me in front of family and friends when blood stained my clothes without me noticing Thanks for causing me despression Thanks for making me doubt my faith in God And thank you for the fact that you may cause my future children all this pain and suffering... xx

Posted Thu 1 Aug 2013 22.40 by SarahG (edited Mon 1 Jun 2015 07.19 by Meredithfleur)
It affects my whole life, from waking to sleeping. I have it quite widespread so always fear that people will think differently of me or thi

I respect that you are a part of who I am, but I wish you would give me a break every now and again. I wish I could wear shorts and t shirt when the sun is blazing down on a hot summers day without the stares and whispers, and without the young kids asking 'what's the matter with your skin?' (Just innocent curiosity on their part but it still hurts!) I wish I could go to the gym and actually show off my body while I work out rather than cover it up, and not have to get my other half to make sure the sauna is quiet before I go in so I don't get embarrassed. I am not ashamed of who I am, but I do wish that I could have a break from you for a few months a year, preferably in the summer!

Posted Sat 3 Aug 2013 21.43 by charleychick
to the point where i want to crawl out of my own skin!!!!!

I met someone today who also had psoriasis and this was the first person id met for the first time in 8 years that ive had psoriasis, he told me at one point he was hospitalized due to the severity of his psoriasis. I have had moderate psoriasis for 8 years now it started as guttate after a severe throat infection at the age of 20 it went after a couple of months and i never thought about it again until at the age of 24 i acidentally cut myself shaving in the bath an i literally scared myself i had this bad feeling it would return and it did an it slowly grew worse and worse and now 4 years later its still there and although its never flaky because i continously moisturise, it is still red and angry and my legs are the worst very spotty in some places it looks like ring worm as there are circles of it with normal skin in the middle. A month ago i quit the steriod cream (dovobet) which i became addicted to and relied on heavily, i quit it because i knew it was making it worse and worse as i had my breaks in between i also starting bruising really easily!! I am seeing the derm in sept and going to hopefully be put on uvb fingers crossed cos im now sick to death o being fobbed off with steriod cream!!! When i see this gentlemen today i felt sick i feel bad because of how i feel about psoriasis we come from a society where image is so important and i didnt like what i saw when i see his psoriasis even tho i have it, i feel bad for how i felt and im now trying to accept that i may have this forever and i may have to start accepting it as not a discusting ugly disease but as part of me, i wasnt sure if any of you felt how i feel about it, i pray everyday for a cure, ive tried diets and had no luck im that sceptical and angry about it that when i read someone saying how they cured themselves through diet or through reading a diet book or a special cream, i dont believe them i feel like they are just advertising a product and trying to sell it.. I feel like psoriasis makes so much money for the government with people paying for prescriptions etc so much that i think to myself why would they want to find a cure they would loose loads of money. I hate to sound so depressing and i hope im not offending anyone with what im saying but i see so many creams for sale so many diet books on psoriasis i just dont know what to do if i try one and it dont work then another then another it will takes years for me to find that right one and loads of money and all along i may be wasting my time!! if any of u have found what works best for you and its never come back or its gone into remession then i see you as lucky more than it bein the product!!!

Posted Mon 2 Dec 2013 20.59 by Amandine
Plaque Psoriasis since childhood, now nail psoriasis, psoriatic arthritis, eye problems, the full monty really!

Why have you plagued my life? Why do you mutate just when I think I've got the measure of you? Why do you attack me - did I do anything to you? Don't you understand that you don't just affect my body, you affect every area of my life - you cause me stress because of what you do to my body and the stress seems to make you do it more - if you took a break we could both have a break. And now, now satisfied with making me look like a leper, you are crippling me with arthritis and making me old before my time.

Posted Mon 2 Jun 2014 12.41 by wani1981
how? dont know? :)

mr or ms psorises; you are a guest in my body who do not want to leave. you want to stay with me rest of my life, if you have decided to live with me then be good to me. but i also thank Allah and you that when i see other people who are effected by you.i feel that psorises you are so good to me. but this thing is clear that i will flight my whole life to kick you out of my body and i will.and when i will and will tell everyone how to kick you out... :)

Posted Tue 3 Jun 2014 12.45 by FrankieT
Without treatment I get almost 100% coverage, currently using methotrexate that is failing.

I would have to ask: Why have you destroyed my self esteem, my confidence, and have broken me, what the heck is it you want and how can I get rid of you forever

Posted Thu 4 Sep 2014 19.33 by ryezy (edited Mon 12 Jan 2015 01.08 by giovanni11)
had it since age of about seven

fxxx off

Posted Sat 20 Dec 2014 17.27 by 47psoyrs
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

I don't see any good in this negative site. People seem to feel sorry for themselves & want...what do you want? You obviously have the self pity you desire. Let's talk about some wonderful things like the flowers, hobbies, children, etc. The whole world isn't bad! Yes, I've have p for about 47 years & have learned to deal with it without complaining. I probably won't be coming back to this site again.

Posted Sat 20 Dec 2014 18.50 by 47psoyrs
I never wear dresses. It's jeans or slacks to church & every where else. I don't mind cause it's more comfortable & I've never been a "fancy

You don't scare me, 'cause when I get to heaven I won't have psoriasis!

Posted Sat 3 Jan 2015 18.06 by tchay
negatively

I'd say you've done nothing but cause misery and pain and ruined lives , then I'd blow it's sorry ass away ..

Posted Sun 11 Jan 2015 00.07 by sinead89
I have had scalp and skin psoriasis since the age of 7. I am currently awaiting diagnosis of pa, although have suffered with this for some y

I would say this... Dear P, We first met when I was 7 years old, you've been with me now for 18 years. When you came into my life I didn't really understand, I used to think it was fun how my hair would snow lol! You did cause me pain but I could live with that. It was when I reached my teen years that I realised the true extent of your control over my life. Wearing dresses, having my hair up, going swimming with friends were all out of the question.The self control it takes not to scratch and the relief that comes when you finally give in. The looks and bullying at school were pretty rough, but that only spurred you on as you continued to spread across my body. And as I reached my 20s you decided to attack me in a new way; psoratic arthritis! You cause me so much pain and affect my mobility. And the fatigue is something else.. I worry how long it will be before you cripple me entirely? Why cant you just give me a break? Maybe just a year to see what life without you could be like. I will give you this; you have made me a better person for your presence. I am less quick to judge, as I know how it feels to be judged. I am more tolerant of others and their differences, and have had no choice but to develop a tough skin over the years. I don't feel sorry for myself and have come to accept you through the years. I just ask one thing, please leave my son alone? Your old friend Sinead
1 2 Next Last

To take part, sign in or register with us