Pustular psoriasis?!

Posted Sun 3 Nov 2024 17.37 by Vix82

Hello everyone I’m new here and not sure what I was hoping from this post. Maybe to hear some others experiences and to (hopefully) feel there’s some light at the end of the tunnel? I don’t have an ‘official’ pustular psoriasis diagnosis yet but looks very much like It and the GP indicated it could be. I have had psoriatic arthritis for around 3 years now. For just over a month now I have developed pustules all over my hands, then feet and now several dotted on other areas of body. Over the last month when the pustules started, it’s been really tricky, the pustules start small, get larger, merge together, eventually burst and then crack and peel. I have new skin on nearly the entire palm of my hands from when they’ve peeled and now the pustules are appearing more again on top and mixed in with the sore skin. My feet are a little more behind the process than my hands, think, as I have more pustules on them at the moment. My hands are sore. However my feet are currently so sore/tight/itchy/burning and I’m finding it hard to walk. It seems to be getting worse, not better. I’ve been on adilumabab for around 5 months and have been asked To stop this for 4 weeks so the rheumatologist can review things. I have used Enstilar for almost 2 weeks and not much is happening. Hydromol being used and absorbs so quickly. I keep thinking I need to just get on with things but it’s hard as feeling a bit rubbish and worrying how I’m going to walk/drive if this carries on.

Posted Wed 6 Nov 2024 08.18 by Clarey

Hi I was diagnosed with GP last year for this on my feet, I waited almost a year for a dermatologist appointment (I don’t have the arthritis part) now it’s started on my hands. I use epiderm which works far better in my opinion.and betnovate ointment. I also have Salic acid to use for skin build up. It’s been a horrific experience, the pain is excruciating at times and honesty disabling. I’ve went from a fair active person to someone who hardly goes out. I am waiting on light therapy treatment now. You need to see a dermatologist for proper treatment. I also applied for Scottish Disability payment however this was knocked back I am in the process of redetermination now

Posted Wed 6 Nov 2024 08.20 by Clarey

Sadly it is life changing, I’m still in the early stages of treatment but from what I have experienced so far it’s making the most of when you don’t have flare ips and managing things when you are

Posted Wed 6 Nov 2024 14.02 by Vix82

Thanks for your replies. It does seem life changing. It’s really horrible isn’t it. The dr has now refereed me to the dermatologist and rheumatologist are going to try me on a different medication for the psa.

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