Rare Disease Day 2025

Today, 28th February 2025, is Rare Disease Day. The aim of the day is to raise awareness on rare diseases and works towards equity in social opportunity, healthcare, and access to diagnosis.

There are 300 million people across the globe living with a rare disease and over 6,000 different rare diseases have been identified.

Although psoriasis is not classed as a rare disease, certain types of psoriasis such as erythrodermic psoriasis and pustular psoriasis are considered rare forms condition affecting 2% and 3% of people living with psoriasis, respectively.

The impact of a condition such as generalised pustular psoriasis can take a toll on all aspects of someone's life, we recently completed a survey encouraging people living with GPP to discuss their experiences of living with the condition. Here's what they had to say:

You can learn more about Rare Disease Day 2025 in the campaign video which can be found below and is available on YouTube.

Reach out for support

If you have any concerns about living with psoriasis, including rarer forms such as erythrodermic psoriasis and pustular psoriasis, please do reach out to our confidential helpline for guidance and support.

You may also wish to join some of our peer-to-peer support networks, to connect with others who are going through similar experiences.

Confidential Helpline:

Ring: 01604 251 620, email: mail@psoriasis-association.org.uk or WhatsApp: 07387 716 439.

Phone, email and WhatsApp available Monday to Friday 09.00 to 16.00.